09-08-2013, 12:21 AM
(This post was last modified: 09-08-2013, 12:24 AM by alby_c.)
As much as the doctors annoy me, I do endorse getting a proper sleep study done if you can.
As to how much benefit you would get - well mileage varies as they say.
For me it was startling the difference - night and day - turn on the switch fantastic.
Still early days but I am a real convert to the hose.
I have read on forums where others have struggled and not seen real benefit but not me - even the titration study where they truss you up like a science experiment was fantastic. - The night itself sucked, and I thought I didn't sleep at all, but when I got home I want all day and all the next day before the tiredness got me again.
I have since approached it as I am going to make it work regardless after those teasers because I am completely over feeling too tired all the time.
Sounds like the resmed test ran the machine locked on the minimum pressure, to measure the number of apneas. - you need to see if they will loan you one to run on auto to see how it feels when it is treating the apnoeas instead of just measuring them.
Do some reading on this board as it certainly appears you have a case of OSA and CPAP will help with that and reducing the issues to just half as many CA events is a great start. I have read from others how controlling the OA's helped reduce the centrals as well, but its a real mixed bag there and you just have to give it a go. Hence getting a second hand machine might not be silly.
I bought a second hand machine from secondwindcpap - google them. They have some really good deals but then you usually kiss any health fund rebates goodbye.
If you are not going to do a study then you definitely need a machine that will let you access the nightly data and download it into your PC. You also probably should get an auto machine so you can set a range and let the machine figure it out for you.
Good luck - whatever you do, do not just let it slide!
joesetx, welcome, my advice is your health is much more important than money, I'm lucky because I could afford to buy my machine and spent the $2,500 on it and knowing what I know now I would have paid double that, actually I would have paid anything I had to. After 48 years of going through this the last 2 years have been the best of my life. All my illness's have lifted and I go to the gym everyday and walk every night. A bit over two years ago I was dying. I think the Resmed home study would probably not be as accurate as a proper sleep study so your sleep apnea could actually be worse. Do something about it and get whatever machine you can, that is my advice, good luck.
joesetx: I have seen CPAP machines on Craigslist that were nearly new (the patient gave up after using it a couple of times) for a fraction of what they cost new. Not telling you what to do, just saying...
To err is human, but to really mess things up, you need a computer.
(09-08-2013, 12:21 AM)alby_c Wrote: Sounds like the resmed test ran the machine locked on the minimum pressure, to measure the number of apneas. - you need to see if they will loan you one to run on auto to see how it feels when it is treating the apnoeas instead of just measuring them.
ApneaLink™ Plus is a home screening test. Much cheaper than a full sleep study.
Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
I would not pay $1,500 for a sleep study! That's too much with insurance. I used to think you needed a sleep study and sleep doc and you should keep them in the loop of your health care. Those of us that are cpap nerds handle everything, except for the prescriptions ourselves. For the price of the study you could buy a nice machine. You already have a diagnosis. If the doc will write you a prescription you could pay out of pocket for the gear (will insurance pay for a machine?- depends on what the doc says I guess).