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update form sleep doc visit help ?
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libbyau Offline

Preferred Members

Posts: 30
Joined: Jan 2014

Machine: Resmed s9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: ResMed H5i Setting 27 C
CPAP Pressure: 10 EPR 2 cmH2O
CPAP Software: ResScan SleepyHead

Other Comments: have Moderately severe obstructive sleep apnea. Have Mac software to read info.for mac computer

Sex: Female
Location: Sydney Australia

Post: #1
Question update form sleep doc visit help ?
Hi all Hi
Update on sleep doc visit
Was at sleep doc he said few things half I cant remember
( should have put my fone on record haha )
Well I do have sleep apnea cant remember if mild or med.
I did stop breading lot of the time.
He did change my CPAP prescription.

Machine type : to fixed before autotitrating
pressure setting to 10 before 6 to 16
next to cmH2O he put EPR 2 something cant read it H2O
Ramp 15minutes from 4 cmH2O (before was 5 )

wanted to put me on some tablets he said I had restless leg dont want any tablet if I dont really need it.
want me to get iron level checked.
He will send report to my doc
and come back in 6 months time.

Was feeling much better but now getting tired again.
Average usage on from last night was
6.7 hours
pressure 14.0
Leak 4.8 L/min

Is the leak is the reason why I am not as good as I did before.For about 2 week I do not think I move when I slept on my back all night. on thursday will be 1 months that I turned elephant at night haha got a trunk I wish I got the elephants good memory as well. The hose looks like an elephants trunk.
Unsure
(This post was last modified: 01-21-2014 03:36 AM by libbyau.)
01-21-2014 03:23 AM
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Tez62 Offline

Monitors

Posts: 837
Joined: Feb 2013

Machine: Resmed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: Resmed
CPAP Pressure: 5-15
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Melbourne, Australia

Post: #2
RE: update form sleep doc visit help ?
Libby, see how the RLS goes with CPAP before taking meds, your leaks are very good even though leaks don't sound good. You felt good the first two weeks because that is the sudden burst of energy most of us get at the start, it then goes backwards and you start slowly getting better over the next 3 - 6 months as you heal. You need to just be patient and monitor your data using either Sleepyhead or ResScan. I like the elephant analogy better than hose head Smile
01-21-2014 04:39 AM
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libbyau Offline

Preferred Members

Posts: 30
Joined: Jan 2014

Machine: Resmed s9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: ResMed H5i Setting 27 C
CPAP Pressure: 10 EPR 2 cmH2O
CPAP Software: ResScan SleepyHead

Other Comments: have Moderately severe obstructive sleep apnea. Have Mac software to read info.for mac computer

Sex: Female
Location: Sydney Australia

Post: #3
RE: update form sleep doc visit help ?
(01-21-2014 04:39 AM)Tez62 Wrote:  Libby, see how the RLS goes with CPAP before taking meds, your leaks are very good even though leaks don't sound good. You felt good the first two weeks because that is the sudden burst of energy most of us get at the start, it then goes backwards and you start slowly getting better over the next 3 - 6 months as you heal. You need to just be patient and monitor your data using either Sleepyhead or ResScan. I like the elephant analogy better than hose head Smile

Yep so do I hose head sounds like something Frankenstein would make.
Sunday night got home late oh just could not put the hose on I just wanted to sleep the old way curl up in a ball was thinking its not working much anyway. The next day Don't know if it was because it was overcast I was feeling not my self just wanted to sit and do nothing cloudy weather sometimes makes me feel that way. Or because I did not have the machine on will never know.
01-21-2014 05:00 AM
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vsheline Offline

Advisory Members

Posts: 1,907
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #4
RE: update form sleep doc visit help ?
(01-21-2014 03:23 AM)libbyau Wrote:  Average usage on from last night was
6.7 hours
pressure 14.0
Leak 4.8 L/min

Hi Libby,

Do you know whether it was the 90 percentile pressure that was 14?

Or was it the median pressure which was 14?

Did the doc explain why he was reducing your prescription pressure to 10?

If you actually need 14, the new prescription of 10 would be too low, especially if you ever sleep on your back.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
01-21-2014 07:18 AM
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libbyau Offline

Preferred Members

Posts: 30
Joined: Jan 2014

Machine: Resmed s9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10
Humidifier: ResMed H5i Setting 27 C
CPAP Pressure: 10 EPR 2 cmH2O
CPAP Software: ResScan SleepyHead

Other Comments: have Moderately severe obstructive sleep apnea. Have Mac software to read info.for mac computer

Sex: Female
Location: Sydney Australia

Post: #5
RE: update form sleep doc visit help ?
(01-21-2014 07:18 AM)vsheline Wrote:  
(01-21-2014 03:23 AM)libbyau Wrote:  Average usage on from last night was
6.7 hours
pressure 14.0
Leak 4.8 L/min

Hi Libby,

Do you know whether it was the 90 percentile pressure that was 14?

Or was it the median pressure which was 14?

Did the doc explain why he was reducing your prescription pressure to 10?

If you actually need 14, the new prescription of 10 would be too low, especially if you ever sleep on your back.

Take care,
--- Vaughn

Hi Vaughn
Don't know it was bit to much to take in all at once and specially after he told me that I have stopped breading at night he did say how many but all I can remember it was lot. I am usually not bad when it comes to medical thing, but that made everything go over me head. Going to see the people that I have rented machine on saturday and they will try few different masks / pillows.
Libby
01-22-2014 02:52 AM
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DeepBreathing Offline
Wiki Editor
Moderators

Posts: 2,294
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #6
RE: update form sleep doc visit help ?
Because there can be a significance price difference between CPAP and APAP machines here, some of the clinics run through a process to see if a CPAP will do the trick. It's usually a week of titration on APAP (pretty wide open), followed by a week on CPAP. Then a couple of weeks trying to fine tune things. It may be that Libbyau's doctor is following a similar process.

However, prescribing a straight pressure of 10 when it's been averaging 14 on the APAP does seem a bit strange, unless that 14 was just a one-off.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


Bed

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
01-22-2014 04:03 AM
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