Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

bballkj7 (Therapy Thread]
#11
RE: bballkj7 (Therapy Thread]
Hello Gideon! I can try taking the variation out at do:
auto
min/max of 15 
epr=0

I will try different pressures but my doc said to start with 15 now, but he said I can play around too. He vouches for OSCAR. Just within reason. I personally a, willkng to do ANYTHING.

Doc hasnt mentioned ASV or BIPAP yet, but maybe? I'll ask. APAP is easy for me to adjust to, but if it's not successful getting rid of apnea I am all ears for ANYTHING else (not to be dramatic, i am really struggling).

I made another new update post on this thread. It has my data from yesterday, but this whole month has been AHI of 8-12 mostly. Still REALLY sleepy, but better than before at the AHI of 43. Muscles still weak, still fatigued. Doc said take magnesium for headaches and try MODANIFIL for sleepiness during the day. I will try tomorrow and see if it helps at 50-100mg (quarter to half pill)

Thanks for the help everyone so far.
Post Reply Post Reply
#12
RE: bballkj7 (Therapy Thread]
       

So I went up to pressure of 15, no variable rate. Settings:

min 15 
max 15
epo- 0

And last night my AHI went higher than it ever has (compared to normal on 10-15 with epr 0-1.)

My AHI was 17.46. See screenshots.


I am at a loss. Why would it get double- WORSE by increasing pressure? The doc told me to up it, but it shouldnt get WORSE? 

I am really frustrated and tired.
Post Reply Post Reply
#13
RE: bballkj7 (Therapy Thread]
High pressure doesn't eliminate Central Apneas; it can make them worse.

I would suggest you reduce your min and max pressure to 12 for a couple of days and see what happens.

If that reduces the CA somewhat, we can reduce the pressure some more, watching the results each time.
Apnea Board Monitors are members who help oversee the smooth functioning of the Board. They are also members of the Advisory Committee which helps shape Apnea Board's rules & policies. Membership in the Advisory Members group does not imply medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
Post Reply Post Reply
#14
RE: bballkj7 (Therapy Thread]
I suggested 11 earlier
Post Reply Post Reply
#15
RE: bballkj7 (Therapy Thread]
Okay I’ll do that tonight. Should I use “auto” or “cpap” since i’m taking away variating in pressure? Neither one bothers me.  
  
I’ll do 12 on cpap mode tonight…
Post Reply Post Reply
#16
RE: bballkj7 (Therapy Thread]
Auto mode with max and min 12 with give you more data. CPAP mode ignores some data - flow limitations, I belive
Apnea Board Monitors are members who help oversee the smooth functioning of the Board. They are also members of the Advisory Committee which helps shape Apnea Board's rules & policies. Membership in the Advisory Members group does not imply medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
Post Reply Post Reply
#17
Question 
RE: bballkj7 (Therapy Thread] UPDATE
Hi All! Here is data from a few days this month. Average of 10.0 AHI roughly, I posted some good days (6 ish) and some bad days (10-13). 

Im on a pressure of 9, auto pap, epr 0. 
Notes:
  • My obstructive apneas are pretty much gone, at a pressure of 9.0
  • My central apnea has plateaued, and I don't know how to decrease it anymore. Higher pressure always makes it worse. Lower pressure than 8 or so, and the OA's creep back in. So my pressure of 9 has had the greatest average success. 
  • Was rx'd modafinil to help prevent my fatigue, but it just makes my anxiety worse. 
  • ASV necessary maybe?

Please, any way we can reduce my Central/ clear airway apneas??? I'm confused. I posted a bunch of screenshots.


Side note: My doctor:
  • Doctor doesnt really understand that when I use a higher pressure my central apneas worsen. he is really bad with helping me at all. I cant change Dr's YET, but I'm considering it. He is great and helped me with my migraines using magnesium, and he is great at finding my symptopms, but not so much with cpap management. That is why i'm turning to you guys. 
Please help! I'm really at my wits end with this fatigue and central apnea problem. I appreciate any input at all. I will get more data upon request! Please let me know. Thanks

             
Post Reply Post Reply
#18
RE: bballkj7 (Therapy Thread]
two things your flow limits are high, no surprise, your EPR=0, except for the CA it likely should be at 3, DONT SET IT TO 3 !!!
You need an ASV. Ask your doctor to schedule a titration study with and ASV to PROVE efficacy, or just prescribe an ASV and see if the insurance buys it.

At this stage I believe the ASV is the best solution, likely the only solution.
Post Reply Post Reply
#19
RE: bballkj7 (Therapy Thread]
UPDATE: I started using a phillips dreamwear nasal mask (has one hole for both nostrils). 

I don't know IF THIS IS ACCURATE, but for over two months my AHI has averaged at 2 instead of 10. 

Any ideas as to WHY this is the case? is it not reporting accurately? I will attach a few screenshots of the new mask's performance. Let me know if this works. 

*** my gf said i still sleep with my mouth open occasionally while snoring. according to oscar and my data it doesn't seem to be the case so I don't know.***

       

Please advise. I want to be sure I'm okay now, and that maybe i dont need an ASV. Anyone have similar experiences?
Post Reply Post Reply
#20
RE: bballkj7 (Therapy Thread]
Well THIS is interesting.

Why do you doubt that the recording is accurate?

Since centrals decreased so dramatically, it makes me wonder whether you could go to EPR 3 to decrease both flow limitations and hypopnea. An expert should be along soon with a better answer.

I also wonder whether some of the centrals were treatment-emergent and have gone away. But you had a LOT of centrals before.
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
  WW4B Therapy thread WW4B 49 4,057 Yesterday, 04:31 PM
Last Post: WW4B
  Therapy Help - Possible UARS - REM jkossis 8 151 Yesterday, 02:09 PM
Last Post: Sleeprider
  [CPAP] Therapy help rekaviv 9 248 Yesterday, 11:22 AM
Last Post: rekaviv
  IanD - Therapy Thread IanD 28 2,261 03-26-2024, 08:18 PM
Last Post: IanD
  MrIvanDrago - CPAP|Bi-PAP Therapy Journey MrIvanDrago 67 3,332 03-26-2024, 01:22 PM
Last Post: MrIvanDrago
  Marcin's Therapy Thread marcinpiskala 20 950 03-23-2024, 04:38 PM
Last Post: Sleeprider
Information Alaxo Hybrid Stent with CPAP - Therapy Thread G. Szabo 29 1,193 03-22-2024, 10:51 PM
Last Post: G. Szabo


New Posts   Today's Posts


About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.