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worried
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Walking Dead Offline

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Posts: 5
Joined: Jul 2015

Machine: PR System One PRO Bi
Mask Type: Other
Mask Make & Model: Fitlife Full Cover
Humidifier: PR System One
CPAP Pressure: 25-21
CPAP Software: Not using software Other Software

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Sex: Male
Location:

Post: #1
worried
I'm worried my apnea is too severe to be treated by a machine. At the study my AHI was a 127! They gave me a phillips machine and maxed out the pressure at 25. It seems like the masks I have tried will not support such high pressure and i have huge leaks in the 85% range... my resp theropist seems to be getting annoyed with me asking for a different mask and/or finding me one that fits. I do have a large beard but he does not seem overly concerned by that. Whats the next step? I'm miserable
07-28-2015 03:49 PM
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PoolQ Offline

Advisory Members

Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #2
RE: worried
We really need more specific info on your machine, lets for now assume that it is data capable. Get the sleepyhead software so you can see what is going on and not have to guess. It's free and if you used the CPAP last night you have data there waiting for you to look at. Oh and you need a card reader also, I got mine for $8.

Get the data graphed and post it here, there are plenty of people that have been doing this for more than 10 years to help you. These systems take weeks to tune up, you will not die in the mean time, but lets get started and move you to better sleep.

Do you have your sleep study, what kind of apnea's did you have?
07-28-2015 04:02 PM
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Walking Dead Offline

Members

Posts: 5
Joined: Jul 2015

Machine: PR System One PRO Bi
Mask Type: Other
Mask Make & Model: Fitlife Full Cover
Humidifier: PR System One
CPAP Pressure: 25-21
CPAP Software: Not using software Other Software

Other Comments:

Sex: Male
Location:

Post: #3
RE: worried
I'm pretty sure my machine is data capable. it has an sd card and modem that links to the Dr. I have severe obstructive apnea.
07-28-2015 04:24 PM
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Sleeprider Offline
Wiki Editor
Advisory Members

Posts: 3,340
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #4
RE: worried
With very high pressures, you should have been prescribed a bilevel machine for greater comfort. Nasal pillows are surprisingly good at delivering higher pressures without leaks, and are unaffected by beards. You need to avoid mouth breathing which would allow leaks. For people with very stubborn obstructive apnea, there may be additional devices that can help keep the airway open, and sleep position may affect you as well. We could use more information about your machine and apnea issues.

______________________________________________
Organize your SleepyHead Data
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07-28-2015 04:24 PM
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Walking Dead Offline

Members

Posts: 5
Joined: Jul 2015

Machine: PR System One PRO Bi
Mask Type: Other
Mask Make & Model: Fitlife Full Cover
Humidifier: PR System One
CPAP Pressure: 25-21
CPAP Software: Not using software Other Software

Other Comments:

Sex: Male
Location:

Post: #5
RE: worried
I will get all the info tonight and post tomorrow as my home computer is down. My equip/therapy guy seems to think the pressure is too high for nose aparatis.
07-28-2015 04:33 PM
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kaiasgram Offline

Advisory Members

Posts: 241
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #6
RE: worried
(07-28-2015 04:33 PM)Walking Dead Wrote:  My equip/therapy guy seems to think the pressure is too high for nose aparatis.

That's the standard party line. Wink But many people who successfully use nasal pillows at high pressures know better.

And don't worry about that 127 AHI -- we see lots of folks with triple digit AHI's who do very well on PAP machines. I'm guessing that you're already on a bilevel machine if you're seeing pressure at 25 since most CPAP and APAP machines don't go higher than 20. Which would also mean that you have a fully data capable machine.

BTW you don't need to buy a card reader if your computer has a built-in SD card slot.
07-28-2015 05:24 PM
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Walking Dead Offline

Members

Posts: 5
Joined: Jul 2015

Machine: PR System One PRO Bi
Mask Type: Other
Mask Make & Model: Fitlife Full Cover
Humidifier: PR System One
CPAP Pressure: 25-21
CPAP Software: Not using software Other Software

Other Comments:

Sex: Male
Location:

Post: #7
RE: worried
Yes it is a BiPAP and thank you kaiasgram
07-28-2015 05:33 PM
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jingo Offline

Members

Posts: 8
Joined: Jul 2015

Machine: icon+
Mask Type: Nasal mask
Mask Make & Model: Resmed comfort gel
Humidifier: icon+
CPAP Pressure: 10
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #8
RE: worried
(07-28-2015 03:49 PM)Walking Dead Wrote:  I'm worried my apnea is too severe to be treated by a machine. At the study my AHI was a 127! They gave me a phillips machine and maxed out the pressure at 25. It seems like the masks I have tried will not support such high pressure and i have huge leaks in the 85% range... my resp theropist seems to be getting annoyed with me asking for a different mask and/or finding me one that fits. I do have a large beard but he does not seem overly concerned by that. Whats the next step? I'm miserable

When I started using cpap 15 years ago my setting was 19, now its 10. Once you use yours for about a month you may find things improve as far as comfort and fit. What seems like big leaks may still be fine. Even 80% efficiency can bring life changes through increased energy and weight loss. Hang in there in time youll work it out.
07-28-2015 07:27 PM
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Walking Dead Offline

Members

Posts: 5
Joined: Jul 2015

Machine: PR System One PRO Bi
Mask Type: Other
Mask Make & Model: Fitlife Full Cover
Humidifier: PR System One
CPAP Pressure: 25-21
CPAP Software: Not using software Other Software

Other Comments:

Sex: Male
Location:

Post: #9
RE: worried
Thanks Jingo.
well i just went and got a life fit full cover face mask. fingers crossed
(This post was last modified: 07-28-2015 07:42 PM by Walking Dead.)
07-28-2015 07:40 PM
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trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #10
RE: worried
Hi Walking Dead,
WELCOME! to the forum.!
Hang in there for more responses to your post and I wish you much success to you with your CPAP therapy, don't give up, sometimes it takes a bit 'till you get used to it.

trish6hundred
07-28-2015 08:01 PM
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