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What do you wish you would have known in the beginning?
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shewhorn Offline

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Machine: ResMed AirCurve 10 ASV
Mask Type: Full face mask
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Humidifier: Integrated
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CPAP Software: SleepyHead

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Post: #1
What do you wish you would have known in the beginning?
For those of you who have been on xPAP treatment for a while now (let's say a year or more), what do you know now that you wished someone would have told you in the beginning?
05-10-2016 12:57 PM
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surferdude2 Online

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Posts: 1,077
Joined: Jul 2014

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro & Optilife
Humidifier: ResMed H5i @ #3 if nose breathing & #5 if mouth breathing
CPAP Pressure: 12 ~ 20 & 11 ~12 if nasal mask
CPAP Software: ResScan SleepyHead

Other Comments: Late stage 2 emphysema

Sex: Male
Location: Mousetown, Southern Illinois

Post: #2
RE: What do you wish you would have known in the beginning?
A couple of things come to mind:

1. Wearing the mask with the the flow generator turned on during the day while reading or watching TV makes getting used to it much easier.

2. How important it is to sleep on my side.
05-10-2016 01:18 PM
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PoolQ Offline

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Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

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Sex: Male
Location: Sillicon Valley

Post: #3
RE: What do you wish you would have known in the beginning?
Strange as it may seem, nothing. I made tons of changes, but they were based on my adapting to CPAP and changing things as they showed up. Do I wish I could have adapted sooner, wow you bet. can I think of anyway I could have done that, not really.

On the other hand my father in law as made 3 changes to his humidity and is sleeping like a baby.

I started on the forums before the sleep study and have never left yet. Still making adjustments and getting better.
05-10-2016 04:29 PM
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0rangebear Online

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Posts: 341
Joined: Jan 2016

Machine: ResMed AirSence 10
Mask Type: Other
Mask Make & Model: Amara View
Humidifier: HumidAire (Built-in)
CPAP Pressure: APAP 12.8-15 EPR 3 (cmH2O)
CPAP Software: ResScan SleepyHead

Other Comments: Ramp off

Sex: Male
Location: Brighton Colorado

Post: #4
RE: What do you wish you would have known in the beginning?
I do not meet your criteria because this is only my 5th month of therapy. But I have found my sweet spot, identified the benefits and disadvantages of sleeping positions and settings.

I am consider treated and in control by my doctors.

I sleep though the night now around 7 hours. Plus; Archangel told me I was cured, what could be better than that!

I wish someone had told me about the Forum before I had a sleep test and acquired a machine. I wish I had known what the benefits would be 5 years ago.

What I recommend to new folks is: make small infrequent methodical changes based on a good analysis in the forum and a discussion with their doctor. Many people seem to make big random changes and move in circles of confusion.
(This post was last modified: 05-10-2016 04:44 PM by 0rangebear.)
05-10-2016 04:43 PM
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OpalRose Offline

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Posts: 3,168
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #5
RE: What do you wish you would have known in the beginning?
I wish that I had known that I wasn't going to die in the 4 1/2 months from being diagnosed to actually getting an APAP. If I had been more informed of the whole process, I wouldn't have suffered so much anxiety.

I wish that I would have taken more control over the entire process. If I had known more, the DME wouldn't have taken advantage of me and given me a used machine, which I complained about within the first 30 days and then received a brand new machine.

I know that I've suffered from Sleep Apnea for at least 15 years, and wished I would have been diagnosed sooner.

The real blessing for me was that I found this forum early in my treatment. Smile

OpalRose
05-10-2016 04:50 PM
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robysue Offline
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Posts: 1,228
Joined: Oct 2013

Machine: PR Dreamstation BiPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: PR Dreamstation humidfier
CPAP Pressure: min EPAP = 4; max IPAP = 9;
CPAP Software: SleepyHead EncoreBasic EncorePro

Other Comments: Papping since September 2010

Sex: Female
Location: Buffalo, NY

Post: #6
RE: What do you wish you would have known in the beginning?
I wish I had not been so resistant about taking prescription sleeping pills once the Insomnia monster raised his very ugly head.

I also wish that someone had told me that severe aerophagia was a reason for calling the sleep doc's office and insisting on being seen. As well as a good justification for switching from straight CPAP to APAP.

Questions about SleepyHead?
See my Guide to SleepyHead
05-10-2016 05:10 PM
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trish6hundred Offline

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Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: What do you wish you would have known in the beginning?
I wish I would have treated my Obstructive Sleep Apnea, (OSA,) earlier than I did and I wish I would have started using a full-face mask )FFM,) earlier instead of fighting so long with the chinstrap, for me, a losing battle. But, better late than never, onward and upward.

trish6hundred
05-10-2016 08:10 PM
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OB-Left Offline

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Posts: 39
Joined: May 2015

Machine: ResMed Airsence 10 Auto
Mask Type: Full face mask
Mask Make & Model: AirFit F10, Mirage Quatro
Humidifier: Integrated
CPAP Pressure: 6 - 12
CPAP Software: SleepyHead

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Sex: Male
Location: Michigan

Post: #8
RE: What do you wish you would have known in the beginning?
I am at 1 year and the only regret that I have currently is that I didn't listen to my wife sooner. Please don't tell her.Okay I feel better today than I have in the last 4 years.
05-11-2016 11:47 AM
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tmoody Offline

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Posts: 175
Joined: Mar 2016

Machine: PR System 1 BPAP AutoSV
Mask Type: Nasal pillows
Mask Make & Model: Swift FX nose pillows
Humidifier: PR System 1 attached
CPAP Pressure: 8-25
CPAP Software: SleepyHead

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Sex: Male
Location: Philadelphia

Post: #9
RE: What do you wish you would have known in the beginning?
I wish I had bothered to check back with the doctor once in a while after I got my first CPAP machine, nine years ago. By the same token, I wish they'd checked in on me. I really had no idea this wasn't a "one and done" kind of thing. I also wish I'd bothered to find this forum years ago. I probably could have secured a better machine and better therapy years ago if I'd been less passive about the whole thing.
05-11-2016 11:56 AM
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holden4th Offline

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Posts: 238
Joined: Dec 2015

Machine: PR System One REMStar 60 Series Auto with Bluetooth
Mask Type: Nasal mask
Mask Make & Model: Respironics Dreamwear
Humidifier: Remstar Heated Humidifier
CPAP Pressure: 11- 15 APAP
CPAP Software: SleepyHead

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Sex: Male
Location: Gold Coast Australia

Post: #10
RE: What do you wish you would have known in the beginning?
I wish that I'd known about mouth breathing right at the beginning and ways to resolve it. I'm only about 6 months into therapy and only the last couple have become effective.
05-12-2016 03:48 AM
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