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Why does what worked, stop working?
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TheManseHen Offline

Preferred Members-2

Posts: 243
Joined: Jan 2015

Machine: RedMed A10 Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: One that came with machine
CPAP Pressure: 7.6-14.0 EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Started C-pap Boxing Day 2014. Tortured sleep more or less since 2000. Trigeminal Neuralgia.

Sex: Female
Location: San Francisco

Post: #1
Why does what worked, stop working?
Hi Pap-pers,
Second night in new mask (Nuance.) It irritates my Trigeminal Neuralgia (TN) less but it presses on roots of my upper teeth (where I have crowns at the end of their lives already) and I can't add to my dental woes. I know I am supposed to stay with a week to see how it does according to the DME, but I know I can't deal with the teeth.

So last night I ended up taking it off after having terrible night of getting up to pee very frequently, and not great therapy either, and went back to my beloved p10, which I set aside because it did irritate my TN trigger over time.

Well it too didn't give me good therapy the rest of the night...it was less "good" than it had been.

I have had it 34 days, been alternating between two sets of nasal pillows (so I only have to wash them every other) and I haven't washed the head strap which I hear can help it firm up again a bit tighter. I may ALSO have had the headstrap set a bit looser last night to stay off that nerve trigger.

What causes a mask that had been doing pretty good, to not stay put, or have more leaks etc, after a month? I keep the pillows clean and face is clean, not oily, not using any product that might be trouble on it, etc.

Susan...not discouraged, just confused.
01-30-2015 04:38 PM
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Mike1953 Offline

Preferred Members-2

Posts: 134
Joined: Aug 2014

Machine: Resmed S9 Escape Auto
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10
Humidifier: Resmed Hi5
CPAP Pressure: 12
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Kansas USA

Post: #2
RE: Why does what worked, stop working?
Wash the head gear weekly period.

For free Medicare assistance for your state check out this page. http://www.seniorsresourceguide.com/directories/National/SHIP/
or here http://www.medicareinteractive.org/
01-30-2015 05:00 PM
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TheManseHen Offline

Preferred Members-2

Posts: 243
Joined: Jan 2015

Machine: RedMed A10 Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: One that came with machine
CPAP Pressure: 7.6-14.0 EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Started C-pap Boxing Day 2014. Tortured sleep more or less since 2000. Trigeminal Neuralgia.

Sex: Female
Location: San Francisco

Post: #3
RE: Why does what worked, stop working?
(01-30-2015 05:00 PM)Mike1953 Wrote:  Wash the head gear weekly period.

Thanks Mike,
Yes that sounds nice and clean and hygienic SHa_biggrin5 The only reason I didn't, is because with my Trigeminal Neuralgia being pained by the mask, it felt better after stretching a bit, and I've heard it tightens up when washed.

Is there a way to stretch it out a bit right after washing to get it back to where it was?
If the TN is pressed on, the mask has to go off and I can't not wear it. In the meantime I'm searching for a mask like the p10 but with more headgear adjustment ability.

Susan
01-30-2015 05:10 PM
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justMongo Offline

Monitors

Posts: 3,839
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #4
RE: Why does what worked, stop working?
To quote Paula: Aliens.

Sometimes it's just not possible to pinpoint why things change for better or worse.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
01-30-2015 05:52 PM
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hootietoot Offline

Members

Posts: 14
Joined: Jan 2015

Machine: PR System One REMstar Auto BiPAP
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: PRS1 heated humidifier
CPAP Pressure: 15/11
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: USA - South

Post: #5
RE: Why does what worked, stop working?
How about the Aloha? It's definitely more substantial & heavier than the P10, but is far more adjustable. I find it very comfortable, and the only reason I'm not still using it is that I sleep with my hair wet and the Aloha's back strap can't be angled very low on the back of my neck under my hair. My vanity just won't tolerate the resultant strap mark :grin:, not to mention that having wet hair pressed against my scalp and neck all night is irritating. I have to shower at night and spread my hair up and over my pillow to dry, since it's very long and air-drying it takes hours (and heat/blow drying does too much damage and flattens my waves *ahem* did I mention my hair vanity?...m'kay, moving on...).

Anyway, the Aloha has two sets of guides for the top strap to go through, so you can choose to have the top strap positioned further forward or back. I don't think you said exactly where your TN trigger point is, but perhaps that could help you avoid it. Additionally, tightening the top strap can pull up on the pillow and cause the cheek pads to "float" a bit, reducing pressure on the teeth and face. The angle of the pillows can also be adjusted by how far into the sides of the main pillow you place the curved stems of the headgear. I find that putting them only far enough in to "catch", instead of all the way in, lifts the pillow up so it doesn't press down on my upper lip/teeth.

The detailed photos of the Aloha on one of the suppliers' websites should give you a better idea of what I'm talking about above, so you can rule it in or out as a possibility.

I have actually removed the Aloha's top strap with its hose-management loop and am using it to make my P10 somewhat adjustable. That might also be an option for you - just get the replacement headgear for the Aloha and steal the top strap (and loop, if you want) to use on the P10.

I attached the Aloha top strap to the P10 right above my ears, and now I can put the entire elastic P10 band under my hair. This makes the whole thing more stable without really reducing the comfort and lightness inherent to the P10. Having the management loop, which can be moved anywhere on the top strap, has improved the seal on the pillows also, since I can direct the hose up or to the side instead - no more hose dragging down on the pillows when I move in my sleep.
(This post was last modified: 01-30-2015 07:45 PM by hootietoot.)
01-30-2015 07:35 PM
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trish6hundred Offline

Advisory Members

Posts: 6,424
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: Why does what worked, stop working?
(01-30-2015 07:35 PM)hootietoot Wrote:  How about the Aloha? It's definitely more substantial & heavier than the P10, but is far more adjustable. I find it very comfortable, and the only reason I'm not still using it is that I sleep with my hair wet and the Aloha's back strap can't be angled very low on the back of my neck under my hair. My vanity just won't tolerate the resultant strap mark :grin:, not to mention that having wet hair pressed against my scalp and neck all night is irritating. I have to shower at night and spread my hair up and over my pillow to dry, since it's very long and air-drying it takes hours (and heat/blow drying does too much damage and flattens my waves *ahem* did I mention my hair vanity?...m'kay, moving on...).

Anyway, the Aloha has two sets of guides for the top strap to go through, so you can choose to have the top strap positioned further forward or back. I don't think you said exactly where your TN trigger point is, but perhaps that could help you avoid it. Additionally, tightening the top strap can pull up on the pillow and cause the cheek pads to "float" a bit, reducing pressure on the teeth and face. The angle of the pillows can also be adjusted by how far into the sides of the main pillow you place the curved stems of the headgear. I find that putting them only far enough in to "catch", instead of all the way in, lifts the pillow up so it doesn't press down on my upper lip/teeth.

The detailed photos of the Aloha on one of the suppliers' websites should give you a better idea of what I'm talking about above, so you can rule it in or out as a possibility.

I have actually removed the Aloha's top strap with its hose-management loop and am using it to make my P10 somewhat adjustable. That might also be an option for you - just get the replacement headgear for the Aloha and steal the top strap (and loop, if you want) to use on the P10.

I attached the Aloha top strap to the P10 right above my ears, and now I can put the entire elastic P10 band under my hair. This makes the whole thing more stable without really reducing the comfort and lightness inherent to the P10. Having the management loop, which can be moved anywhere on the top strap, has improved the seal on the pillows also, since I can direct the hose up or to the side instead - no more hose dragging down on the pillows when I move in my sleep.
Hi hootietoot,
WELCOME! to the forum.!
It's good to hear that you are able to make the P10 more functional for you.
Much success to you as you continue your CPAP therapy.

trish6hundred
01-30-2015 08:47 PM
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hootietoot Offline

Members

Posts: 14
Joined: Jan 2015

Machine: PR System One REMstar Auto BiPAP
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: PRS1 heated humidifier
CPAP Pressure: 15/11
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: USA - South

Post: #7
RE: Why does what worked, stop working?
(01-30-2015 08:47 PM)trish6hundred Wrote:  Hi hootietoot,
WELCOME! to the forum.!
It's good to hear that you are able to make the P10 more functional for you.
Much success to you as you continue your CPAP therapy.

Thank you for the kind welcome, trish!
01-30-2015 08:58 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,057
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #8
RE: Why does what worked, stop working?
The Nuance presses against your teeth?? Then you have it too tight. The Nuance, like all nasal pillows, aren't supposed to be forced into or onto the nostrils to make a seal. They make a seal but either going inside and the rings of the pillow making the seal or, in the case of the Nuance, the gel ring on the outside makes the seal. If it is pressing so hard it is hitting your teeth, then it is too tight.

I also have bad upper front teeth and one of the reasons I love the nuance is it doesn't touch my upper teeth or jaw at all. Some pillows, the frame is dependent on sitting on the upper lip for support and I hated that.

And no, you don't have to wait a week. I've known some masks wouldn't work in less than one night. All but one I gave two nights try to make sure I got all the pieces parts in the right places.


___

And, putting on my moderator hat, please do not start multiple threads on the same topic. This thread would be better in the same one as all your other threads about your Nuance. That way we are not repeating ourselves and you are not either. It is all about the same mask and the same situation.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
01-30-2015 08:58 PM
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quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #9
RE: Why does what worked, stop working?
I just ordered a new cushion for my FFM - AirFit F10. I am still intransigent as a periodic mouth breather, while 80% of the time am breathing through the nose. I have noticed the 2.5 months have definitely changed the mask cushion stiffness. you just have to get a replacement at some point. I hope you get some relief on the toothache, you just cant push on the TN.

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
01-30-2015 10:16 PM
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TheManseHen Offline

Preferred Members-2

Posts: 243
Joined: Jan 2015

Machine: RedMed A10 Airsense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: One that came with machine
CPAP Pressure: 7.6-14.0 EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Started C-pap Boxing Day 2014. Tortured sleep more or less since 2000. Trigeminal Neuralgia.

Sex: Female
Location: San Francisco

Post: #10
RE: Why does what worked, stop working?
Hi All,
Thanks for your encouragement and ideas. Paula, (though it occured to me today that you could be Paul-A as you have no gender in the profile) Sorry bout that, will learn hopefully. Give me a kick in the seat of the pants if I'm not getting it right. Thanks for the kind nudge.

Welcome Hootie, I am SO glad I'm not the only person who goes to bed with wet hair and things "drat, this headgear is messing it up bad" I wake up with what I call "cpap hair" ...I have a bob about chin length, well when I wear my p10 which makes it flip out at the bottom in the back and sides, which could be cute if intentional and not hit or miss, but no I don't want to look like the dutchboy paints kid. Meanwhile, I shall take a look at the Aloha.

I've often thought I'd like to start a women's thread cause I do think there are ways that we experience the whole apnea/diagnosis/hair woes, differently...though in this day and age one doesn't get to have things that are "girls only" so much so probably not. I guess a topic could be started for women knowing that both may reply or comment. I'd be fine with that. Maybe something in the offtopic area...not sure. Paula, has it been done many times before? I suppose I should search the old threads.

Qui I almost wrote you today to beg you to take a look at my data for the last two nights, to see if I was missing anything. But for now I think I need to look at the big picture. First things first. No. 1. A MASK I can LIVE with. yes?

The Aloha sounds interesting. I shall take a look at it Hootie.

Thanks Ya'll...I'm keeping on keeping on...

Susan
01-31-2015 02:07 AM
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