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Woke during CA event
#1
Woke during CA event
I have the S9 Autoset and since my trip to DC last summer, it has been noisy. It makes high pitched noises as I breathe, even just running with the mask off.

A few weeks ago I woke because there was a high pitched beeping noise and a vibration on my face. I was laying on my back. As I slowly woke up, I realized the noise and the vibration matched. And that I was not breathing. I had no urge to breathe. I was not struggling at all. It was very surreal. It wasn't long that I lay like that, just a few seconds. I had to really think about it, you know? When I did, the noise from the CPAP and the vibration on my face went away. I am assuming it was the pulses from the machine.

I was afraid to go back to sleep! I rolled off my back and played a game on my phone for a while before finally going back to sleep.

Unfortunately, the SD card was not fully into the machine so I didn't get it recorded. The SD thing on this machine is dying and I am lucky to be getting any data at all. But that's another story.

Anyone ever have anything similar?
PaulaO2
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Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.




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#2
RE: Woke during CA event
I find that sometimes, not often I find myself not breathing. As I think about it and wait to see what happens I start to thing I need to breath. Their is no panic, I am calm and just start to breath again. It happens when I am awake. I do not have any memory of it during sleep. It showes up in sleepyhead once in a while.

I will sometimes have trouble getting food down it will go into my wind pipe. It happen one time during one of the doctors test. The doctors have ask if I have had any brain damage. After a history report on what they did not have in their files I was told to just live with it.

It does not bother me about the breathing but the food and drink going into my lungs is not fun.

It is kind of strange how calm I am when not breathing. Dont-know

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#3
RE: Woke during CA event
I have not had anything remotely like that. I would find that very spooky. Maybe it was just your chronic sarcasm trying to get out?? Big Grin

Take care,

PaytonA

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PaytonA passed away in September 2017
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#4
RE: Woke during CA event
i had a similar noise problem, and the provider kept hemming and hawing and saying machine was ok until i complained to my dr, who ordered a new machine and i got it pronto.  another s9, tho, because they said they had not received any of the new models.
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#5
RE: Woke during CA event
I had a reaction to ultram (tramadol) where the urge to breathe just wasn't there. That and I fell flat on my face and had no clue why the floor hit me.

I am due for a new machine. Just not looking forward to the fight.
PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.




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#6
RE: Woke during CA event
I hate it when the floor does that. Good luck with the new machine. And thanks for all you do.

Sleep-well

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#7
RE: Woke during CA event
you seem to have a good doc. usually not much of a fight with dme when that is the case.
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#8
RE: Woke during CA event
(06-09-2017, 08:24 PM)kwhenrykerr Wrote: I find that sometimes, not often I find myself not breathing. As I think about it and wait to see what happens I start to thing I need to breath. Their is no panic, I am calm and just start to breath again. It happens when I am awake. I do not have any memory of it during sleep. It showes up in sleepyhead once in a while.

Hi kwhenrykerr,

ResMed and others make Ventilator machines, which are like ASV except are portable and are meant for use while awake.

I suggest investigating whether you can qualify for getting one. Could be used only when the central apneas tend to occur, such as when on line or reading or whenever.  

Take care.
Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.  The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea.
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#9
RE: Woke during CA event
I've had that experience of not breathing and not seeming to think it's a big deal. It's one of the reasons I got on board with getting a sleep study and a CPAP.

I've also had a lot of experience with food, and especially drinK, going down the wrong pipe. It happens more often when my Lyme is flaring. It happens less frequently when I concentrate on the swallowing, rather than doing it by habit.
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#10
RE: Woke during CA event
I don't get the noise with my machine, but I have had a couple incidents where I've found myself laying there, awake and thinking to myself "wait, what happened? Why am I awake at this hour? Oh,  I guess I should kinda breathe or something too...." Sure enough, it was a central, but they are relatively uncommon for me (more often than not something medication related).
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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