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desperate: stopping cpap for now
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storywizard Offline

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Location: Vancouver, BC, Canada

Post: #1
desperate: stopping cpap for now
I am so desperate, beyond tired, just did second Oximetry test barely could walk to the clinic to drop off the unit, so pale and weak...I cannot function like this and care for my sick wife, let alone myself...

I am going to chance not using the machine, the trial is over this week anyway, I have to get some sleep....will see what my GP says and wait to do the sleep trial...I obviously have breathing/sleep issues beyond SA....

Wish me luck...one breath at a time...

Storywizard
(This post was last modified: 08-16-2014 04:58 PM by storywizard.)
08-16-2014 04:23 PM
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Terry Offline

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Post: #2
RE: desperate: stoping cpap for now
(08-16-2014 04:23 PM)storywizard Wrote:  I am so desperate, beyond tired, just did second Oximetry test barely could walk to the clinic to drop off the unit, so pale and weak...I cannot function like this and care for my sick wife, let alone myself...

I am going to chance not using the machine, the trial is over this week anyway, I have to get some sleep....will see what my GP says and wait to do the sleep trial...I obviously have breathing/sleep issues beyond SA....

I wouldn't wait for anything. Call your doc and tell him you need help now.

There's no reason for you to feel like crap.
08-16-2014 04:59 PM
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storywizard Offline

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Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

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Sex: Male
Location: Vancouver, BC, Canada

Post: #3
RE: desperate: stoping cpap for now
(08-16-2014 04:59 PM)tcarmen Wrote:  
(08-16-2014 04:23 PM)storywizard Wrote:  I am so desperate, beyond tired, just did second Oximetry test barely could walk to the clinic to drop off the unit, so pale and weak...I cannot function like this and care for my sick wife, let alone myself...

I am going to chance not using the machine, the trial is over this week anyway, I have to get some sleep....will see what my GP says and wait to do the sleep trial...I obviously have breathing/sleep issues beyond SA....

I wouldn't wait for anything. Call your doc and tell him you need help now.

There's no reason for you to feel like crap.

Doc on vacation, can't get until Friday Dielaughing

Ah well. Oh-jeez

SW
08-16-2014 05:11 PM
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vsheline Online

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Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
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Post: #4
RE: desperate: stopping cpap for now
(08-16-2014 04:23 PM)storywizard Wrote:  I am so desperate, beyond tired, just did second Oximetry test barely could walk to the clinic to drop off the unit, so pale and weak...I cannot function like this and care for my sick wife, let alone myself...

I am going to chance not using the machine, the trial is over this week anyway, I have to get some sleep....will see what my GP says and wait to do the sleep trial...I obviously have breathing/sleep issues beyond SA....

Hi storywizard,

How long have you been using CPAP?

Not clear what trial you just finished and what trial you are waiting for.

But sounds like you were on CPAP and having very hard time of it. Can you list the main problems you had?

Unable to fall asleep? Pressure too high? Claustrophobia with mask on? Leaks keeping you awake? Waking up gasping for air with heart racing? Swallowing air until painful?

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
08-16-2014 05:38 PM
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justMongo Offline

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Post: #5
RE: desperate: stopping cpap for now
(08-16-2014 04:23 PM)storywizard Wrote:  I am so desperate, beyond tired, just did second Oximetry test barely could walk to the clinic to drop off the unit, so pale and weak...I cannot function like this and care for my sick wife, let alone myself...

I am going to chance not using the machine, the trial is over this week anyway, I have to get some sleep....will see what my GP says and wait to do the sleep trial...I obviously have breathing/sleep issues beyond SA....

Wish me luck...one breath at a time...

Storywizard

See your doc ASAP. You may have other conditions that are dragging you down.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-16-2014 05:58 PM
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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #6
RE: desperate: stopping cpap for now
(08-16-2014 05:38 PM)vsheline Wrote:  
(08-16-2014 04:23 PM)storywizard Wrote:  I am so desperate, beyond tired, just did second Oximetry test barely could walk to the clinic to drop off the unit, so pale and weak...I cannot function like this and care for my sick wife, let alone myself...

I am going to chance not using the machine, the trial is over this week anyway, I have to get some sleep....will see what my GP says and wait to do the sleep trial...I obviously have breathing/sleep issues beyond SA....

Hi storywizard,

How long have you been using CPAP?

2 months

Not clear what trial you just finished and what trial you are waiting for.

2 month trial with provider, now applying for sleep study

But sounds like you were on CPAP and having very hard time of it. Can you list the main problems you had?

No deep sleep, exhaustion, fatigue, sleepiness, can barely get through the day...

had started this thread...
http://www.apneaboard.com/forums/Thread-...and-events

SW
08-16-2014 06:41 PM
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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #7
RE: desperate: stopping cpap for now
(08-16-2014 05:58 PM)justMongo Wrote:  
(08-16-2014 04:23 PM)storywizard Wrote:  I am so desperate, beyond tired, just did second Oximetry test barely could walk to the clinic to drop off the unit, so pale and weak...I cannot function like this and care for my sick wife, let alone myself...

I am going to chance not using the machine, the trial is over this week anyway, I have to get some sleep....will see what my GP says and wait to do the sleep trial...I obviously have breathing/sleep issues beyond SA....

Wish me luck...one breath at a time...

Storywizard

See your doc ASAP. You may have other conditions that are dragging you down.

Next Friday..

seems to be problem with "falling asleep" and coming out of sleep...could be old problem not dealt with, pretty clear its not "just" SA..

I also have RLS....

Thanks for the support..

Storywizard
08-16-2014 06:45 PM
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trish6hundred Offline

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Machine: Resmed S9 AutoSet for Her
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Post: #8
RE: desperate: stopping cpap for now
Hi storywizard,
I'm sorry you are having such a rought time with CPAP therapy and that you have to discontinue use of your trial machine.
Keep us posted on how things go and hang in there for more responses.
Good luck to you and I hope you get to feeling better, soon.

trish6hundred
08-16-2014 07:06 PM
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bwexler Offline

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Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
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Other Comments: CMS 50i with Software for SpO2

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Post: #9
RE: desperate: stopping cpap for now
If your trial machine was on a fixed pressure of 10 cm, things don't make sense.
You apparently have not had a sleep study or titration study.
It would seem your machine should have been set for a range of pressures if this was a trial titration.
08-16-2014 07:29 PM
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Sleepster Offline
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Post: #10
RE: desperate: stoping cpap for now
(08-16-2014 05:11 PM)storywizard Wrote:  Doc on vacation, can't get until Friday Dielaughing

Ah well. Oh-jeez

That does not matter. Call the doctor's office and report the severity of your situation. They can refer you to someone else who can help you.

It sounds like you have an unusual situation and you need more help than we can give you.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-16-2014 07:51 PM
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