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Your Personal CPAP Success Story - Post Here
(02-20-2012, 11:20 PM)SuperSleeper Wrote: [note: parts of this thread were copied over from our old forum (thread started in March. 2011) For brevity, only posts of personal stories have been copied over here.  Posts of greetings and comments and CPAP advice have not been copied to this thread.]


Thanks to one of our Master Members, this thread was created to encourage new CPAP users.

If you have a CPAP success story, please reply to this post and tell us:

1.  How is CPAP therapy making a positive difference in your life?   What impact has it made upon your health & happiness?

2.  Have you had any problems with CPAP that you solved with a positive outcome?  If so, what did you do to solve the problem?



Welcome to Apnea Board - let us know how CPAP has helped you!

:wave:

Hopefully, I am logged on with my new password, if not, I will try again. My story is having sleep apnea for 10 years and treated with CPAP, BiPAP machines and never felt like I had a good nights sleep. For the past 2 years, I was using the Res Med Air Curve 10 with settings of 14 E9, BT 12, ST Mode and my AHI's were in the 40-50 range and feeling sleepy all day long.
Several months ago, I was changed to a Respironics BiPAP machine auto SV  ADV  60  with settings  of  Max IPAP 25, MAX EPAP 10, MIN EPAP 10, MAX PS 8, MIN PS 4, RISE TIME 3, FLEX 3, B.U. AUTO and have reduced my AHI's to the lowest ever, they range from 1.1 to 11.0 and the net result is I feel good again. QUESTION ?  Are AHI"s the only result to determine how you feel ? If not, what other settings must I monitor ? Thanks !   :thanks:
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G'day Kazzman, and welcome to Apnea Board. It's good to see that you're getting your therapy under control.

Kazzman Wrote:QUESTION ? Are AHI"s the only result to determine how you feel ? If not, what other settings must I monitor ?

AHIs are the primary measure, but it's possible to have a low AHI and still not get restful sleep. The first question to ask is "How do you feel?" If you're waking refreshed and without a headache, and you're bright and alert through the day, then that's the main consideration. Other things to watch are mask leaks - the machine can't correctly diagnose or treat apneas if the leak goes over the red line. This could give you a false low AHI. Persistent leaks below the threshold can also disturb your sleep, especially if they blow into you eyes or cause "face farts". Also, keep a look out for periodic breathing or Cheyne Stokes Respiration.
DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


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Idea 
It was a dark and stormy night, or should I say snore'y night being woken by an elbow from a beautiful woman.

My journey into understanding I had SA started with an elbow from my beautiful wife in 2014 telling me I was snoring and to turn over. Over the following year, I experienced growing fatigue and insomnia to slowly peak to no energy at the end of the day and crashing into sleep. I remember waking suddenly about once a week with a racing heart, and a growing sense that in the mornings that I had not slept. My snoring had progressively worsened to a point where my wife was regularly moving to sleep in the spare bedroom which was not right in my book. I tried nasal dilation strips anti-histamine nasal spray and sleeping in the spare room when I was last to bed. I knew I was suffering from sleep deprivation from my experience with our 2 children and 2 hour sleep intervals over a years for our youngest.

My journey to a diagnosis of SA started by going to a GP to check why I was snoring so much. I thought my broken nose and deviated septum was the cause, and after some discussion with my awesome GP I booked in to see an ear, nose and throat specialist to look into it. I met with the ENT specialist and discussed my broken noses (3), failed rhinoplasty (80% block on one side), snoring and then discussed nasal and throat surgery, booked in for a CT scan to check for physical issues. The scan came back clean and nose surgery was suggested by the ENT Doc, who happened to be a surgeon. Hmmm - more info for me please. We settled on a sleep study to get more info.

The study came back with SpO2 min of 87%, AHI of 25.9, longest apnoea of 26s, longest hypopnoea of 58s => Moderately severe positional obstructive sleep apnoea.  Being a science dude I had experimented using nasal strips during the study, applied at the start and removed at 2am. and they appear to have made things worse?!  The technician was not surprised they were not effective.

Looking back I had gained 5kg (11lb) over that fateful year and was suffering from sleep deprivation and oxygen deprivation as it turns out.

My journey to a treatment came through a set of rental trials of constant pressure and variable pressure devices and masks. That week my AHI dropped to 0.6 and I woke refreshed and clear-headed.  I found this wonderful site, and gained confidence through greater understanding and purchased ResMed AirSense 10 AutoSet for Her and DreamWear Nasal Mask.  That week AHI stayed at 0.6 (RDI 0.82), and RERA was 0.87. 

My AHI is now 0.4 with av pressure 7mmHg, (RDI 0.5). The numbers only paint part of the picture, I can think clearly again and wake up refreshed.  I'll add some notes onto the mask reviews when I'm not a 'New Member'.
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I was diagnosed with Obstructive Sleep Apnea in 2009. Before I was diagnosed it got to where I could barely walk 100 yards without totally giving out and my heart rate going out of sight. During my first sleep study, I did not get through the night before they came and put a CPap machine on me. Since then I have improved, but I still get very sleepy during the day at times. The doctors had me on several different types of sleeping pills trying to help. Finally just this year they took me completely off of sleep medicine. My problem was that I was having hangovers from the sleeping pills lasting throughout the day. I am sleeping, but still I am getting a little of the tiredness feeling during the day. I think that sometimes sleep medicine works differently on those of us that have Sleep Apnea or maybe not. This is just what I experienced from them. Maybe some of my fellow sleepers on the sleep medicines will find this helpful.


Bwhntr53
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Up until September 2016, I was always tired and sleeping through the day. At night my husband was shaking me and yelling at me to wake up. 
We decided a sleep test was in order.
I was a little surprised by the results. I was having 30+ events per hour. Obstructive slightly higher than central, the longest 33seconds, average 21 seconds.
I had been off work for 6 years and in active due to a torn Achilles so I have put on a lot of weight which I have no doubt added to the problem.

My life has certainly changed for the better since starting treatment. I’m more active and happily back at work. 
My apnea’s are now below 5ph, some nights, less than 1ph.

Needless to say, my husband is sleeping much better as well.
Happy couple. ?
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I am 70 years old and had a sleep test about 5 years ago. I was diagnosed with mixed sleep apnea, an AHI of around 50. Between my sleep doc, respiratory therapist and equipment provider I got almost no useful assistance in sorting out masks, pressures and machines. I had zero confidence in my "sleep doctor" who was a retreaded psychologist. He had no interest in working with me so that I could optimize my pressure settings. The sleep center I used was a joke and seemed to be only interested in maximizing their insurance payments.


I did my own research online and found this forum which helped a lot (particularly Pugsy's pointers).  I am fortunate and do not need to rely on insurance/medicare to pay for my machines, masks, filters etc.  I buy what I need online now.

I have 2 auto adjusting machines, a ResMed S9 and a Respironics System One. After significant trial and error I discovered (with some help from Pugsy) that the auto adjusting algorithms for each machine are somewhat different and I need to use different pressure settings on each machine to get good results. My AHI is now pretty consistently between 1.5 and 2.5 with almost all of the events classed as hypopnea. Typically I show 1 or none OA and 1 or 2 CA each night. I get 7.5-8 hours of sleep each night. I have gone from using a full face mask that looked like the old diving helmets to using a Respironics Dreawear nasal mask. I have gravitated to pressure settings of 5-11 (S9) and 8-10 (System One). Recently I decided to try running my machine in standard CPAP mode and after a bit of experimenting have landed on a therapy pressure of 9. My results have become more stable and slightly better (lower AHI) than in the auto mode and I feel like I wake less frequently in the middle of the night.

I am glad I went through this process because I need to understand stuff, but I am more persistent and analytically oriented than most. I would expect that most folks presented with the awful assistance I received from my sleep care providers would have given up long ago.   I don't know how representative my experience with lousy sleep medical care is, but from what I can tell I don't think I am the only one who has experienced this.

I encourage others to become knowledgable and proactive in adopting PAP therapy and to stick with it because it really helps.   Thanks Sleep-well  
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