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extremely tired all the time. need advice.
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PoolQ Offline

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Machine: AirCurve 10 VAUTO
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Sex: Male
Location: Sillicon Valley

Post: #11
RE: extremely tired all the time. need advice.
"Problem with the comment of "do what works for me" is I feel like I've tried anything I know to try and nothing has worked."

My tale was to suggest that you may have tried everything that you know, I doubt that you know everything that you could have tried. I was suggesting some of the steps that I took, that I doubt you have tried. If you want to stop and not try anything further, well that's your call of course. If on the other hand you would consider that there just might be some things that you don't know about these machines, there just might be more things that you can try.

Your call, I have no skin in your game and I don't get a kickback from the industry.
07-08-2016 12:50 PM
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OpalRose Offline

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Machine: PR System One REMstar Auto 560 with A Flex
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CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #12
RE: extremely tired all the time. need advice.
(07-08-2016 04:46 AM)dorlow Wrote:  ok.... I need advice from people that are not so die hard cpap believers. you can't convince me. wasting your time by trying to convince me to go back to the cpap. I will not use a cpap no matter how wonderful of a machine it is.


What kind of a forum did you think this was? Of course we are diehard Cpap believers.

Do you think it was easy for most of us? I can guarantee you it wasn't, and some here still struggle with their therapy, but we don't give up. We learn from each other untill we get it right.

If you want help, you will get it here. It's up to you.

OpalRose
07-08-2016 05:34 PM
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trish6hundred Offline

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Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #13
RE: extremely tired all the time. need advice.
The only things I will say here is that, I think the S8 take a memory stick instead of an SD card and I'm not sure that they work with SleepyHead. I think the OP said he had an S8 Escape and I'm not sure if there is much data from that machine..
If I'm wrong about that,, someone will let us know.

trish6hundred
07-08-2016 08:53 PM
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woozie38 Offline

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Machine: Fisher & Paykel Icon + Auto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
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CPAP Pressure: 8 to 14
CPAP Software: SleepyHead Other Software

Other Comments: 17 years of CPAP + supp. oxygen @ 3 L/min

Sex: Male
Location: Toowoomba, Queensland Australia

Post: #14
RE: extremely tired all the time. need advice.
Quote:ok.... I need advice from people that are not so die hard cpap believers. you can't convince me. wasting your time by trying to convince me to go back to the cpap. I will not use a cpap no matter how wonderful of a machine it is.

Hi Dorlow,
I sympathise with you and to some extent agree. It is true to say that these machines are not the be all & end all of treatment for SDB. This is because SDB (sleep disordered breathing) can present in many different forms each with a different array of symptoms. And yes, many so called sleep specialists are not aware even of this. However, having said that, let me say that it's worth examining the long term effects of ignoring your condition. The first & most serious effect is ischemia, which means insufficient blood supply to vital organs. The two most serious are,
(1) Cranial Ischemia
(2) Cardial ischemia
In the case of (1) the first thing you will notice is loss of memory. Then as degeneration progresses your smarts will gradually decrease so that instead of being quick & alert, you will no longer be so.
In (2) Because of Cardial Ischemia, your heart will increase its size as repeated requests from your brain for more blood are denied. This process will continue until your heart, contained as it is in the the myocardial cavity, no longer able to increase its size, ceases to beat.

Also, you will not know it, but you'll become more & more grumpy & hard to live with. A partnership break up may occur.
I'm telling you these things from my personal experience. I lost my mother to cardial ischemia, her father died of it too.
My wife & both kids left me. An attempted suicide failed & because of SDB have suffered all my life from anxiety & depression.
I suffer from cranial ischemia but still sleep with my machine every night. I take it with me wherever I go although, like you, I'm tired, fatigued & listless all day but I know without my CPAP I would be much worse. My Sleepyhead data shows I don't have OSA but rather suffer from hypopnea & flow restriction. My ENT explained that a robotic cobolation of the base of the tongue would possibly be a remedy, but costing between $8,000 & $10,000 is too expensive.

My advice? Ask those closest to you if you are "grumpy"? Do you make mistakes in your work? Do you kip during the day, say after lunch or whilst watching TV? Do you find fault with those around you? Are you picky?
Stick with your machine, at least for now, until more doctors & specialist examine your case. Adjust your machine settings from its manual. Listen to and follow the excellent advice of all the good people on this board. PM me if you wish to talk about issues. My thoughts are with you.

[Image: signature.png]Keep on breathin'
07-08-2016 10:09 PM
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PoolQ Offline

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Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #15
RE: extremely tired all the time. need advice.
All of us, each in our own way, are trying to offer help. It's up to you and you may take advantage of this help any time you wish.
07-09-2016 12:53 AM
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49er Offline

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Joined: Apr 2012

Machine: VPAP-S
Mask Type: Nasal mask
Mask Make & Model: Sleep Weaver Elan Soft Cloth Nasal Mask
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CPAP Software: SleepyHead

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Post: #16
RE: extremely tired all the time. need advice.
(07-08-2016 04:46 AM)dorlow Wrote:  ok.... I need advice from people that are not so die hard cpap believers. you can't convince me. wasting your time by trying to convince me to go back to the cpap. I will not use a cpap no matter how wonderful of a machine it is.

I am confused as on the other forum, you seemed receptive to wanting to optimize your pap therapy. But as I also mentioned there, if you choose not to use the cpap, then you need to explore whether going to dental devices or undergoing surgery is your best option for treating your sleep apnea. Going without treatment will considerably worsen your health. When I did research in this area for myself, I found that generally for mild apnea, adjustable appliances work about 75% of the time in getting the AHI below 5, 60% for moderate severity, and 40% for severe. Of course, this isn't set in stone and depends on alot of other issues but those are the general statistics I have seen.

If you go the surgery route, the MMA procedure, while every intrusive and the most grueling, trumped the success rates of all the other sleep apnea surgeries. The Inspire Procedure seems promising as far as success rates but there isn't yet a long term track record. So perhaps with more data, it will be seen on a par with the MMA surgery.

You might want to google the Need Sleep Forum in which non cpap methods are discussed to treat sleep apnea. Unfortunately, all the discussions are very old but I still found it very helpful.

Best of luck to you.

49er
07-09-2016 04:15 AM
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OpalRose Offline

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Posts: 3,181
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Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #17
RE: extremely tired all the time. need advice.
(07-08-2016 08:53 PM)trish6hundred Wrote:  The only things I will say here is that, I think the S8 take a memory stick instead of an SD card and I'm not sure that they work with SleepyHead. I think the OP said he had an S8 Escape and I'm not sure if there is much data from that machine..
If I'm wrong about that,, someone will let us know.


Hi trish,
I believe you are correct in that the S8 Escape doesn't produce data.
I honestly don't know if it has an SD card or memory stick.
There are probably a few here on the forum that have S8's and can answer, but I think the OP should consider an updated machine.

OpalRose
(This post was last modified: 07-09-2016 06:46 AM by OpalRose.)
07-09-2016 06:45 AM
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woozie38 Offline

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Posts: 248
Joined: Jan 2013

Machine: Fisher & Paykel Icon + Auto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Integral
CPAP Pressure: 8 to 14
CPAP Software: SleepyHead Other Software

Other Comments: 17 years of CPAP + supp. oxygen @ 3 L/min

Sex: Male
Location: Toowoomba, Queensland Australia

Post: #18
RE: extremely tired all the time. need advice.
My old S8 had neither SD card or memory stick. It had in fact an ACS card which can only be read by an ACS card reader. Nonetheless the system works very well both with Sleepyhead & infoPlus. Google ACS for more info
ACS= Advanced Card Systems of Hong Kong. I think the card reader for S8 might have been ACS-38U

[Image: signature.png]Keep on breathin'
(This post was last modified: 07-09-2016 06:04 PM by woozie38.)
07-09-2016 07:05 AM
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kwhenrykerr Offline
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Machine: DreamStation Auto, AirSense 10 Auto
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CPAP Pressure: 12-20
CPAP Software: SleepyHead

Other Comments: 2L added oxygen with CMS50F to check usage

Sex: Male
Location: Florida

Post: #19
RE: extremely tired all the time. need advice.
Thanks:thanks:woozie38 for the information. I enjoyed your website. Sleep-well

Just my personal opinion. My posts are not medical advice or a statement of fact. Please consult a qualified physician or other qualified medical personnel. Please comply with all applicable laws, codes, regulations, and protocols.
07-09-2016 01:21 PM
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trish6hundred Offline

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Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #20
RE: extremely tired all the time. need advice.
Thank you Woozie38, there are so many machines out there and I get a little confused about which ones take which type of memory, or which of the older machines work with SleepyHead.

trish6hundred
07-09-2016 02:33 PM
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