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Machine: Needing iVAPS but QUACKS refusing to help but they love testing Mask Type: Not using mask Mask Make & Model: F&P Vitera on shelf Humidifier: None/nada CPAP Pressure: 0-0 pressure set CPAP Software: Not using software
Other Comments: SCS PVC K9D** Untreated CA Asthma Dr. Donothings
09-01-2019, 12:21 PM (This post was last modified: 09-01-2019, 12:31 PM by SarcasticDave94.
Edit Reason: supplier info
)
RE: having trouble with aircurve 10 asv
(09-01-2019, 12:03 PM)ldanielle01 Wrote: Thanks for the reply!
I don't know why I'm having the large leaks, but I have ordered new nasal pillows to see if that helps.
I'm a back-sleeper which I guess is the worst for people with apnea. Maybe I will try some different head pillows as well. I wonder if I stretch the tube out or something and that pulls the mask off my face a little?
I never really had a problem with large leaks until this year, so I'm not sure why. I had great results for quite a while, then I stopped using it for a couple months after ear surgery and when I went back to using it, I had all sorts of issues at once! I did lose close to 20 lbs this past year, so I wonder if that has anything to do with it...
Hopefully we can get it sorted out soon! I'm anxious to get it resolved.
Thanks again!!!
Back sleeping is typically the worst position for Obstructive Apnea.
There's 2 generic products I'm suggesting you window/internet shop/research. 1 is a pillow, that is one you place your head on not the nasal pillow mask. There's various shapes, fill materials, thickness, with or without mask cutout, etc. to shop and consider. Some here on the board like one called My Pillow, others like variations on a buckwheat fill pillow.
Item 2 is a hose holder. It could be in the form of a metallic pole frame that tucks under the mattress and hooks onto the hose at the top with a strap of some sort. (looks kinda like a gallows to hang bad guys) Other variants may be something like clothespin clips on both ends with a cord to connect them (I'm supposing clipping to the hose and your clothes or similar). The idea is to shift the weight of the hose onto something else for support rather than it hanging free from the mask. For example, Supplier #1 has some pillows and hose holders under the Comfort and Care section.
FWIW when I have the money to purchase, I plan on getting a gallows style hose holder and buckwheat pillow.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Machine: System One Mask Type: Nasal pillows Mask Make & Model: fx for her Humidifier: unsure CPAP Pressure: unsure CPAP Software: SleepyHead
Other Software
Ok, here is from last night. Collar on, contoured pillow for greater comfort, and settings changed to recommended.
Much closer to my normal sleep time, aside from unexpected crazy wind storm around 2 am that woke everyone, including the actual house.
even with the collar you're still showing clusters. try adjusting it, probably tighter. there are exceptions to the conventional wisdom to keep it loose for comfort. unfortunately, the way my neck and chin are formed I have to wear the collar quite tight to be effective. it should help with your leaks that are too high as well.
I ditched my foam contour pillow. it might have helped with neck position while sleeping supine but it's too firm and makes my mask shift. instead I use a buckwheat pillow that's almost infinitely adjustable, conforms to the shape of whatever's on it, allows me to hang my face and mask over the edge of the pillow while side sleeping and minimizes mask distortion.
one invaluable tip to help with mask fit and leaks is to use some kind of hose hanger. a simple hook on the wall, clamp on the headboard or pillow case, lanyard hung from the ceiling, etc., will do. or you can buy a product designed for that purpose.
wait to hear from whoever is advising you. I think a properly functioning collar (or similar) should substantially reduce leaks and the clusters of obstructives. in addition (or alternatively) I suspect you will end up with more epap (around 8-9 cmw), although if effective, the collar may allow you to have lower.
I didn't reread this whole thread but I see some of these things have been mentioned before. keep trying 'til you figure out what works for you!
I think you will see improvement fairly quickly in time. It is fairly common to see obstructive clusters continue when first getting started with the collar. It's just my observation, but it seems to improve fairly quickly.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Machine: System One Mask Type: Nasal pillows Mask Make & Model: fx for her Humidifier: unsure CPAP Pressure: unsure CPAP Software: SleepyHead
Other Software
I'd say that's pretty quickly! Thanks again for all your help. I'm still waiting for the hose holder to try to get the leak down, but everything else seems a lot better!
That's pretty remarkable change. Your charts would be helpful in our wiki for using soft cervical collars if you are okay with it. We don't have an example of using the collar with ASV, and this is textbook. Not only are UA and H events essentially gone, but your leaks have become controlled and your pressure are staying much lower. This is exactly what we hoped for.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Machine: System One Mask Type: Nasal pillows Mask Make & Model: fx for her Humidifier: unsure CPAP Pressure: unsure CPAP Software: SleepyHead
Other Software
Machine: Needing iVAPS but QUACKS refusing to help but they love testing Mask Type: Not using mask Mask Make & Model: F&P Vitera on shelf Humidifier: None/nada CPAP Pressure: 0-0 pressure set CPAP Software: Not using software
Other Comments: SCS PVC K9D** Untreated CA Asthma Dr. Donothings
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Machine: System One Mask Type: Nasal pillows Mask Make & Model: fx for her Humidifier: unsure CPAP Pressure: unsure CPAP Software: SleepyHead
Other Software
Machine: Needing iVAPS but QUACKS refusing to help but they love testing Mask Type: Not using mask Mask Make & Model: F&P Vitera on shelf Humidifier: None/nada CPAP Pressure: 0-0 pressure set CPAP Software: Not using software
Other Comments: SCS PVC K9D** Untreated CA Asthma Dr. Donothings
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.