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new to CPAP
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acid1987 Offline

Members

Posts: 6
Joined: Dec 2012

Machine: System One RemStar Pro with C-Flex+ (460P)
Mask Type: Full face mask
Mask Make & Model: large resmed quattro fx full face mask
Humidifier: heated
CPAP Pressure: 12cmH2O
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #1
new to CPAP
hello all,

just wanted to post saying hi to everyone. i am 25 years old and on 11/21 got diagnosed with severe obstructive sleep apnea. I thought my study went pretty well boy i was wrong. I ended up with a RDI averaging 33 per hour and 47 periodic limb movements. I also found out that i was only sleeping efficiently 73% of the time from lights out to lights on. Well the sleep center prescribed me a respironics with smart card and encore c-flex of 3 and a cpap pressure of 12cmH2O and a large resmed quattro FX full face mask. here comes the main reason behind this post my sleep apnea is so bad that i am passing out at work and at home injuring myself, because of this passing out i am no longer able to work and therefore have no income or health insurance. With no insurance and no income i can not afford the machine that i need to fix my problem. I was wondering if there was any programs that anyone knows about that i can get the machine for free or at a greatly reduced cost. at a CPAP site online i can get the machine and mask for $555 but i am looking for something cheaper cause i just cant afford that.
12-03-2012 05:28 AM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: new to CPAP
Supplier #2 sell used and new machine at discount prices
http://www.apneaboard.com/forums/Thread-CPAP-Supplier-List

you want data capable machine that uses SD card Not smart card
Phillips Respironcis System One machines Auto 550 and Pro 450 (Not Plus model) cheaper than Resmed machines
and supported by SleepyHead software

American Sleep Apnea Association (ASAA) CPAP assisted program worth checking
http://www.sleepapnea.org/resources/cpap-assistance-program.html
12-03-2012 06:12 AM
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acid1987 Offline

Members

Posts: 6
Joined: Dec 2012

Machine: System One RemStar Pro with C-Flex+ (460P)
Mask Type: Full face mask
Mask Make & Model: large resmed quattro fx full face mask
Humidifier: heated
CPAP Pressure: 12cmH2O
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #3
RE: new to CPAP
i say smart card cause that is what the sleep center wrote. the machine that i found was on Supplier #1 on that list you linked and i am thinking i am going to go with them just got to get my parents to help or hope for so income to come in over the next couple weeks
12-03-2012 06:17 AM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #4
RE: new to CPAP
It's really critical to get the right CPAP machine. You need one that's fully data capable, because that way, the machine records your breathing every night. Without a good CPAP machine, you'll never know if the therapy is working or not. The pressure that worked one night in the sleep lab may not be what you need the next night sleeping at home.

The cost difference between a good CPAP and a bad one is very small compared to the extra medical bills you'll have over time if you get the bad one. The right one gives you sort of a mini sleep test every night. It will help you make your therapy work better, help you solve any problems, will tell you if it's working, and may avoid having to get another sleep test later.

Check the link in my signature line to figure out what the correct machines to buy are.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
12-03-2012 06:44 AM
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zimlich Offline

Preferred Members-2

Posts: 392
Joined: Feb 2012

Machine: Respironics PR System One BiPap Auto SV Advanced
Mask Type: Nasal mask
Mask Make & Model: ResMed gel Nasal Mask
Humidifier: System One
CPAP Pressure: 8-20 ASV, 8 EPAP,PS 12
CPAP Software: Not using software

Other Comments: I use the Quattro FFM when necessary

Sex: Female
Location: Norfolk, VA

Post: #5
RE: new to CPAP
I think you need to get a physical. Though it may be true in your case, I have never heard of CPAP causing people to pass out during the day. I know you don't have insurance, but this may be a neurological matter or something very serious. For instance you could have low blood sugar. Do you eat regularly with a snack mid morning and after lunch? Are you getting so sleepy you fall asleep on your feet and fall down? That sounds like narcolepsy and requires different treatment in the form of CNS stimulants. I am not a doctor, but I say these things just to show you there are a host of other problems that could cause your symptoms. Acid1987, please go to a free clinic or ER next time you pass out- call 911. This is serious. I could happen when you're driving or doing another hazardous task.
Good luck, keep us posted.
(This post was last modified: 12-03-2012 09:28 AM by zimlich.)
12-03-2012 09:27 AM
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trish6hundred Offline

Advisory Members

Posts: 6,451
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: new to CPAP
Hi acid1987,
WELCOME! to the forum.!
I echo what everyone has said so far.
I hope you can find a way to start getting your problems straightened out, best of luck to you and keep us posted.

trish6hundred
12-03-2012 09:48 AM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #7
RE: new to CPAP
(12-03-2012 09:27 AM)zimlich Wrote:  I have never heard of CPAP causing people to pass out during the day.

He's not doing CPAP yet, he's looking for a machine.

Apneacs often fall asleep during the day. If his "passing out" is "falling asleep," that's not too unusual for an apneac. If it's more like "fainting", that's different.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
12-03-2012 10:03 AM
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SuperSleeper Offline

Administrators

Posts: 9,973
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #8
RE: new to CPAP
(12-03-2012 10:03 AM)archangle Wrote:  If it's more like "fainting", that's different.

If he fainted, it was probably because of the shock at how expensive the sleep study & CPAP machine were, given the fact that he has to pay out-of-pocket with no insurance. That's common amongst us folk with no insurance. BigwinkToo-funny

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

12-03-2012 10:30 AM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #9
RE: new to CPAP
If you live in the US, you may qualify for Medicaid, even temporarily.

And I agree that you need to determine if you are "falling asleep" or "fainting". These are two different issues.

You said you have an RDI (respiratory disturbance index) of 33. RDI is not the same as AHI (apnea hypopnea index). 33 is not enough arousals to warrant you "falling asleep" so quickly you are injuring yourself. Falling asleep that fast is usually a symptom of narcolepsy.

I strongly urge you to discuss this with your doctor if you have not already.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-03-2012 12:35 PM
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2Tim215 Offline

Preferred Members-2

Posts: 283
Joined: Oct 2012

Machine: S9 ResMed AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX Nasal Pillow - Medium
Humidifier: ResMed H5i w/Climate Hose
CPAP Pressure: 6cm-12cm
CPAP Software: ResScan SleepyHead

Other Comments: OSA, Fibromyalgia, Rheumatoid Arthritis, Osteoarthritis, Gout, PTSD, & Meralgia paresthetica.

Sex: Male
Location: Finger Lakes Region, NY

Post: #10
RE: new to CPAP
I agree with the above posts. You should really look into another diagnosis as it sounds like you may have other issues that could endanger you and possibly others, especially if you drive. I would suggest an Emergency Room visit explaining that you are passing out and sustaining injuries from it. You can't be denied care and passing out or fainting is an emergency situation. If your Mom & Dad are willing to help with a machine I believe I would first start with an appointment that best fits your situation. Can you give any idea of length of time you are "out"? Are you currently on any medications? If so, I'm not asking you to share them but check the side affects so at least you can confirm or deny if they are part of the problem. Also the above suggestion about the right machine is very important as if it is data capable you can monitor your progress or lack of it should you need adjustments. Welcome to the Board, lots of good information here!

Tim
Finger Lakes Region, NY
12-03-2012 11:06 PM
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