Post Reply 
breathing problems vs. sleep problems
Author Message
goodonya Offline

Preferred Members

Posts: 79
Joined: Dec 2013

Machine: S9 Vpap Adapt
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: yes shut off with water in it
CPAP Pressure: Mode ASVAuto
CPAP Software: Not using software

Other Comments: No longer know the new sleep study instead of a break out of percentage OSA and CSA simply says OSA

Sex: Male
Location:

Post: #1
breathing problems vs. sleep problems
I am beginning to wonder if my CSA diagnosis is not one of those clean miss situations. I have always had asthma. When I was a kid it was bad. I was sent off to Seattle from here in Alaska and the doctor there found that in normal day to day I was running at 75% oxygen. We did not have inhalers and all that as are so common now.

I was found to have scads of allergies and avoided all that stuff and had allergy shots and basically outgrew it. Still I have always had wheezy lungs even though from age 13 until 50 I ran, skied, hiked, and rode a bike on a regular basis.

Chronic inflammation and injuries took me out of the endurance type activities I loved so much. Then somehow it morphed into Central Sleep Apnea.

Whatever it is going on with me and these machines and doctors and clinics and DME and all of this somehow I am not getting what I need out of sleeping. Recovery from a day of activity.

What I have going on now is a day of recovery after sleeping.

Am I the only one out here that is going through this? I am deep into year four of constant struggling as my life includes less and less activities.

I was wondering if there is a breathing/neuromuscular/inflammation situation out there that shows as a CSA diagnosis and responds to a different kind of breathing machine treatment?
06-08-2014 10:16 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
jaycee Offline

Preferred Members-2

Posts: 115
Joined: May 2014

Machine: S-9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quattro Air Large
Humidifier: 5i
CPAP Pressure: 9-13
CPAP Software: ResScan

Other Comments: RT at a DME

Sex: Male
Location:

Post: #2
RE: breathing problems vs. sleep problems
Did you have CA's (central apneas) on your PSG (first sleep study)?

Did you go straight to the Adapt or did you start/fail on CPAP/BIPAP first and have a f/u sleep study done?

If you aren't getting the results you desire, 3 possible solutions:

Better mask (are you experiencing a large amount of leaks)

Find the correct settings (there are a lot of other settings in an Adapt that can be tweaked for better patient comfort)

Identify the cause of the CA's (is it something that can be treated/elminated).
06-09-2014 09:46 AM
Find all posts by this user Post Reply Quote this message in a reply
goodonya Offline

Preferred Members

Posts: 79
Joined: Dec 2013

Machine: S9 Vpap Adapt
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: yes shut off with water in it
CPAP Pressure: Mode ASVAuto
CPAP Software: Not using software

Other Comments: No longer know the new sleep study instead of a break out of percentage OSA and CSA simply says OSA

Sex: Male
Location:

Post: #3
RE: breathing problems vs. sleep problems
(06-09-2014 09:46 AM)jaycee Wrote:  Did you have CA's (central apneas) on your PSG (first sleep study)?
--------------
Yes I did. It said the CA's developed after the pressures cleared the OSA's
--------------
Did you go straight to the Adapt or did you start/fail on CPAP/BIPAP first and have a f/u sleep study done?
---------------
I went through 2 and a half years of misery with a Bipap ASV advanced. I lost my job and insurance. The DME replaced the 1st machine when it began overheating with a rebuild and I lost warrantee. The rebuild began overheating and acting weird. I was forced to go without a machine. I bought the S9 Vpap Adapt with my cash out of the 401k. I bought insurance and got a new sleep study just recently. The new sleep study numbers are different. Loaded in the machine I do not sleep long enough to be rested even though I get(often 0) AHI.
------------------
If you aren't getting the results you desire, 3 possible solutions:

Better mask (are you experiencing a large amount of leaks)
-------------------
I went to the smaller size Quattro mirage that eliminated some leaks
-------------------
Find the correct settings (there are a lot of other settings in an Adapt that can be tweaked for better patient comfort)
-------------------
I do not seem to tolerate the pressures recommended by the sleep studies. It is like being tortured.
--------------------
Identify the cause of the CA's (is it something that can be treated/elminated).
---------------------
I did get scanned and blood tested for heart and diabetes and RI and so on. No identifiable factors. I did get an impacted upper 2nd molar removed. It was a nasty tooth pull that was a long healup while I did not have a machine. I could not have used the mask anyway. I do seem to have constant sinus stuff going on still. I still have reoccurring inflammation in my lower back that decks me every day.
---------------------
06-14-2014 11:02 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
bwexler Offline

Advisory Members

Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver √Član
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #4
RE: breathing problems vs. sleep problems
Find the correct settings (there are a lot of other settings in an Adapt that can be tweaked for better patient comfort)

After waiting several days for a response from my sleep doctor, he politely told me to go fly a kite since he is not affiliated with my medical group.

How do I determine which settings to tweek in which direction. On my S9 Autoset it was simple. On my PRS1 ASV I sort of understand what the settings are and I know how to get into the clinician menu and twist the knob. My AHI is generally well below 3 but I crave an afternoon nap most days..

Where do I start?
06-14-2014 07:34 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Classic example of Sleep-Wake-Junk breathing robysue 4 212 12-06-2016 09:51 PM
Last Post: richb
  Soft cervical collar: a tip for mouth breathing and chin tucking Visitor 44 3,667 12-06-2016 11:43 AM
Last Post: PaytonA
  Newbie with Smart Card Reader Problems MissSnuffleupagus 3 146 12-01-2016 09:36 PM
Last Post: trish6hundred
  Bite Guard for Mouth Breathing mcsheltie 11 505 11-29-2016 11:46 AM
Last Post: mcsheltie
  Mouth Breathing mcsheltie 31 1,053 11-15-2016 08:25 PM
Last Post: chill
  Not mouth breathing but air leaking between lips Roy289 20 676 11-11-2016 07:19 PM
Last Post: Sleeprider
  Occasional problems with exhale relief function SLongridge 1 263 10-24-2016 05:29 PM
Last Post: trish6hundred

Forum Jump:

Who's Online (Complete List)