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cerebral apnea
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big_dave Online

Advisory Members

Posts: 411
Joined: Apr 2012

Machine: PR System One DS560
Mask Type: Nasal pillows
Mask Make & Model: F&P Pilairo Q or ResMed Mirage Activa
Humidifier: PR System One
CPAP Pressure: 14 - 20
CPAP Software: SleepyHead

Other Comments: Former ResMed S8 Autoset II user

Sex: Male
Location: Eugene, Oregon

Post: #11
RE: cerebral apnea
Are you in Washington or North Carolina right now? If you are in Washington and you're using a machine you got in North Carolina, the new day is starting at 9:00 AM, and each night's sleep is getting split in half.
08-17-2013 07:44 PM
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vsheline Online

Advisory Members

Posts: 1,916
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #12
RE: cerebral apnea
(08-17-2013 07:25 PM)kittyhawkchild Wrote:  The software also shows that I have been using the mask for 2:44 hours when I actually used it from 2 AM to 12 noon!

Hi kittyhawkchild,

Your profile says you are not using software, so perhaps you mean that the machine's display reports too few hours?

If the machine is turned off during the night for a potty break maybe it is only reporting the length of the last session rather than use during the whole night.

I would think ResMed or SleepyHead software would properly show the correct full time spent using the machine each night. I recommend installing software on your computer and taking a look.

I suggest using ResScan because that is what LinCare would be using if they want to verify hours of use.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 08-17-2013 08:08 PM by vsheline.)
08-17-2013 08:06 PM
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kittyhawkchild Offline

Members

Posts: 19
Joined: Aug 2013

Machine: Resmed auto s9
Mask Type: Full face mask
Mask Make & Model: Quatro for her
Humidifier: Resmed s9
CPAP Pressure: 9
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Huntersville,NC and Poulsbo, WA

Post: #13
RE: cerebral apnea
Dave,

If the time was split, wouldn't it be recorded with the next night's sleep or does the machine completely cut off for that day? Right now I am in WA and I sleep from 1:00 AM to 11:00 AM. Some nights the machine records the time correctly and sometimes it shorts me by 8 hours and does not add it to the next day.

When I slept from 2:00 AM TO 12:00 today it recorded 2:44 hours not the correct 7:00, if the cut off time was 9:00 this morning


Vaughn,

I just got the software today, and I was reading off the software from my auto set cpap machine. I always restart after potty break, but last night there wasn't one and it still recorded 2.44 hours but all these ideas really help.
(This post was last modified: 08-17-2013 08:43 PM by kittyhawkchild.)
08-17-2013 08:37 PM
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vsheline Online

Advisory Members

Posts: 1,916
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #14
RE: cerebral apnea
(08-17-2013 08:37 PM)kittyhawkchild Wrote:  When I slept from 2:00 AM TO 12:00 today it recorded 2:44 hours not the correct 7:00

Vaughn,

I just got the software today, and I was reading off the software from my auto set cpap machine. I always restart after potty break, but last night there wasn't one and it still recorded 2.44 hours but all these ideas really help.

Is the problem that no data at all is being recorded for the missing hours, or merely that the one statistic of total hours per day is intermittently incorrect?

If no data at all is being recorded during missing hours (and if the problem is not merely that the data has been moved to an adjacent day or something like that) then you may need a loaner machine so your machine can be returned for repair.

You may want to call your provider to see if there is any way to do this even before you return from vacation.

ResMed will not accept a machine for warrantee repair (will not issue a Return Material Authorization) unless a DME provider first troubleshoots the unit while on the phone with ResMed technical support.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 08-17-2013 09:47 PM by vsheline.)
08-17-2013 09:14 PM
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big_dave Online

Advisory Members

Posts: 411
Joined: Apr 2012

Machine: PR System One DS560
Mask Type: Nasal pillows
Mask Make & Model: F&P Pilairo Q or ResMed Mirage Activa
Humidifier: PR System One
CPAP Pressure: 14 - 20
CPAP Software: SleepyHead

Other Comments: Former ResMed S8 Autoset II user

Sex: Male
Location: Eugene, Oregon

Post: #15
RE: cerebral apnea
(08-17-2013 08:37 PM)kittyhawkchild Wrote:  Dave,

If the time was split, wouldn't it be recorded with the next night's sleep or does the machine completely cut off for that day? Right now I am in WA and I sleep from 1:00 AM to 11:00 AM. Some nights the machine records the time correctly and sometimes it shorts me by 8 hours and does not add it to the next day.

When I slept from 2:00 AM TO 12:00 today it recorded 2:44 hours not the correct 7:00, if the cut off time was 9:00 this morning


No, it would show the time asleep after the cut-off time (the clock might be off a little so it cuts off at 9:15). Then, the other 7 hours would be added to the previous day.

If I'm wrong about that, what Vaughn said.
(This post was last modified: 08-17-2013 09:42 PM by big_dave.)
08-17-2013 09:40 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #16
RE: cerebral apnea
I have noticed that the S9 Autoset will count time differently on the front panel as opposed to the data that
gets dumped into SleepyHead.
The front display appears to reset its total hours after midnite but SleepyHead gets it all sorted out.
If you get up at 2am for a bathroom break (turn off and restart) your hours get credited to the next day.
This is alright as long as you know that it is going on. Wink

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
08-17-2013 09:42 PM
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kittyhawkchild Offline

Members

Posts: 19
Joined: Aug 2013

Machine: Resmed auto s9
Mask Type: Full face mask
Mask Make & Model: Quatro for her
Humidifier: Resmed s9
CPAP Pressure: 9
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Huntersville,NC and Poulsbo, WA

Post: #17
RE: cerebral apnea
Shatzi,

I got the software that's called ResScan, I think that's what you're saying when you say SleepyHead. Is it?
08-18-2013 01:03 AM
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kittyhawkchild Offline

Members

Posts: 19
Joined: Aug 2013

Machine: Resmed auto s9
Mask Type: Full face mask
Mask Make & Model: Quatro for her
Humidifier: Resmed s9
CPAP Pressure: 9
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Huntersville,NC and Poulsbo, WA

Post: #18
RE: cerebral apnea
Vaughn,

As far as I can tell, the machine is not recording part of the time. Some of the days are recorded correctly. I have tried to find it, but what is DME? I have talked to LinCare ( people that gave me my machine, who are here and in NC), and they gave me a loaner and told me the problem with the recording was the machine or possibly me.

Thank you so very much for your help.
Kate
08-18-2013 01:11 AM
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vsheline Online

Advisory Members

Posts: 1,916
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #19
RE: cerebral apnea
(08-18-2013 01:11 AM)kittyhawkchild Wrote:  As far as I can tell, the machine is not recording part of the time. Some of the days are recorded correctly. I have tried to find it, but what is DME? I have talked to LinCare ( people that gave me my machine, who are here and in NC), and they gave me a loaner and told me the problem with the recording was the machine or possibly me.

Hi Kate,

LinCare is your Durable Medical Equipment provider, "DME provider" or just plain DME for short.

I am not sure if I am following you correctly. Did LinCare give you a loaner today to replace your malfunctioning machine, or has the machine you have been using always been a loaner (or perhaps a rental)?

There are two software programs you can install on your computer to read/display sleep data from your machine's SD card.

ResScan is a product sold by the manufacturer of your machine and only supports ResMed machines. It is actually intended for use only by doctors and licensed technicians (Respiratory Therapists) and DME providers, not by us lowly and untrained users who may unwittingly harm ourselves if we change the machine's settings. Usually users cannot buy a copy of ResScan, but my doctor sold me a copy of ResScan version 3.11 in 2010 for use with my ResMed S8 AutoSet II. I think I paid about $80 for ResScan including a special USB card reader to read the weird proprietary "Smart Card" which works with the S8 series of machines. We are very lucky now to be able to obtain a copy of the current ResScan software through Apnea Board. Having access to ResScan has actually been the main reason I have continued to purchase only ResMed products to date for myself and for family members, including the S8 AutoSet II, two S9 AutoSets, an S9 VPAP Auto, and an S9 VPAP Adapt ASV machine.

I have recently learned (in the past year or so since I joined Apnea Board) that SleepyHead is the other program which can be used to read the SD card from ResMed, Philips Respironics, Fisher & Paykel and perhaps a few other manufacturers. Many find SleepyHead easier to use. It is an Open Source "shareware" program, meaning that donations are very much appreciated and needed to help defray various expenses. Private individuals have volunteered their time and have written the program and are gradually improving it and adding more features and support for more machines. May God bless them and reward them!

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 08-18-2013 03:54 AM by vsheline.)
08-18-2013 02:41 AM
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kittyhawkchild Offline

Members

Posts: 19
Joined: Aug 2013

Machine: Resmed auto s9
Mask Type: Full face mask
Mask Make & Model: Quatro for her
Humidifier: Resmed s9
CPAP Pressure: 9
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Huntersville,NC and Poulsbo, WA

Post: #20
RE: cerebral apnea
Vaughn,

I was given a ResMed S9 auto set Bilevel cpap machine by my DME in May of this year. Before I left on this trip at the end of June, my doctor said that the therapy wasn't working and I was having too many cerebral apneas and hypopneas. He said he didn't know what else to do but change it to constant cpap without the auto function. Now I KNOW that's wrong.

I knew this was wrong and when the constant blowing made me crazy, I found this site and found out the constant cpap had basically the same AHIs as the auto set did. No improvement and was worse sometimes. So I changed it back to the auto Bilevel cpap.

When I had seen the doctor in June, I tried to tell him that it was not recording all of the hours that I had spent on the machine but he wasn't interested.

Then by the end of July, I had been using the machine faithfully and I could still hardly move because I was so exhausted all of the time. I couldn't get my DME on the phone. Since it is nation wide, I called one that is close to me in WA. She was shocked at my numbers and gave me a RESPERONICS Remstar bilevel system one auto system one as a loaner. That way we could tell if my machine was working correctly.

Tomorrow, I will download the SleepyHead software. And I am extremely appreciative to whoever put the software online. Thanks also to the people that developed SleepyHead.

My daughter also uses a cpap machine and she isn't at all interested in reading past the start button. I guess the reason for the difference is that I've always had bad luck with doctors and even though my other daughter is doctor. I do not trust their judgement as being perfect.

I have found more answers from you and all the others, then anyone in the medical field.

By the way, love the name "Vaughn",
Thanks once more,
Kate
08-18-2013 05:18 AM
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