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newly diagnosed
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Clementine Offline

Preferred Members-2

Posts: 208
Joined: Sep 2013

Machine: ResMed VPap Auto
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: ResMed H5i--not using currently
CPAP Pressure: Auto -- 8/13.2 PS 3.2
CPAP Software: SleepyHead

Other Comments: Began with machine on 7/7/14.

Sex: Female
Location: eastern Iowa

Post: #1
newly diagnosed
Hi all --
I looked briefly for a newcomers' thread and didn't see one. Let me know if I missed it and should move this post.

I'm newly diagnosed with sleep apnea. They told me I wake an average of 30 times an hour. !!!
I sleep in a recliner; upright sleeping seems to work a little better for me.

I went to the sleep clinic for the night of mask-fitting and I flunked.

I went to the dentist and was told of the cost of a mouth appliance --- well over $2,000 and insurance will not cover it.

Now, I'm trying to lose weight.

I'm wondering if anyone has tried the weight loss option, and did it help with the apnea?
09-12-2013 01:03 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,062
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: newly diagnosed
Welcome to the forum!

As for weight loss, it works for only a few. It depends on where the weight is and any other factors. Here's this thread:
http://www.apneaboard.com/forums/Thread-Anybody-had-surgery-for-OSA

It specifically address lap-band surgery but still about weight loss.

An AHI of 30 is at the top end of "moderate". As if stopping breathing every 2 minutes is "moderate".

Some places for you to check out to further educate yourself:
Acronyms: http://www.apneaboard.com/wiki/index.php?title=Acronyms (the bottom of that page has some other references)
Machine choices: http://www.apneaboard.com/wiki/index.php...ne_Choices
Glossary: http://www.apneaboard.com/wiki/index.php?title=Glossary

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-12-2013 01:23 PM
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STL Mark Offline

Preferred Members

Posts: 44
Joined: Jul 2013

Machine: Resmed S9 VPAP Adapt 36037
Mask Type: Full face mask
Mask Make & Model: Resmed Quattro Air
Humidifier: Resmed H5i
CPAP Pressure: Original Titration: 18 cm H2O
CPAP Software: ResScan SleepyHead

Other Comments: Mode: ASVAuto, Min EPAP: 4, Max EPAP: 15, Min PS: 3, Max PS: 15, Ramp: Off

Sex: Male
Location: Saint Louis, MO USA

Post: #3
RE: newly diagnosed
Did they tell you what kind of apnea you had? Obstructive, Central, or Complex. The last two are not corrected by weight loss or oral appliances. There is some thought that weight loss may reduce sleep apnea however it usually does not eliminate it. Oral appliances can also stand a chance at reducing it. As can surgery. However xPAP therapy is almost always successful if properly administered.

Possibly you should tell us more about why you didn't do well with the mask and CPAP. For some that have issues it is a matter of trying multiple sizes and types of masks that works. For others it is an anxiety issue that needs to be addressed.
09-12-2013 01:30 PM
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trish6hundred Offline

Advisory Members

Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: newly diagnosed
Hi Clementine,
WELCOME! to the forum.!
What Paula said.
Best of luck to you and hang in there for more responses to your post.

trish6hundred
09-12-2013 01:32 PM
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Clementine Offline

Preferred Members-2

Posts: 208
Joined: Sep 2013

Machine: ResMed VPap Auto
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: ResMed H5i--not using currently
CPAP Pressure: Auto -- 8/13.2 PS 3.2
CPAP Software: SleepyHead

Other Comments: Began with machine on 7/7/14.

Sex: Female
Location: eastern Iowa

Post: #5
RE: newly diagnosed
Thank you for the responses!
I do not know what type of apnea I have --- that was not told to me. Would it be on my sleep apnea report? I need to call and get a copy of it as they did not give me anything.

Just guessing -- I think it must be obstructive. I wake myself up almost gasping for air sometimes.

I tried every mask and nosepiece they had at the clinic, and nothing worked. I think the nurse was a little p.o'd with me --- she had told me that she'd never had anyone not find a mask that worked for them. Lucky me.
At the end of the night she let me sleep a few hours unmasked and then sent me home with "see your dentist about a dental appliance."

Which I did --- cost is somewhat prohibitive. And just from the looks of the appliance, OMGosh. I don't think I could have that thing in my mouth.

I probably am claustrophobic. I've had problems in the past with anesthesia and putting a mask over my face --- they hold it up off my face until I finally fall asleep.

Just to add --- I am not heavily overweight. Not obese, anyway. I do have weight to lose. I do have a lot of "tissue" in the throat area. I'm hoping that by losing 10 or 20 lbs, that I might make the apnea less of a problem.
(This post was last modified: 09-12-2013 01:47 PM by Clementine.)
09-12-2013 01:42 PM
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PollCat Offline
Apnea Board Polling Administrator
Monitors

Posts: 1,576
Joined: Feb 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: H5i Cleanable with ClimateLine
CPAP Pressure: 10 - 18
CPAP Software: SleepyHead

Other Comments: CPAP-ing since 1995; Type 2 Diabetes; Chronic Asthma; Gout

Sex: Male
Location: Westfield, IN

Post: #6
RE: newly diagnosed
First contact the sleep center and find out what 'version' of apnea you have and obtain scripts for a machine and headgear. Then find a local DME and go try on various types of headgear/masks etc. I'm reasonably sure you'll be able to find something that you can live with. Before visiting the DME, you could also google cpap masks to see if you can identify some that look interesting - that's how I found the mask I'm currently using.


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA.
INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-12-2013 02:43 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #7
RE: newly diagnosed
Welcome

Hi Clementine,

What pollcat and Paula said.
Sounds like you are going to have to find a mask that is comfortable enough to wear all night and
de-sensitize yourself to wearing it. ie: wear it while awake until you can keep it on all day. work up to it slowly by one hour at a time and don't quit.

do the weight loss program anyway but not to help your apnea, do it for the other benefits.
The weight loss might help the apnea little but it's not a sure thing. Any positive results might arise will be too slow to help in the long run.


Get going on the CPAP/APAP as soon as possible before major health complications set in.
Its the machine we all love to hate.
Just DO IT.
Smile

Cheers!

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
09-12-2013 03:03 PM
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justMongo Offline

Monitors

Posts: 3,839
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #8
RE: newly diagnosed
(09-12-2013 01:42 PM)Clementine Wrote:  Thank you for the responses!
I do not know what type of apnea I have --- that was not told to me. Would it be on my sleep apnea report? I need to call and get a copy of it as they did not give me anything.

Just guessing -- I think it must be obstructive. I wake myself up almost gasping for air sometimes.

I tried every mask and nosepiece they had at the clinic, and nothing worked. I think the nurse was a little p.o'd with me --- she had told me that she'd never had anyone not find a mask that worked for them. Lucky me.
At the end of the night she let me sleep a few hours unmasked and then sent me home with "see your dentist about a dental appliance."

Which I did --- cost is somewhat prohibitive. And just from the looks of the appliance, OMGosh. I don't think I could have that thing in my mouth.

I probably am claustrophobic. I've had problems in the past with anesthesia and putting a mask over my face --- they hold it up off my face until I finally fall asleep.

Just to add --- I am not heavily overweight. Not obese, anyway. I do have weight to lose. I do have a lot of "tissue" in the throat area. I'm hoping that by losing 10 or 20 lbs, that I might make the apnea less of a problem.

You have a right to have a copy of the Physician's report interpreting your sleep study. Insist upon it.

As with most medicine, there is no better advocate for your care than you. Understanding that report is the key to proper treatment.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-12-2013 03:33 PM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #9
RE: newly diagnosed
Clementine, welcome, weight loss may reduce the number of apnea's you have but the only real treatment is CPAP. It is a gold standard treatment. My AHI was 30 as well (Servere) sleep apnea, I would be interested in knowing your symptoms if you wish to share. You cant sleep in a recliner the rest of your life and even though it will help because your head is upright, it is not the answer. I assume you know what other associated illness's sleep apnea can cause and weight gain is just one of them. Most people are so tired from sleep apnea they can't or don't want to exercise so they not only can't lose weight, they put it on.
Try the CPAP and see how you go, you may be pleasantly surprised espically when you see some results. We are here to help and support you.
09-12-2013 06:43 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,062
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #10
RE: newly diagnosed
Ah, claustrophobia. There's another member here (or two or three) who have had a lot of problems with it.

Some of the nasal pillows have little contact with the skin, leaving your mouth able to open to relieve the "gotta breathe!" feeling.

They are also very small with many of them not having any kind of headgear but simple straps. You probably could not be able to just jump right in without doing some work first. One thing you can do is try yet more masks and figure out which one you think you can tolerate the longest. Then take it home and start wearing it. Watching television, reading, whatever. Hook it to the machine if you want to just to get used to that, too. Just keep trying it until you get comfortable enough to lay down. If you can't, then try another.

If the tech has never had anyone do this, then she's lying. It is a common problem. Since you were not able to be titrated at the sleep clinic, then tell them that's a perfect reason to let you have an autoPAP.

If you are not morbidly obese, then losing weight will not help much in terms of apnea. It can help in terms of everything else in your life, though!

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-12-2013 08:04 PM
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