i think 16 days now on resmed aircurve10
i was Phillips bilevel broke for 3 or more years
provider would not fix medicare would not force
they even ignored when i sent congress yes i got
a congress person to go after the provider anyway
i was on a regular cpap because i got fam history
of heart and stroke i have fibro chronic pain allot
more towards the end i was thinking i was going
to be in a wheel chair for life by 45 now my 5
year medicare is up!!! BUT because the fight i
had to travel over 2 hours each way to get one
lucky around here there Phillips down there resmed
o wow 2 days in pain 6 instead of 8 or off the scale
i went for a walk i haven't gone for a full walk i dont
know how long now every day i wake up a 6 in pain
may be high for yall but heaven for me and walk anywhere
from 1 to 5 blocks my alertness is unbelievable allot
of my life is back i can go to stores again and then it has
a tablet app to check whats going on a web app and sleepy head
and the sleep aid where i got it can instantly access it change
things see what went wrong whatever only problem they gave me
a cheap crap mask thats already dying Velcro is basically gone
get woke up by a strap shooting off lmao or the real pain
adjusting tightness every couple hours i got a big sore on
the back of my head i sent a email chewing him out
its not a Phillips brand i can tell Phillips Velcro lasted
u adjusted tightness every week or longer and i could fit
a wash cloth under back straps for my head this one wont
otherwise its good
"You're only lonely if you're not there for you."
-- Phil McGraw
Well, I looked my demons in the eyes, laid bare my chest, said "Do your best, destroy me. You see, I've been to hell and back so many times, I must admit you kind of bore me."
- Ray LaMontagne
One good thing about music, when it hits you, you feel no pain.
It's great to hear you finally got a new machine, good luck to you.
08-29-2015, 02:48 PM
(This post was last modified: 08-29-2015, 06:21 PM by vsheline.)
Thanks for sharing your good fortune in getting an upgraded machine, and love your Other Comments in your profile. (Other Comments: freedom, justice, honor, integrity, respect, self-sacrificing, protect the weak and defenseless)
It is great that your fibro chronic pain has decreased significantly now you are using the new machine. Hopefully the pain will continue to improve as better sleep allows you to heal.
Are you still using the FitLife Total Face Mask?
(There is a "My Profile" link at the top right of the webpage which allows us to easily update our profile.)
I have found that a mask liner is essential for stopping leaks with the FitLife TFM. Also, it helps to use the medium/standard size headgear or smaller.
I occasionally use the FitLife TFM when I need to give my nose bridge a rest. I have a very large head use the Extra Large mask, but I think the extra large headgear is absurdly huge and perhaps too large for anyone. I wish Philips Respironics would include the standard/medium headgear with the XL size FitLife mask and make the XL size headgear a special order item.
Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.