Started this adventure back at the end of this January - finally agreed to have the sleep study done. Work is NOT happy with me - accusing me of sleeping on the job. The wife isn't happy with me... even a few friends are not happy with me, especially my best friends... Sit still, fall asleep. Didn't even realize that I had fallen asleep - just, out, literally like a light-bulb (happened at my God-Daughter's birthday, sitting in the chair, asleep, wasn't aware of it - I could hear everything (maybe)). Driving, in town, OK, but anything more than an hour away... we're switching drivers. Then there is the weight gain... I can't seem to shake this weight. Just climbing and climbing... I'm not eating hardly anything... normally I drop weight by blinking my eyes - pushing 300lbs, I've never been this heavy and nothing is working to get rid of it. And lets not go to the energy drinks and the amount of other caffeine I'm consuming.
So, the sleep study, get the sleeping aid from the pharmacy; however, the tech at the lab says that we'll only use that if we have to
Hooks me up to the device ( I'm thinking, "Right, sure I'm going to goto sleep like this... bahumbug) - I'm sure that I'm not telling the seasoned PAPer's anything new here.
Of course, the tech tells me the general spiel about how they can't discuss the results blah-blah-blah...
Then the tech says... "however, if I come in and hook up the PAP equipment, we can pretty much conclude that you have something going on - and afterwards, we'll briefly talk about it then"
So, I'm laying there... seems like 5 minutes... the tech is back in and says... "well, I have some bad news..." so I'm thinking that either I have to take that stupid pill or the study did work and we'll have to reschedule.
No, I've been "asleep" for about three hours... not. Yep... hooked up the PAP for about five hours.
I could have hugged and kissed that Tech that morning... the difference... just one night... just one...
Then he told me it could take a week before the Doctor could review my results.
I almost panicked... all I could think about was how was I going to go another week like
... I knew I was broken and not working/thinking like I should be... sigh
The unadjusted numbers AHI 106+, no stage 3, very little stage 2, and less than 40% sleep efficiency.
He had me tittered down to less than AHI1 before I left the lab and they canceled the remaining tests for other sleep disorders.
The Lab manager was going to come in to do the latency testing that morning; however, instead he came in to look at my charts because the tech called him at home at 3am. The Labmanager call me by 8am and told me that he had called my pulmonologist about 10 minutes into reviewing my chart, on his private line, and that the final count was around 96 to 98 events per hour... every 45 seconds... stop breathing... go hypoxic... wake... rinse... repeat... and repeat... said I must have been 100% stage 3 deprived for a very long time because once I was tittered down and hit stage 3 I stayed there, no back and forth... just stage 3, most of the remaining study time only going into stage 4 towards the end of the testing period. The sleep tech let me sleep until I started a normal wake because he was concerned about how long I stayed in stage 3 - anyway... the Lab Manager called my Doc at 6am, the Doc had my orders faxed to the Lab and the DME within the hour to set me up with a CPAP - ASAP!
So there you have it - I've left out some things... changed the names to protect the innocent. I could still hug the sleep tech!
This last Monday... SleepyHead showed that I had a AHI=0 ! ( I have a screenshot of that! )
The last thirty days I am averaging around a 1.5ish
I had a few bad days, one with a AHI6... couldn't tell you why... just a bad night.
Still having some sleepiness here and there... but not those blackouts like a PC going to sleep where I didn't know what happened! Doc says things look good, he has all the data from the machine since January.
The mask is a pain - When the 14psi hits all at once... it blows the seal occasionally.
The air was so cold hitting my face - yuck
Dry mouth like you wouldn't believe - even with a setting at 5 - like a cotton ball in a pill bottle.
Kept waking up in my back - not comfortable at all and my back hurt. However, the last few weeks (including that Zero-Night) I've been waking up on my tummy or my side like I use to and I am waking up and felt like I've actually slept (oh, yes, I have duh)
Lurked here for awhile and watching the YouTubes looking at the online stores... Wrapped my tube in a old flannel blanket which helped with both the cold air and the dry mouth.
Yesterday we upgraded my machine to the heated-tube which is a first for my DME. SO they want me to keep them informed about what my progress is and how I'm adjusting the settings so that they can help their other patients... My DME is ordering a couple more of the upgrade kits for other patients and so I'm the guinea pig.
Cannot express how stupid I feel for not doing this three years ago - by all accounts, I'm normally considered a fairly intelligent person by my peers and friends...
The wife keeps telling me... :I Told You So:
Had the follow-up, Doc says, "LOOKS GREAT! Come back in a year - or sooner if you start having any problems let me know and I'll write you a script to switch that over to the AUTO mode" showed him the summary from SleepyHead - he's like, "where's that at, let me get that info so I can Google that as I have a few patients I'd like to setup with this - and if you want to adjust the pressure I'll write you a script - you have my cell call me and leave a message day or night!" So maybe, Doc will visit and create a profile.
Good Doc... Good DME - even if they do charge a bit more than online... I'm very blessed.
Sorry for the length... seems my mind is working again!