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Which machine and which settings are ideal for UARS?
#1
Which machine and which settings are ideal for UARS?
I suspect I have UARS in addition to complex sleep apnea. I've analyzed my flow rate. It was also noted I had more RERAs than apneas in my sleep study; I had next to no obstructive apneas. I currently only have an APAP with pressure setting 5-6. Thanks.
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#2
RE: Which machine and which settings are ideal for UARS?
"Complex sleep apnea" as in you have central apneas, including during your sleep study?

If yes, ASV is the typical recommended solution; excellent for both conditions.

But it's expensive, and hard to get insurance approval for.
Caveats: I'm just a patient, with no medical training.
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#3
RE: Which machine and which settings are ideal for UARS?
Yes I had central apneas during my sleep study. They were mostly clustered together so I wasn't given a diagnosis of complex sleep apnea. However I assumed because my centrals skyrocketed after being put on APAP pressure 4-15 that I have complex apnea. Centrals are still an issue at least going by OSCAR but they're fairly clustered together as in the sleep study. My flow rate looks really strange however, and I have customized user events which pop up. Do you still think ASV is warranted? It's been very challenging to get a prescription and I haven't yet been able to.

Also how do you like the Dreamport? I'm going to give mine another try tonight.


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#4
RE: Which machine and which settings are ideal for UARS?
(05-05-2020, 05:55 PM)Universeonwheels Wrote: Yes I had central apneas during my sleep study. They were mostly clustered together so I wasn't given a diagnosis of complex sleep apnea. However I assumed because my centrals skyrocketed after being put on APAP pressure 4-15 that I have complex apnea. Centrals are still an issue at least going by OSCAR but they're fairly clustered together as in the sleep study. My flow rate looks really strange however, and I have customized user events which pop up. Do you still think ASV is warranted? It's been very challenging to get a prescription and I haven't yet been able to.

I'm going to defer to others with expertise on CSA for this (I don't know what to make of that clustering, for example). 

It would help to post your OSCAR charts, though, since it will give them more info to go on.

On the Bleep, love it. I did modify it to use a more flexible hose and add a diffuser, which makes it virtually silent. And I get zero leaks.
Caveats: I'm just a patient, with no medical training.
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#5
RE: Which machine and which settings are ideal for UARS?
Sure:
           
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#6
RE: Which machine and which settings are ideal for UARS?
The ASV is the right answer when CA enters the picture. My approval needed 50% or higher CA to other apnea on the Sleep Study. I also had the history of a prior CPAP and BPAP failure, but not an ST fail because I pushed hard on ASV for centrals. I purposefully did not mention ST and maybe I got a shortcut there. Fail on CPAP was attempting to exhale on a straight CPAP set to 18 with no Flex or EPR meant exhale was work. BPAP made CA go through the roof. Both no go. And both these were Respironics. The ASV is ResMed because I read here it's the best choice, and my experience says it is as long as you're only dealing with apnea related issues. I cannot use the ASV now as COPD has gotten worse.

If the ASV is what you're after, shop for used if you have to. There are sites that have them out there.
Dave

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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#7
RE: Which machine and which settings are ideal for UARS?
I'm really trying to get to the bottom of this because I'm in not so good a place.            
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#8
RE: Which machine and which settings are ideal for UARS?
I have another appointment with my sleep doc on Friday. If he doesn't bump up my sleep study to be sooner or prescribe me an ASV I will indeed go the used-without-a-prescription route.
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#9
RE: Which machine and which settings are ideal for UARS?
We can see the problem with all those UF1-2 events, but the sleep study protocols are very rigid and won't count them because the duration is less than 10 seconds. You might want to discuss them with your doctor up front and how these clusters of apparently central breathing pauses disrupt your sleep and comfort. You are using low, fixed pressure and that is the best way to control the CA events. Standard protocol for a titration study will start with the same low fixed pressure and not find enough events to justify evaluating higher pressure or bilevel, let alone advanced therapy like ASV. I guess the objective here is to skip straight to an ASV titration. That would be unusual, but good luck.
Sleeprider
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#10
RE: Which machine and which settings are ideal for UARS?
I also suspect UARS and have just gone the user with no prescription route. I bought a Dreamstation Bilevel. Any tips for setting up the first night?
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