Hello everyone, I’m new to CPAP and forums and I’m so glad that I found this one. I have been reading many, many posts on it.
Here is my story; I sincerely hope it can help others, so they do not do the same error I did
Sorry, it is a lllllong one!
Around 4-5 years ago, I was send to a specialist in order to find out what was wrong with me. I was always tiered, in pain, gaining weight, despite good eating habits, not sleeping well, etc. etc. He asks for a lot of blood test, everything was OK. Then, he asked for a sleep study. Here in Quebec, it takes quite some time before we get to it. Therefore, when they call, over a year or so later, I thought
, that I was sleeping better. I had at that time less pain…, so, for that reason, I gave my place to someone who really was in need of it… Gee, was I wrong! Today I know that I was the ONE who needed it!
I have lot of aches and pains, that, for many years now. Pains, I always refer to an injury that occurred many years ago, so sleep is not easy some times. For me, it was the reason for all that I had. Then, menopause came along with all that goes with it. Yes, I have had fatigue problems, but nothing that I related to sleep apnea. I’m not in any of the risk categories for apnea. No snoring, no choking, no drossiness, no hypertension, no heart problems, so I don’t fit the typical profile of a sleep apnea patient. Yes, I have difficulty getting up in the morning, (sometimes I have the impression that I slept on the clothesline
. I’m a little overweight 20-25 pound, (gift from menopause!) and also by the fact that, for the last years, I’m a lot less active that I use to be, as of the pain and difficulty to walk. So why sleep apnea? That’s not for me!
Subsequently, other things appear along the way. Lack of interest in things I used to enjoy, moodiness, no enthusiasm, a bit depresses, some memory loss that bothered me. Nights sweats, (not like hot flushes) restless legs, getting up to pee 3-4 even 5 times some nights, pain in my chest that I thought was because of the position I sleep in, I’m a side sleeper. etc. etc. some of them I’ve blamed on menopause, age and the fact that I have back problems and severe osteoarthritis, (waiting for a hip replacement). Therefore, problems I mostly connected with pain. Everything else, except
Anyway, somehow, deep inside, I knew there was something else wrong with me.Thus a few months ago, I ask my doctor for a sleep study, done at home this time. However, no news for few months, IS
supposed to be good news! In fact, now I know that I didn’t want to know it. A friend of mine urges me to call in order to get the result. She was seeing what was going on with me since a while now. The other thing I have to say, is that they had not read my test yet, they forgot to do so… that is why I haven't been notify!
So the next day they call back. What a shock I had! SEVERE APENAS!
33/hr and 42 if on my back, with many central apneas, hypopneas and RERAs, drop of my sat at 81%. My reaction to these results? They must be wrong; it’s not the right test… I cried a lot that day; then pass the shock; I look at it this way. I finely got answers to why I’m feeling so bad, answers that explained many, many symptoms and problems going on for so long. Therefore… either I’m accepting it or I don’t. I decided that I’m going for it
So here we go!
At that time, I was not aware of all I know today regarding the affect sleep apnea have on our health. I also realize now, that I was in total denial. I realize now that for so long I was resisting being tested, because I was too afraid to be diagnosing to sleep apnea. I was also scared to wear a mask, that the machine would make too much noise. I SO, SO regret it!
All of these years going on feeling bad, what a waste of time and good life ;( I certainly would have avoided many problems encountered in recent years. Thus, if you or someone you know suspect to have this problem PLEASE don’t be as stupid and stubborn as I was.
So, in the last month, I began reading everything I could to get information regarding sleep apnea. Reviews of all kind for different machine, mask etc.,in order to be able to understand everything about it. I even told the respiratory therapist how to set the auto start on…! She was setting it to 20 minutes, I sometimes take over an hour or two to fall asleep!
I began the treatment last week. I opted for the ResMed AirSense 10 for her, here, the humidifier and the ClimateLineAir hose are included, and the DreamWear mask, but I change it yesterday for the AirFit P10 for her. The DreamWear is a great one but I had too much leaks and therefore many events. Last night was; 0.2 !!!
I also hang my hose with an elastic that I hook on the back of the headboard with a Cord Clips from 3M. I run my hose in a loop that I made with the elastic and Voilà! Complete freedom of movement! During the day, I flip it back behind and nothing is showing. When I made the titrage, (3 night) I was always tangled up in the hose, that is not to restful!
I guess that I’m in the lucky ones club, because I put the mask on and kept it all night since I began. I am so grateful for that, and I definitely hope that it will stay that way. Saying that I was so afraid of all of this.
I certainly would prefer not to have sleep apnea, but I am thankful that there is a way to help it, it may not cure everything, but has all know, the body heals itself during sleep, so I may end up by having less pain!
It may not be always as easy as it is now, even if I hope so. However, I intend to stay on the positive side. I’m just starting on this and I don’t find simple to be hock to a machine every night, but there are things and conditions in life that are way, way more difficult than that! I’m looking forward to see great improvement and that I will regain my energy back and be me again!
I’m so glad I’ve found and gathered so much information’s on this forum. I hope I can be of some help to someone else by my story. As for now, I do not see any big improvements like some say they do, nevertheless, one thing is good, I get up only once during the night, that itself is a very good thing!
I’ll get back soon, to tell you how it goes on a longer term, I promise that it won’t be as long as this one!
Thank you all for reading me. Moreover, keep the good works going on; it is so helpful to many!
P.S: Please, forgive any mistakes or phrasing error I’m French speaking.