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Your Personal CPAP Success Story - Post Here
Got put onto a clinical study late November last year which entailed me going in to hospital for an overnight sleep study (as a preface, I was put in to the clinical study as I scored highly on the Epworth sleep test and the doctors suspected that I may have OSA). 

Sleep study did confirm I had severe OSA with an AHI of 59 which shocked me as I knew I snored but didnt think it was that bad. Got put onto a titration study mid Feb and determined that I needed 10cm pressure so was issued a script and I got myself a loaner machine for 4 weeks while I saved up for a deposit for my own machine (I got given a loaner as well by the hospital but no mask so I decided to buy a complete set on installments; also the loan machine the hospital gave me didnt have a humidifier and to get it, I would have to go pick it up at my follow up appointment).

Came back late March and sleep specialist was happy with the results (I was consistently hitting AHIs less than 3 with most nights between 0-0.9) but they decided I needed a pressure bump so had to go back in for a final titration study mid May and was bumped up to 13cm of pressure.

I am due to see them again in August but so far, after 3 months I am finally feeling the good effects of CPAP therapy; my daytime sleepiness has decreased, I stay awake while seated on long rides due to traffic, and I now do not have an urge to fall asleep after lunch on weekends or to go back to bed after getting out of bed and having breakfast (although I still find myself falling asleep when I wake up and take off my mask but ill get there eventually).
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I was in total denial about sleep apnea when my cardiologist recommended a sleep study in connection with atrial fibrilation problem.

Two weeks into CPAP therapy in a total CONVERT.  Though my diagnosis was only "moderate", I'm sleeping better, feel better, and the cardiac rhythm problem has settled down significantly.

Using SleepyHead helped me zero in on the impact of leaks on obstructive events, and refining mask fitting routine to improve outcomes.

My heartfelt thanks to this community and the SleepyHead community!
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Diagnosed 1½ years ago, I went through all the same problems that everyone here went through. By solving one problem at a time, I slowly got to where no more adjustments were necessary.  Now I am at the end of adjustments (maybe).  It has taken me this long to say I am successful and I am still not sure if my “journey” is over yet.
Every time I get my AHI down and I am sleeping “better”, my AHI jumps up again. With every jump in AHI, my sleep improves. I guess that is a good thing because it is more about sleep than numbers.
The month of June my average AHI was <1 with only a few days that exceeded 1.0. I even had one zero (yea), and I was sleeping fairly good. Figuring I must be there; I started this “success story”. In the last 7 days, my AHI has gone up to between 1.0 and 2.5.  I know that is still good and “bad days” happen. The best part of this increase is that my sleep quality again improved. My gauge is how often I wake and how quickly I get back to sleep. Also I use how many (few) hours I stay in bed before I HAVE to get out of bed.
I use MyAir for part of my measure for success as well as encouragement. I use SleepyHead for technical adjustments.
For the past 14 days (two weeks) I have had a score of 100 every day. For those using MyAir, you know that there are some difficult things you must do in order to get a score of 100.
First hardest thing is getting through the whole night, not taking the mask off. That means no trips to the bathroom. In the beginning I got up at least 2 times. Now I do not get up at all. Also it means no naps. Naps were my favorite part of the day and were pure heaven. Now, no more naps (bummer).
Second hardest thing is getting your leaks under control. I like the way MyAir tracks leaks. You can get max points with some leaks minor leaks. Leaks can even go over the 24 L/min threshold but only for short durations.  In my case, success means 0, *, zero, nada, every day for the last 2 months.
Third hardest thing is getting at least 7 hours “on the hose”.  I know that seems to be easy but success comes with a cost. Now, I no longer need 8 to 9 hours of sleep. In fact after 7 hours on the hose, I am fully rested and want to get up. I can even stay awake and alert for the rest of the entire day.
The fourth hardest item is the AHI.  A score under 5 is considered treated. I got this under 5 within the first few months with just a few adjustments but sleep quality is takes time and patience.
My recommendations:
1.       Have enormous amounts of patience.
2.       Download SleepyHead and learn how to use it.
3.       Be patient.
4.       Listen to All the advice given here. You don’t have to follow it because not all applies to your situation but it can trigger a question or idea that might apply to you.
5.       Ask questions. There is no such thing as a dumb question, only dumb answers.
6.       Do not give up.
7.       Try every setting you can and more than once. It might be a combinations of settings so keep good records of what works and doesn’t. What works for someone else may or may not work for you.
And most important,( I may have mentioned this before) be patient.

Thanks                       Sleep-well                    Thanks
Dont-know  I am an accountant so any advice given here is not medical. If I give any financial advice, you can take it to the bank. However, you will have a hard time cashing it in. Okay
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Hello RC,

Interesting post.  I'm much newer to the journey than you and appreciate your insights.

That said, I was struck by your decision to give up naps.  Are you certain this is necessary?

I've read that our "goal"  of 8 hours of sleep per night, in one chunk, is largely a product of the industrial revolution (gotta get ready for work) and prior to that it was more common to sleep 4 hours at a time separated by some gap or perhaps 6 hours at night and a couple during the day.

So, it seems to me, if you get 4 hours of sleep at a crack, your AHI numbers are good, and you are feeling well, then maybe the other score isn't so important.

For me, I was really struck by how wide awake I am at 2 or 3 in the morning (I go to bed early, generally by 9 pm).  Waking up at that time is not new with CPAP, but being wide awake and ready to get up is.

So, as you could imagine, I'm looking for a nap in the afternoon and even sometimes after work.  Like you, I really like my naps.

OK well I hope this doesn't come off as too preachy or whatever, it's just I was sad to see you give up your naps.

Good luck to a fellow CPAPer

Tim
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(07-22-2017, 04:32 AM)IowaMC60 Wrote: Hello RC,

That said, I was struck by your decision to give up naps.  Are you certain this is necessary?

I've read that our "goal"  of 8 hours of sleep per night, in one chunk, is largely a product of the industrial revolution (gotta get ready for work) and prior to that it was more common to sleep 4 hours at a time separated by some gap or perhaps 6 hours at night and a couple during the day.
I don't intend to "give up" naps. My intention was to prove I did not "need" to take a nap in order to function. However, If I take a nap then I don't sleep as long at night. I guess that is a good thing but at least I know the CPAP is doing it's "thing",
Dont-know  I am an accountant so any advice given here is not medical. If I give any financial advice, you can take it to the bank. However, you will have a hard time cashing it in. Okay
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