But, now that I officially have Narcolepsy (though sleep/neuro is holding out as idiopathic hypersomnia, and sleep/pulmo thinks I'm just plain crazy.) But, sleep/psychiatrist is the only doctor in the whole city that can prescribe Xyrem. And, the only doctor that actually sees narcolepsy patients. Apparently the rest go out of town.
Anyways...now I'm finding that what I considered an insignificant mask issue is a bit more of a problem now that I'm strongly medicated to sleep at night.
These days, I'm using the Bravo II mask. Which is generally a great mask, as long as I stay sleeping on my back all night long. But, apparently, I can't fight the urge to sleep on my side anymore.
I suppose I should probably look at ComfortLite 2 again, except that I've been on this quest to find a mask where the back strap doesn't contact the area on the back of head where I have problems with cysts.... I guess it was a mistake to have the cyst removed from the back of my neck, because it seemed to have caused the problem to spread upward....which wasn't immediately a problem, since I hadn't been dx'd with sleep apnea then. But, seems the major of masks target that part of my head with their straps.
I tried the Pilairo recently, but its one-size-fits-all/most doesn't fit me. Tends to be a problem with nasal masks...they don't make them wide enough to accommodate my nose. Other than the occasional, older mask....I've tended to jump at trying new mask.
So, anybody heard of any new masks that might solve my problem coming along? Or, is there an older style mask that I should check out?
Anybody here on Xyrem & CPAP? I had met people in other forums, but this is my only sleep apnea forum now.... Have tips/tricks/traps to share?