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autonomic neuropathy
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mortigger Offline

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Post: #1
Ohmy autonomic neuropathy
Can you tell me if anyone has sleep apnea and also got autonomic neuropathy I ave both and am so scared dosnt give me much hope
07-20-2013 03:32 AM
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DreamDiver Offline

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Post: #2
RE: autonomic neuropathy
(07-20-2013 03:32 AM)mortigger Wrote:  Can you tell me if anyone has sleep apnea and also got autonomic neuropathy I ave both and am so scared dosnt give me much hope

Are your apneas mostly obstructive or mostly central?
07-20-2013 09:28 AM
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trish6hundred Offline

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Post: #3
RE: autonomic neuropathy
Hi mortigger,
WELCOME! to the forum.!
Hang in there for answers to your question and best of luck to you.

trish6hundred
07-20-2013 09:40 AM
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DocWils Offline

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Post: #4
RE: autonomic neuropathy
Unless you have a central apnoea index, the two should not be much of an interaction. The thing is, autonomic neuropathy is a sort of catch all expression, the common thread being the damage to the autonomic nerves, but which ones and the causes can mean you have a very different experience form someone else with the same named disease. So, I appreciate you being scared about this, but a more detailed description as to the nature of your particular neuropathy and the ca/oa indexes would be needed to help answer you.

But if your neuropathy is not related to your breathing reflexes, then having a cpap will not have much to do with it. Take a deep breath (no joke intended) and rela, try and formulate the question in a way that we can attempt to help answer you, and I am sure there will be someone here who can share your experience and give you some thoughts on the subject.
07-20-2013 06:23 PM
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1210donna Offline

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Post: #5
RE: autonomic neuropathy
(07-20-2013 03:32 AM)mortigger Wrote:  Can you tell me if anyone has sleep apnea and also got autonomic neuropathy I ave both and am so scared dosnt give me much hope

I have Central Apnea and Vascular Ehlers Danlos Syndrome which involves mild autonomic neuropathy. I have other autonomic issues including salt wasting and polyuria.

what caused your A.N?
07-28-2013 03:57 AM
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1210donna Offline

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Post: #6
RE: autonomic neuropathy
(07-20-2013 03:32 AM)mortigger Wrote:  Can you tell me if anyone has sleep apnea and also got autonomic neuropathy I ave both and am so scared dosnt give me much hope

how is it you are not using a machine at all for your apnea? what was your AHI?
08-05-2013 12:51 AM
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1210donna Offline

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Post: #7
RE: autonomic neuropathy
(07-20-2013 03:32 AM)mortigger Wrote:  Can you tell me if anyone has sleep apnea and also got autonomic neuropathy I ave both and am so scared dosnt give me much hope

Hi there, I have central apnea as part of first autonomic, but progressively also sensory and recently also motor neuropathies. I have Ehlers Danlos Syndrome (collagen disorder) and am on estrogen blockers for breast cancer... estrogen replenishes collagen and collagen protects nerves... so you can see my picture.

I'm winging it as well as I can, on ASV machine - VPAP Adapt.
I take 5g sodium and 5g citrulline a day which help me with the dysautonomia and improve respiration for me... also take 10,000 omegas as antiinflammatory and when that fails NSAIDs... all causes of autonomic central apnea are different but hope its at least helpful to you to hear from someone else.

Warmly,

Donna
11-11-2013 10:03 PM
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