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finally new machine
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i-want-my-sleep-back Offline

Members

Posts: 12
Joined: Jul 2013

Machine: Fisher&Paykel SleepStyle 600
Mask Type: Other
Mask Make & Model: FitLife Total Face Mask
Humidifier: Built In Heated Hose
CPAP Pressure: 18
CPAP Software: Not using software

Other Comments: freedom, justice, honor,integrity,respect,self-sacrificing,protect the weak and defenceless

Sex: Male
Location: i would tell you but then i would have to kill you

Post: #1
finally new machine
i think 16 days now on resmed aircurve10

i was Phillips bilevel broke for 3 or more years

provider would not fix medicare would not force

they even ignored when i sent congress yes i got

a congress person to go after the provider anyway

i was on a regular cpap because i got fam history

of heart and stroke i have fibro chronic pain allot

more towards the end i was thinking i was going

to be in a wheel chair for life by 45 now my 5

year medicare is up!!! BUT because the fight i

had to travel over 2 hours each way to get one

lucky around here there Phillips down there resmed

o wow 2 days in pain 6 instead of 8 or off the scale

i went for a walk i haven't gone for a full walk i dont

know how long now every day i wake up a 6 in pain

may be high for yall but heaven for me and walk anywhere

from 1 to 5 blocks my alertness is unbelievable allot

of my life is back i can go to stores again and then it has

a tablet app to check whats going on a web app and sleepy head

and the sleep aid where i got it can instantly access it change

things see what went wrong whatever only problem they gave me

a cheap crap mask thats already dying Velcro is basically gone

get woke up by a strap shooting off lmao or the real pain

adjusting tightness every couple hours i got a big sore on

the back of my head i sent a email chewing him out

its not a Phillips brand i can tell Phillips Velcro lasted

u adjusted tightness every week or longer and i could fit

a wash cloth under back straps for my head this one wont

otherwise its good

"You're only lonely if you're not there for you."
-- Phil McGraw
Well, I looked my demons in the eyes, laid bare my chest, said "Do your best, destroy me. You see, I've been to hell and back so many times, I must admit you kind of bore me."
- Ray LaMontagne
One good thing about music, when it hits you, you feel no pain.
Bob Marley
08-24-2015 01:59 PM
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trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: finally new machine
Hi i-want-my-sleep-back,
It's great to hear you finally got a new machine, good luck to you.

trish6hundred
08-24-2015 04:07 PM
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vsheline Online

Advisory Members

Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #3
RE: finally new machine
Hi i-want-my-sleep-back,

Thanks for sharing your good fortune in getting an upgraded machine, and love your Other Comments in your profile. (Other Comments: freedom, justice, honor, integrity, respect, self-sacrificing, protect the weak and defenseless)

It is great that your fibro chronic pain has decreased significantly now you are using the new machine. Hopefully the pain will continue to improve as better sleep allows you to heal.

Are you still using the FitLife Total Face Mask?

(There is a "My Profile" link at the top right of the webpage which allows us to easily update our profile.)

I have found that a mask liner is essential for stopping leaks with the FitLife TFM. Also, it helps to use the medium/standard size headgear or smaller.

I occasionally use the FitLife TFM when I need to give my nose bridge a rest. I have a very large head use the Extra Large mask, but I think the extra large headgear is absurdly huge and perhaps too large for anyone. I wish Philips Respironics would include the standard/medium headgear with the XL size FitLife mask and make the XL size headgear a special order item.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 08-29-2015 06:21 PM by vsheline.)
08-29-2015 02:48 PM
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i-want-my-sleep-back Offline

Members

Posts: 12
Joined: Jul 2013

Machine: Fisher&Paykel SleepStyle 600
Mask Type: Other
Mask Make & Model: FitLife Total Face Mask
Humidifier: Built In Heated Hose
CPAP Pressure: 18
CPAP Software: Not using software

Other Comments: freedom, justice, honor,integrity,respect,self-sacrificing,protect the weak and defenceless

Sex: Male
Location: i would tell you but then i would have to kill you

Post: #4
RE: finally new machine
thanks i think your thinking of the wrong mask i have full fireman looking mask

large and ex i use large it works good just forehead grease towards morning

and over time the seal wears and you have to tighten and tighten i get a new mask every 3 months

but i save all my old supplies hoses tanks masks everything for emergency

complete face you never have a perfect seal but enough it passes this new machines

nightly tests

"You're only lonely if you're not there for you."
-- Phil McGraw
Well, I looked my demons in the eyes, laid bare my chest, said "Do your best, destroy me. You see, I've been to hell and back so many times, I must admit you kind of bore me."
- Ray LaMontagne
One good thing about music, when it hits you, you feel no pain.
Bob Marley
08-30-2015 08:26 PM
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