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What the Manufacturers REALLY Think About the Patients
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SuperSleeper Offline

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Post: #11
RE: What the Manufacturers REALLY Think About the Patients
(12-05-2015 09:12 PM)AlanE Wrote:  Nothing like 'back room of a bar' corporate espionage.

Not that there's anything wrong with that. SHa_biggrin5

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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

12-05-2015 09:35 PM
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Sleepster Offline
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Post: #12
RE: What the Manufacturers REALLY Think About the Patients
(12-05-2015 08:15 PM)SuperSleeper Wrote:  We've even told one of ResMed's Vice Presidents who joined the forum that we're tired of them not seeing us (the end-users) as their "customer". Seems it all falls on deaf ears, as all we got were platitudes and a virtual "pat on the head".

They don't get their money from us. Maybe someday they'll realize that we have a choice as to which machines we buy with our money.

Right now, I wouldn't buy a DreamStation because it would essentially be a brick to me. I should be due for a new machine and next month I'll have my doc write the prescription for the machine of my choice. It'll be a ResMed A10 VPAP Auto.

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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-05-2015 09:44 PM
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zonk Offline

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Post: #13
RE: What the Manufacturers REALLY Think About the Patients
(12-05-2015 09:44 PM)Sleepster Wrote:  It'll be a ResMed A10 VPAP Auto.
http://www.resmed.com/us/en/consumer/pro...vauto.html
AirCurve 10 VAuto Coffee
12-05-2015 09:59 PM
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SuperSleeper Offline

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Machine: PR System One REMstar Auto (DS560)
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Post: #14
RE: What the Manufacturers REALLY Think About the Patients
(12-05-2015 09:44 PM)Sleepster Wrote:  They don't get their money from us.

Agreed, they don't get their money directly from us. That said, it is we (the patients) who are generally footing the bill for the healthcare insurance that ends up paying the DMEs, who then end up paying for and purchasing the CPAP manufacturer's machines. Or we pay the DME if insurance won't, and they again pay and purchase from the manufacturer.

In other words, without sleep apnea patients being the ultimate payor, they would be out of business.

No matter, all my ranting won't change things anyway, of course. It's more to vent than anything else. You can't fight city hall the medical mafia. Too-funny

It just sticks in my craw that the manufacturers (and for that matter many DMEs and sleep doctors) have such little regard for what the patient thinks. That, plus the fact that many of them talk down to us and treat us like uneducated morons, when (in many cases) we know more about how to optimize the effectiveness of our own treatment than they do.

Cool

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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

12-05-2015 10:04 PM
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Mark Douglas Offline

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Post: #15
RE: What the Manufacturers REALLY Think About the Patients
Some people would say something but I won't!
I won't!
The he11 I won't! (young people probably have no idea about this line)
Root cause analysis tells us gvt interference in market place is why medical care cost so much in the US of A.
There I said it.
I once asked staff at dentist's about cost of an additional cleaning. Was told $XX and I said WHAT? Ins pays only $X. That's THEIR price I'm told. BUT I will pay cash. No paperwork no credit card fees. Nothing. I ought to get a discount! Same thing everywhere in medical industry and it is an industry. I think it was Eisenhower who warned about military-industrial collusion. Well this is gvt-medical industrial collusion.
Rant off Rolleyes

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Updated: Philips Respironics System One (60 Series)
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12-05-2015 11:08 PM
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Sleeprider Offline
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Post: #16
RE: What the Manufacturers REALLY Think About the Patients
To be honest, the employees of Respironics here are amazed that any lowly patient even has technical and medical knowledge of sleep apnea and the machines. Their jaws drop if you start to discuss terms like flow limitation, RERA and ASV, let alone differentiating OA and CA. The programmer for Dreammapper writes the programming at a 6th grade level at the instruction of his supervisor and the corporation.

I'll try to get a copy of the latest Encore, but considering that I'm not close friends, and that could jeopardize his job, I'm not optimistic. I'll buy the next round. BTW, these are 30 year old millennials, the same age as my younger daughter. They don't know the end user, and they certainly don't think a CPAP user can understand or interpret higher level data.

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12-05-2015 11:08 PM
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Sleepster Offline
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Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #17
RE: What the Manufacturers REALLY Think About the Patients
(12-05-2015 11:08 PM)Sleeprider Wrote:  They don't know the end user, and they certainly don't think a CPAP user can understand or interpret higher level data.

It's called group-think. You're immersed in a culture that thinks a certain way about something and you come to believe that it's the only way to think about that thing.

Sleepster
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-05-2015 11:50 PM
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Sleeprider Offline
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Posts: 3,390
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Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #18
RE: What the Manufacturers REALLY Think About the Patients
As I said, they are mostly young people, and the programmers developing the software have no medical background. They are instructed by the manufacturing executive staff to develop a friendly UI to present specific limited information available on the machines. The direction comes from the top.

The sales force is specifically prohibited from patient contact, and directs all marketing literature to DME, insurance and medical audiences. Unlike many pharmaceuticals today, they don't advertise "ask your doctor about xyz CPAP, and the difference it could make in your life". Imagine if CPAP was advertised like V*****, C***** or some of the other medications. It would totally change the image and awareness of apnea.

The only thing that will change this is a grass-roots (patient) revolt to buy direct. Then they have to listen. Apneaboard is actually in the vangard of everything they want to avoid.

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12-06-2015 09:43 AM
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Mark Douglas Offline

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Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
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Post: #19
RE: What the Manufacturers REALLY Think About the Patients
(12-06-2015 09:43 AM)Sleeprider Wrote:  The only thing that will change this is a grass-roots (patient) revolt to buy direct. Then they have to listen. Apneaboard is actually in the vangard of everything they want to avoid.

I agree and am of two minds. First I want to proselytize for apneaboard and yet I fear if too successful will attract attention doesn't need.
Has already been discussed what happens to us if future machines are 100% cellular and no data access for the little people Oh-jeez

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
12-06-2015 12:26 PM
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Snowleopard28 Offline

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Post: #20
RE: What the Manufacturers REALLY Think About the Patients
'Mark D.' This is so deja vu. I just had an appointment with my sleep doctor last Friday and were talking about the future of the technology and sleep apnea. The only thing that we in the USA have on our favor, is the privacy policies that are in place. I actually showed him a Encore Pro report of my latest progress that I saved on my cell phone. It didn't come from the DME and he knew, but had no problem with it. So there are a few sleep doc's that are understanding. Maybe if we can change them, it will spread so that we that have these sleep disorders will have better treatment.
12-06-2015 03:06 PM
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