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newbie help -just got machine 2 days ago.
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Fletch Offline

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Posts: 12
Joined: Jan 2014

Machine: philips system one
Mask Type: Full face mask
Mask Make & Model: unsure
Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: Not using software

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Sex: Male
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Post: #1
newbie help -just got machine 2 days ago.
Hi,

Do to insurance problems, I have been trying to get treatment for about 1 year. Well finally things came together -well probably as I will have to wait to see if I get a bill for last hospital visit.

Bottom line is this will be my third night with the machine. I have asked several people and getting conflicting answers:

1) How often should I change the water in the tray? The company that supplied the machine said to top it off each night, then clean it once a week. But other people said change it every night or every other night. My sister does this every night but she uses normal water and most people hav e said to use distilled water..which is what I have right now.


2) Did any of you experience memory problems and if so did it improve when you went on the machine?

3) There is a blue tooth adapter option for my machine..phillips system one. Is it worth it or is there a way software way to read the data directly from the sd card? IT is my job and I am simply curious about this.


4) Any general advice you can think of for a new user?

I will say I had a great tech/nurse for the second hospital visit. He went well out of his way to find the right mask for me. We tried the nostril kind first, but it made me feel sick as it kept blowing air out of my mouth and I woke up stuffed up and with a sore throat. Out of 4 or 5 we tested, I found the small full face mask was the best for me and is quiet, works well, and doesn't make me feel like I am getting sick. The supply company woman didn't want to give that one to me at first , in part because I have a beard but relented in the end. and I did feel a difference in alertness the very first morning so I think it is working!

Thanks!!
01-17-2014 10:54 PM
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ChadIAm Offline

Members

Posts: 29
Joined: Jan 2014

Machine: Resmed VPAP Adapt (S9 w/ ASV Auto)
Mask Type: Nasal pillows
Mask Make & Model: Resmed Swift FX
Humidifier: H5i with Climateline Oxy Air Tubing
CPAP Pressure: EPAP 15
CPAP Software: ResScan SleepyHead

Other Comments: Supplemental Oxygen 3L/min

Sex: Male
Location: Ventura, California

Post: #2
RE: newbie help -just got machine 2 days ago.
(01-17-2014 10:54 PM)Fletch Wrote:  1) How often should I change the water in the tray? The company that supplied the machine said to top it off each night, then clean it once a week. But other people said change it every night or every other night. My sister does this every night but she uses normal water and most people hav e said to use distilled water..which is what I have right now.


2) Did any of you experience memory problems and if so did it improve when you went on the machine?

3) There is a blue tooth adapter option for my machine..phillips system one. Is it worth it or is there a way software way to read the data directly from the sd card? IT is my job and I am simply curious about this.


4) Any general advice you can think of for a new user?

Fletch...

1. I change my water daily... I have to, my machine is dry. If you are using distilled water, do as they say or do it everyday.

2. What were we talking about.... Oh Yeah... Memory loss, Yes... Everything in Life will pretty much get better... Keep a positive attitude and get through the first few months of learning curve. I just finished 3 months and love it... PLUS... READ ALL THE POST PEOPLE HAVE MADE... There is years and years of info that you can get a heads up on.

3. I use an SD... I don't know anything about your machine... so some one else should answer. OH Yeah... I use SleepyHead software and like it a lot... learned that here too!

4. Just know things will get better and easier the more compliant you are... like I was saying... read and ask the resident experts questions... They are all very helpful around here Big Grin

GOOD LUCK!! Big Grin
(This post was last modified: 01-17-2014 11:07 PM by ChadIAm.)
01-17-2014 11:05 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #3
RE: newbie help -just got machine 2 days ago.
Hi Fletch , welcome aboard
1) How often should I change the water in the tray?
There is no one definite answer, however if using distilled water, you can just top up

2) Did any of you experience memory problems and if so did it improve when you went on the machine?
No but no longer wake up with a headache

3) Is it worth it or is there a way software way to read the data directly from the sd card?
http://www.apneaboard.com/forums/Thread-...e-software

4) Any general advice you can think of for a new user?
http://www.apneaboard.com/wiki/index.php...CPAP_users
01-17-2014 11:13 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: newbie help -just got machine 2 days ago.
Hi Fletch,
WELCOME! to the forum.!
I use distilled water and I top mine off. Some say you shouldn't do that but I've never had any problems. I wash it once a week in warm, mild soapy water, (Ivory Liquid,) with my hose and mask.
Hang in there for more answers to your questions and best of luck to you with your CPAP therapy.

trish6hundred
01-17-2014 11:13 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #5
RE: newbie help -just got machine 2 days ago.
Fletch, welcome, the others have pretty much answered your questions, two additional tips, have your hose coming from above your head either over a bed head or you can buy a product called a hose lift or make one yourself, that way you don't get tangled and your mask pulls up instead of down and use mask liners, they help to stop leaks and your skin doesn't touch the silicone. You can buy them over the net or make them yourself fairly cheaply. In the US some insurance companies cover them, I can send you the instructions on how to make them if you want.
01-18-2014 12:56 AM
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Peter_C Offline

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Posts: 1,308
Joined: Sep 2013

Machine: System One DS960HS
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro "MED"
Humidifier: Attached
CPAP Pressure: Auto mode-script is:15/3/3
CPAP Software: EncoreBasic Other Software

Other Comments: Severe obstructive sleep apnea 1999/Just got an ASV machine

Sex: Male
Location: Akron, Ohio USA

Post: #6
RE: newbie help -just got machine 2 days ago.
Most everyone is different in how they do stuff. I've been a xPAP user for +10 years now, and some stuff I am very slack about, I am lucky to clean my mask weekly! That said, my water chamber is emptied and rinsed every sleep session (this includes naps too) - the very first time you see 'stuff' floating in the water, you may well get that way too. It is more about personal hygiene habits, than what is good for the machine - they are very durable.

As for memory, headaches daytime sleepiness, etc...
Some folks see immediate improvement, whereas others it can take months - every 'body' is different, and, is the issue of concern *only* created by OSA? Or does the issue have multiple causes in 'your' life? My heart issues created by OSA has taken roughly 7-8 years to repair itself, that said, there was no promise that my high (122, even on Valium) resting heart rate issue would ever get better - because everyone is different.


Tips and Tricks - read 1-2 hours of this forum daily. There is lots of little things to pickup. A mask that I love, you may hate~! Get a new (free) mask as often as you can (spares, and trials), collect spare parts of everything. Water in a machine that gets knocked over is really, really bad. Don't lunge out of bed with your mask on.

If need be, wear your mask when awake for a few practice hours daily, then, never, ever, put your mask on unless you are ready to fall asleep (trains you to fall asleep quickly-hopefully).

Since some of your sleep habits are changing out of need, this is a great time to review your sleeping habits completely and to make any other needed changes for healthy sleeping.

*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
01-18-2014 01:58 AM
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Fletch Offline

Members

Posts: 12
Joined: Jan 2014

Machine: philips system one
Mask Type: Full face mask
Mask Make & Model: unsure
Humidifier: unsure
CPAP Pressure: unsure
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #7
RE: newbie help -just got machine 2 days ago.
Thanks guys (and gals) for the helpful advise. I found the software and it worked fine though I do not know how to interpret the results yet.

Ok for now I will just top off the water and clean the tray once a week and see how it goes.

I sure hope my memory improves as it is an important part of my job and I am tired of being "stupid", though thankfully this problem would come and go so there is hope I could get back to normal.


It's only been 3 nights so far so hard to be sure about anything but so far:

The only issue I have noticed was last night. I remember waking up and my mask was leaking. That did not happen the first 2 nights. My heart beat was a little high when I woke up this am and they told me in the past this was part of apnea. So I need to be more careful about my mask leaks. it is a full face Quattro (small) and I do like it.

ON the + side: it could be a coincidence, but I am no longer waking up in the night having to go to the bathroom. I thought this was due to all the coffee I drink to stay awake, so not sure.

NO back aches when I wake up for the past 3 days. I think this is due to the fact that I believe I am not tossing and turning nearly as much. I did not think this was due to apnea but I did know I tossed and turned a lot as it would sometimes wake me up.


Now the rest is up to me. I have been basically drugging myself to be alert during the day and then drugging myself to go to sleep. I am going to slowly ween myself off of this and hopefully things will be even better.
Thanks again for all the tips!!!!!!!!!
(This post was last modified: 01-18-2014 01:15 PM by Fletch.)
01-18-2014 01:13 PM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #8
RE: newbie help -just got machine 2 days ago.
(01-18-2014 01:13 PM)Fletch Wrote:  The only issue I have noticed was last night. I remember waking up and my mask was leaking.

ON the + side: it could be a coincidence, but I am no longer waking up in the night having to go to the bathroom. I thought this was due to all the coffee I drink to stay awake, so not sure.
Its worth mentioning just in case, the mask require washing after each use to wash away skin oil. It might good idea to try one size up or down just to make sure got the right size or even different mask
Apnea and night time urination goes together, when apnea been treated, the frequency of waking up during the night to pee decreases
Data is important but for now I would concentrate making the therapy as comfortable as possible and the rest will follow, more like a jigsaw puzzle ... one piece at a time. a journey of thousand miles begins with a single step
01-18-2014 01:37 PM
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me50 Offline

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Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

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Sex: Undisclosed
Location: USA

Post: #9
RE: newbie help -just got machine 2 days ago.
and wash your face at night just before you put your mask on. ffm tend to leak more than nasal mask or nasal pillows
(This post was last modified: 01-18-2014 01:45 PM by me50.)
01-18-2014 01:45 PM
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ImaSurvivor Offline

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Posts: 322
Joined: Nov 2013

Machine: ResMed S9 Auto
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i Heated Humidifier, ClimateLine Tubing
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments: Moderate Sleep Apnea, Began using CPAP 11/27/2013

Sex: Female
Location: New York State

Post: #10
RE: newbie help -just got machine 2 days ago.
Welcome to the forum!

There is a condition brought on by sleep apnea that causes frequent urination (nocturia). I too thought mine was due to too much green tea. I stopped that and began drinking water. Still up several times in the night. When I began CPAP it has 100% corrected the nocturia.
01-18-2014 03:47 PM
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