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not getting good sleep
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storywizard Offline

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Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #1
not getting good sleep
hi all...

after a bad reaction to CPAP I have been trying other methods of dealing with my apnea.
Have to say I have had some success but still do not feel like I am sleeping well.

Got a new Oximeter, tried it last night...I know one night cannot tell the whole story, but this looks like disturbed sleep to me...


http://i36.photobucket.com/albums/e22/st...5c6d7d.jpg

http://i36.photobucket.com/albums/e22/st...68f1eb.jpg

I will do a few more nights and see what I get, then I feel like it is another trip to the sleep doc.

Storywizard
02-10-2015 01:08 PM
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Evpraxia Offline

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Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #2
RE: not getting good sleep
Hum, I could not really read the numbers or the chart; but the lines do not look really good.

I apologize, storywizard, for not having read what the problem with the CPAP was. Hopefully, you and the medical staff can work through the problems.

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
02-10-2015 01:45 PM
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DariaVader Offline
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Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: not getting good sleep
IIRC, storywizard has Central Apnea. None of the things that open up the airway for OSA sufferers is going to help with that since the cause is not obstructions. Vsheline gave him some very good advice in another thread, so I wont try to repeat any of it - I am not afflicted with CA and can't offer experience there Smile

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
02-10-2015 04:30 PM
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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #4
RE: not getting good sleep
(02-10-2015 04:30 PM)DariaVader Wrote:  IIRC, storywizard has Central Apnea. None of the things that open up the airway for OSA sufferers is going to help with that since the cause is not obstructions. Vsheline gave him some very good advice in another thread, so I wont try to repeat any of it - I am not afflicted with CA and can't offer experience there Smile

Yes, CA's appear to be what this is, and I am not looking forward to trying CPAP again, but if it is the only way of dealing with this then I will have to find a way to surrender to the machine...:-)

Storywizard
02-10-2015 05:27 PM
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DariaVader Offline
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Monitors

Posts: 1,827
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #5
RE: not getting good sleep
(02-10-2015 05:27 PM)storywizard Wrote:  Yes, CA's appear to be what this is, and I am not looking forward to trying CPAP again, but if it is the only way of dealing with this then I will have to find a way to surrender to the machine...:-)

Storywizard

CPAP is not the fix either. that just splints the airway open, it doesn't do anything to tell your body to breathe. You need to obtain an ASV. You need a sleep study that shows the CAs and a rx for an ASV.

Since CA originates in the brain, and can be affected by drugs and alcohol and by anything else that interrupts the autonomic nervous system, you need medical workup to rule out issues that may contribute to that, such as MS. If you have a condition that is contributing to the CAs, you should treat it to stop or slow its progression.

I hope you are able to get help soon. This has been going on a while for you.

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
02-10-2015 05:37 PM
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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #6
RE: not getting good sleep
(02-10-2015 05:37 PM)DariaVader Wrote:  
(02-10-2015 05:27 PM)storywizard Wrote:  Yes, CA's appear to be what this is, and I am not looking forward to trying CPAP again, but if it is the only way of dealing with this then I will have to find a way to surrender to the machine...:-)

Storywizard

CPAP is not the fix either. that just splints the airway open, it doesn't do anything to tell your body to breathe. You need to obtain an ASV. You need a sleep study that shows the CAs and a rx for an ASV.

Since CA originates in the brain, and can be affected by drugs and alcohol and by anything else that interrupts the autonomic nervous system, you need medical workup to rule out issues that may contribute to that, such as MS. If you have a condition that is contributing to the CAs, you should treat it to stop or slow its progression.

I hope you are able to get help soon. This has been going on a while for you.

Thanks for the reply...

Last fall I had an overnight sleep study, all the wires and cameras...I slept terribly, on my back, snored like a trooper...they did not find any CAs...so I don't trust sleep studies as present...the sleep techs and the doctor did not want to see my Sleepyhead data, they both denied any centrals and my symptoms...am trying another sleep clinic this time, an at home test...

I have always had poor sleep, may just be age related stuff too adding to the mix...

Storywizard
(This post was last modified: 02-10-2015 05:47 PM by storywizard.)
02-10-2015 05:45 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,827
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #7
RE: not getting good sleep
(02-10-2015 05:45 PM)storywizard Wrote:  Thanks for the reply...

Last fall I had an overnight sleep study, all the wires and cameras...I slept terribly, on my back, snored like a trooper...they did not find any CAs...so I don't trust sleep studies as present...the sleep techs and the doctor did not want to see my Sleepyhead data, they both denied any centrals and my symptoms...am trying another sleep clinic this time, an at home test...

I have always had poor sleep, may just be age related stuff too adding to the mix...

Storywizard

In that case, the CAs may not be true CA. That would be good for you... CA is harder to treat, and has worse implications all around. Do you have a copy of the actual data from the sleep study? Sleeping terrible for the sleep study does mean that the data from it is less reliable IMO. An at home test won't find CA.

If you are sleeping badly, your cpap may falsely detect CA when you hold your breath for other reasons (yawn, sigh, actual breath holding due to frustration, pain)

Snoring is a symptom of OSA and not so much CA.

Was CPAP bad because you were still tired and had bad numbers? or was it bad because it was uncomfy and you couldnt get used to mask, air, venting, etc... ???

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
02-10-2015 06:12 PM
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trish6hundred Offline

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Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #8
RE: not getting good sleep
Hi storywizard,
Wow, you have had a struggle for quite a while with sleep problems. I hope your next sleep study goes better for and that you can get used to CPAP therapy this next time around.
Goodluck to you and keep us posted on how things go.

trish6hundred
02-10-2015 06:51 PM
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TorontoCPAPguy Offline

Preferred Members-2

Posts: 143
Joined: May 2012

Machine: S9 Autoset II
Mask Type: Full face mask
Mask Make & Model: Mirage Quattro FFM
Humidifier: H5i; Control III Germicide
CPAP Pressure: 12-20
CPAP Software: ResScan SleepyHead

Other Comments: CMS50EW Oximeter; Everflo Q O2 Concentrator; O2 Analyzer; Climate Control Hose (winter)

Sex: Male
Location: Toronto; Southern USA; etc.

Post: #9
RE: not getting good sleep
CA's can be caused by everything from brain damage to medications to other afflictions. It is going to take a very good sleep doc to diagnose and deal with centrals; and the collection of much detailed information (keep it in a binder) for the doc to look at.

My doc thought I was having centrals; my pulse oximeter was showing MANY desats and periods of high pulse rate associated with same.

I would certainly not leave this lie. I would pursue it like a pit bull. Infused oxygen may help to keep your SpO2 above 90%.... a racing pulse at 148 bpm is a sign of bad news. No question. It needs to be addressed and it may not be completely apnea related. Have you been checked out by a GOOD cardiologist for (for example) Atrial Fibrillation. This combined with your apnea skyrockets your risk of stroke and that is what worries me. Unfortunately, sleep apnea seems to be associated with the onset and progression of AFIB and this is not a happy situation. Once diagnosed with AFIB (IF diagnosed with AFIB) you want to get with a top notch cardiologist/ELECTROPHYSIOLOGIST to address it and you want to do it early, before your heart has a chance to remodel itself.

You are correct in assuming that you need more data but it does not end there. The desats are common to AFIB, as are the high pulse rates. In a clinical environment they should have the means to measure your Blood Pressure as well, triggered by a high pulse rate or a desat. The trick is to catch all of the data at the right time through the night so that a diagnosis can be made. AFIB is not to be fooled with as it is a major stroke risk. Even apnea on its own, left untreated, is a major stroke risk.

----------------------------------------------------------------------------
Educate, Advocate, Contemplate.
Herein lies personal opinion, no professional advice, which ALL are well advised to seek.
02-10-2015 08:26 PM
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mgwallace Offline

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Posts: 2
Joined: Apr 2015

Machine: ResMed air sense 10 elite
Mask Type: Nasal pillows
Mask Make & Model: Unsure
Humidifier: Unsure
CPAP Pressure: 12
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #10
RE: not getting good sleep
Sorry to post on someone else's post but I dont know how to make my own. I have been on cpap for about 8 weeks. Started at pressure of 11. I had it changed to 12 when I couldn't tell a difference. 4 weeks on 12 and still no difference. I read on here last night how to adjust the pressure and moved it to 13. I had an AHI of 1.2 last night but I feel horrible this morning. Like a bad hangover and hit by a truck all at the same time. Does any body know what I should try next. Sorry if this is the wrong way to do this. I have never tried to post to a forum. Thanks

Wallace
04-01-2015 08:37 AM
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