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distilled water
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glfredrick Offline

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Posts: 38
Joined: Apr 2014

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quatro Mirage
Humidifier: ResMed H5i
CPAP Pressure: 14-18 auto
CPAP Software: Not using software

Other Comments: Bi-vocational Pastor

Sex: Male
Location: Near Sheboygan, WI

Post: #11
RE: distilled water
I carry distilled water with me for short stays. I purchase it for longer ones. Generally, if I am in some area for longer than 3 days I also have transportation to get off premises to get supplies. I've found a rather hard-sided clear plastic bottle that holds half a liter. Just enough for 3 nights, and I can squeeze 4 out of it if I drop the humidity level down a bit lower than my normal. Fits right in the case with the rest of the machine, hose, etc. I've even checked it through multiple airports, though they almost always want to run a sniffer machine over it to make sure it is actually water.
04-29-2014 01:36 PM
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ImaSurvivor Offline

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Posts: 322
Joined: Nov 2013

Machine: ResMed S9 Auto
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i Heated Humidifier, ClimateLine Tubing
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments: Moderate Sleep Apnea, Began using CPAP 11/27/2013

Sex: Female
Location: New York State

Post: #12
RE: distilled water
A lot of our travel is via airlines. I don't check my my CPAP through. I carry it on. I don't want to risk having it get damaged or lost. I always dread the possibility of not having some luggage make it through with me. It would be inconvenient but survivable. Not having the CPAP would be a a much more difficult problem to overcome.
04-29-2014 01:48 PM
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RonWessels Offline

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Posts: 465
Joined: Jun 2013

Machine: REMstar Auto AFlex DS560TS
Mask Type: Nasal mask
Mask Make & Model: ComfortGel Blue
Humidifier: REMstar Heated Tube DS6T
CPAP Pressure: 11 - 20
CPAP Software: SleepyHead

Other Comments: CMS50F Pulse Oximeter

Sex: Male
Location: Ontario, Canada

Post: #13
RE: distilled water
Most airlines consider CPAP as "medical equipment" that does not count towards carry-on allowance, as long as the CPAP and related gear are in a separately identifiable bag. I haven't heard any attempt to take distilled water on-board as well under the guise of "medical supplies". I strongly suspect that it wouldn't work. And I wouldn't recommend putting it in checked baggage, since it will freeze at altitude, possibly breaking the container and resulting in soaked clothing as it melts after landing.

I do use distilled water, because it is cheaply available at our corner store. If I end up running out, I have no qualms about using tap water that night.
04-29-2014 05:30 PM
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ImaSurvivor Offline

Preferred Members-2

Posts: 322
Joined: Nov 2013

Machine: ResMed S9 Auto
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i Heated Humidifier, ClimateLine Tubing
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments: Moderate Sleep Apnea, Began using CPAP 11/27/2013

Sex: Female
Location: New York State

Post: #14
RE: distilled water
I am sure airlines would not allow carrying distilled water on. No fluids over 3 oz. There may be allowances for things like baby formula, etc. but I wouldn't want to worry about the distilled water myself and I wouldn't check it either. I have plenty of other toiletries I am careful to put in ziplock bags before packing in case of leakage in luggage I check through. I already have plenty when I travel. And there is a lot to juggle going through security, taking the CPAP out of bag and all the other things that need to be done going through security. I used to feel smug with my little iPad that I didn't have to remove from my carry on bag for security ... I had it all down for ease, while my husband and daughter were both taking their laptops out of bags to go through security. Now I have to remove my CPAP motor from the bag LoL ... oh well!

Last time we traveled I was on the preferred list and I wasn't made to take shoes off. I could have gone through a separate security check point with less lines and hassles. I chose to stay with my family because I didn't really know why I was separated out. They told me to just show my boarding pass when I stayed in the line with my family and I still would not have to remove shoes. When looking at my boarding pass after we got through, I saw I was listed as preferred. I have no idea how I got on that list. I thought it was something you had to apply for. All our flights were booked together. I suspect they are randomly selecting individuals for preferred to experience it in hopes that more will see how nice it is, apply and pay the fee for it.
(This post was last modified: 04-29-2014 09:33 PM by ImaSurvivor.)
04-29-2014 09:31 PM
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Sandra_ON Offline

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Posts: 39
Joined: Feb 2014

Machine: ResMed S9 with 5i humidifier
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: ResMed 5i
CPAP Pressure: 5/11
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Eastern Ontario, Canada

Post: #15
RE: distilled water
I follow the instructions my RT told me to. Use distilled water, use dish soap on your nose part of your mask and rinse out your water tank every day with mild dish detergent. Wash your mask, hose and chin strap weekly. I'm just a 'by the book' type!
04-30-2014 08:43 AM
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glfredrick Offline

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Posts: 38
Joined: Apr 2014

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Quatro Mirage
Humidifier: ResMed H5i
CPAP Pressure: 14-18 auto
CPAP Software: Not using software

Other Comments: Bi-vocational Pastor

Sex: Male
Location: Near Sheboygan, WI

Post: #16
RE: distilled water
(04-29-2014 05:30 PM)RonWessels Wrote:  Most airlines consider CPAP as "medical equipment" that does not count towards carry-on allowance, as long as the CPAP and related gear are in a separately identifiable bag. I haven't heard any attempt to take distilled water on-board as well under the guise of "medical supplies". I strongly suspect that it wouldn't work. And I wouldn't recommend putting it in checked baggage, since it will freeze at altitude, possibly breaking the container and resulting in soaked clothing as it melts after landing.

I do use distilled water, because it is cheaply available at our corner store. If I end up running out, I have no qualms about using tap water that night.

I have carried it on multiple times, even under the newer guidelines. Half-liter bottle, no other markings except a tag that says Distilled H2O. They open, use a test strip or sniffer machine, close and send me on my way.

What's the worst that can happen? They toss out the water? No big deal and no real loss. If I get to keep it, I'm set when I arrive. If not, I make other arrangements or go without. A few nights without won't kill anyone.
(This post was last modified: 04-30-2014 11:51 AM by glfredrick.)
04-30-2014 11:49 AM
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ImRichard Offline

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Posts: 21
Joined: Apr 2014

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed??
Humidifier: Resmed S9 Autoset
CPAP Pressure: 16-17
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: NYC

Post: #17
RE: distilled water
I don't use distilled water even though I should because my tap water is full of silt despite two filters. I typically run my tap for two minutes and then fill the bottom of my tank with that.

I clean the tank once a week as I generally run out of water ever night and there is a slight residue left. I soak the tank in a mix of white vinegar and water and then sponge it out with dish detergent and warm water - the top, too. Tanks are important to keep clean; the environment is ripe to grow bacteria if not cleaned regularly.

I clean my mask every few days with a babywipe. It works well and there is no smell. Every few weeks I wash it with warm soapy water.

Over the past 7 years I notice that the hoses get particularly funky if you don't wash them - I wash mine every two weeks in the shower (!) with running water and some shampoo. I hang it up to dry and by the evening it's all good.

Thanks!
Richard
04-30-2014 12:11 PM
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Zorki1c Offline

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Posts: 134
Joined: Jun 2013

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: H5i
CPAP Pressure: 6
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Pacific Northwest United States

Post: #18
RE: distilled water
I use distilled water. Our tap water here has some minerals in it and will cause a buildup fairly rapidly. Distilled water at the local grocery is 88 cents a gallon. Hardly expensive enough to force me to use tap water.

"Sometimes the magic works . . . and sometimes it doesn't" -- Chief Dan George in the movie Little Big Man
04-30-2014 10:22 PM
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brianwood619 Offline

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Posts: 171
Joined: Jan 2014

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 16-22cm/h2o
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Peaceful Acres

Post: #19
RE: distilled water
Distilled water has had all the impurities removed so you dont have to worry about scale or lime build up in your tub. Our water here is slightly high on chlorine so that is the main reason why i use distilled water, it just pure and im not breathing in impurities. As for the mask i wipe mine down every morning when i get up with commercially made cpap mask wipes...theyre just convenient to have and use. about every three days i submerge my mask and tub in warm soapy water and clean them that way. My tube is disconnected every morning and allowed to air out through the day and evening. I cant submerge it because it is a heated hose.
05-01-2014 08:41 AM
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PollCat Offline
Apnea Board Polling Administrator
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Posts: 1,576
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #20
RE: distilled water
I use distilled water for the humidifier and sinus rinses when I'm home. Traveling, I use bottled water for the humidifier.

I wash the equipment every 10 - 14 days. I've never noticed an odor coming from the humidifier tank; but then having used a cpap for so long, my sense of smell is somewhat limited.


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05-01-2014 09:03 AM
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