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[split] Problem with ASV
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ZebraWoman Offline

Members

Posts: 4
Joined: Aug 2015

Machine: Resmed Air Curve 10 ASV
Mask Type: Full face mask
Mask Make & Model: Resmed F10 xs
Humidifier: part of unit
CPAP Pressure: min 8. max 16
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #1
Ohmy [split] Problem with ASV
Oh my gosh.... I am feeling beyond a 10 in the stupid department. I was an honors college graduate and designated research scholar with published work in the area of designing and creating a computer program to analyze statistical data. Soo.. I am really NOT stupid...BUT... I am broken.

I don't know which forum to post this to... Amidst my frustration and exhaustion I have spent hours and hours on this site trying to educate myself. BTW- this site is HUGE. Multiple health conditions, have left me disabled and with unreliable memory and cognitive abilities.

I was diagnosed with mild OSA with a few CAs back in 2006. In 2007 discovered thyroid severely enlarged and cutting off my trachea, removed, able to breathe again.

Following several other health diagnosis, I now have fairly severe CA, which was finally diagnosed in May 2015.

Getting the "professionals" to take the time to sort out my situation is fairly hopeless... they just don't have time for complex profiles and they bounce you from one specialist to another. I have always had to be my own advocate. At this point, I feel that I have met my match... don't know if I can do this. I am truly overwhelmed by my crazy response to ASV therapy.

Downloaded ResMed program. Uploaded my SD card. Whhhaaaattt? I have spent over 4 hours attempting to understand how this gives me any information that will help me.

The report summaries say everything is just "peachy". For the first 3 - 4 weeks of therapy... it truly was!! I was beginning to really feel like I might get some of my life back...

Then things started slipping backwards. Reports all continuing to show everything was just fine, YET my body is saying... "NOT so". I have regressed over the last 3 weeks - I now feel worse than before I started. The reports continue to say everything is "wonderful".

SO... ResMed does not make sense and Sleepy Head... does not want to work because of missing file, which I seem unable to resolve.

Please point me.... I need some one(s) to actually step up and help me. I feel like I am drowning.
"one of those little guys going down for the third time" Thanks
08-21-2015 09:52 PM
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DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,827
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #2
RE: [split] Problem with ASV
Hi ZW... I don't have CA, just OSA - but I had a gnarly thyroid removed as well! I had just the largest side removed in 1999 - 34 gms, and then in 2010 the other side had grown to 94 gm and I had that out as well, and am now sporting 2 scars on my neck that look like age lines. No one but me ever sees them - but they make my neck look 10 years older Angry

before removal, the last bit had shoved my trachea off center, and I wonder if it has ever mended properly.... since the second surgery i have a waver in my voice that I hate Tongue

All that to say - I hope that you can get your CA treatment straightened out and welcome to the board! There are several folk on here with a lot of knowledge on Central Apnea!

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
08-21-2015 11:26 PM
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DeepBreathing Offline
Wiki Editor
Moderators

Posts: 2,296
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #3
RE: [split] Problem with ASV
Hi ZebraWoman - don't worry about feeling silly - prolonged apnea combined with other health issues has that effect. The good news is that it's reversible once you get the therapy working for you and get some restorative sleep. (I know - been there, done that). And you won't drown, because we're all here to throw you a lifeline.

Now to understand exactly what's happening, we need to get a handle on your machine setup and statistics.

Can you give us some further details on your machine settings, please? Which mode are you in - ASV or ASV-Auto? What are the pressure settings - Min EPAP, Max EPAP, Min PS, Max PS, Max IP? If you don't already have it, I suggest you request a copy of the clinician's manual from here: http://www.apneaboard.com/adjust-cpap-pr...tup-manual Be sure to follow the instructions carefully - there are hundreds of manuals available and it's easy to get the wrong one.

Can you give us a sample of the results you're getting from ResScan? AHI, AI, RERA (if available), leaks (min, median, 95% and maximum), pressure (min, median, 95% and maximum EPAP and IPAP). This information will give us a more detailed idea of what's going on, and how to improve your therapy. Once you've got a few more posts under your belt you will be able to post screen shots of your charts which will provide even more information.

One important thing to remember about this therapy is that some nights will be good and some will be bad. Often people get an instant fix, which wears off after a few weeks (as you have found). And there are a lot of variables which can influence your outcome. So take things easy, one step at a time. There's no need to panic - it will come good eventually, even if it seems like a long time coming.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


Bed

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-21-2015 11:58 PM
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vsheline Offline

Advisory Members

Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #4
RE: [split] Problem with ASV
(08-21-2015 09:52 PM)ZebraWoman Wrote:  Then things started slipping backwards. Reports all continuing to show everything was just fine, YET my body is saying... "NOT so". I have regressed over the last 3 weeks - I now feel worse than before I started. The reports continue to say everything is "wonderful".

Hi ZebraWoman,

Please hang in there. Don't give up.

Have you received the setup manual (Clinician Guide) for your machine?

Please reply to Deep Breathing's questions. The answers will help us help you.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
08-24-2015 04:39 AM
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