I don't know which forum to post this to... Amidst my frustration and exhaustion I have spent hours and hours on this site trying to educate myself. BTW- this site is HUGE. Multiple health conditions, have left me disabled and with unreliable memory and cognitive abilities.
I was diagnosed with mild OSA with a few CAs back in 2006. In 2007 discovered thyroid severely enlarged and cutting off my trachea, removed, able to breathe again.
Following several other health diagnosis, I now have fairly severe CA, which was finally diagnosed in May 2015.
Getting the "professionals" to take the time to sort out my situation is fairly hopeless... they just don't have time for complex profiles and they bounce you from one specialist to another. I have always had to be my own advocate. At this point, I feel that I have met my match... don't know if I can do this. I am truly overwhelmed by my crazy response to ASV therapy.
Downloaded ResMed program. Uploaded my SD card. Whhhaaaattt? I have spent over 4 hours attempting to understand how this gives me any information that will help me.
The report summaries say everything is just "peachy". For the first 3 - 4 weeks of therapy... it truly was!! I was beginning to really feel like I might get some of my life back...
Then things started slipping backwards. Reports all continuing to show everything was just fine, YET my body is saying... "NOT so". I have regressed over the last 3 weeks - I now feel worse than before I started. The reports continue to say everything is "wonderful".
SO... ResMed does not make sense and Sleepy Head... does not want to work because of missing file, which I seem unable to resolve.
Please point me.... I need some one(s) to actually step up and help me. I feel like I am drowning. "one of those little guys going down for the third time" Thanks