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  EPR (off) creates mask hissing noise!!!!
User Avatar Forum: Main Apnea Board Forum
Posted by: Jwicks1995 - Less than 1 minute ago - No Replies

-been on cpap for 5 weeks.
There may be a lot of missed info pls advise if needed. 

So I have been having problems with getting to very point of where i seem to fall asleep, and then waking up - feeling wide awake. From this moment on i will have this butterfly anxiety feeling in my stomach and find it difficult to get to sleep as i feel wide awake. Last night i did not sleep till 6am. (never happened prior to cpap)  This is a regular occurance. Many threads have stated that epr can cause this? So i turned my epr from 2 to 1. I then immediately noticed that there was increase air coming out of the small vent holes at the point where the tube connects to the mask. This is a feint hissing noise. And it is noticeable whereas before it was silent and this is frustrating. 

I will upload sleepyhead data shortly as i do not have access to sd card reader at current state in time but just need some advice as im not feeling good about this issue. 

The rare nights i feel good are nights that i manage to fall asleep quickly. Without the inital wakeup as i mentioned before. I will get around .8 ahi in these. Most nights i get around 1.5-2 and i wakeup frequently feeling wide awake.based on my stats from what i remember, the majority of my events are open airway events. 

Sorry for the lack of specific data. Will check and update when i have access to sleepyhead.

Issues: epr (off) noise/hiss.
Usual epr @ 2 - no noise. Many noticeable wakeups feeling wide awake. Clear airway apeas.

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  Rera sleep
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Posted by: Gary1of2 - 1 hour ago - No Replies

I seem to have the apena undercontrol . Buf the rera i dont.  Is there away to control rera

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  One week in but have cleaning questions.
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Posted by: Waldorbigbill - 1 hour ago - Replies (2)

I started about a week ago and I have been averaging 6-7 hours sleep with the mask on. I amazed how much better I feel everyday.  I have a question about the best way to clean my hose and mask and stuff because the more I research I get confused. Some people say do it every day some say do once a week. Also what do I clean with some say warm water other say use mild soap and yet others say use vinager wash. I'm more confused. Also I m going to ask about that cleaning machine what are thought I hear a lot of mix reviews on it. Thank you for your feed back.

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Question AHIs
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Posted by: Dreamless - 4 hours ago - Replies (7)

I've been using an ASV Bipap due to central apnea for the past 5 years.  I've been through 5 sleep therapists and 4 sleep labs and still having problems of reaching the 'target' AHI of 5.  I've noticed over the years that if I had mask air leaks that my summary reports show a more favorable AHI than when I don't have any mask leaks at all.  Does this sound possible ?  If I am having mask leaks I wouldn't be receiving proper 'therapy', correct ?  

Thank you in advance.  - Dreamless

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  FlashAir III w/ PR System 1 A-Flex
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Posted by: markn62 - 4 hours ago - Replies (2)

I recently replaced the stock SD card with a 16GB FlashAir III card (fat32), initialized it with FlashAir tool then overwrote the CONFIG file with that below.  All works well for a few hours, can run the xpap unit, saves to the card fine, can upload data with FlashPap that places data in Sleepyhead.  Rather randomly, usually sometime during the first night or when I stop the cpap, it writes to the card then reports a corrupt sd card and sometimes immediately goes into reformatting the card which it never finishes.  I take the card out and put in Win 10 box and all looks and works fine if it didn't try to reformat it. If it did reformat it some files on the card get wiped out or replaced with garbage. I've write/read surface scanned the card with two utilities, one being free port scanner the other minitool partition wizard and tests fine. Interestingly the xpap info screen reports only 17% free when it's actually 99% free.  Does this xpap require the card to be repartitioned smaller than 4GB and formatted as fat16?  I don't know what else to try.  As much time as I've spend this week trying to get stable operation I could have walked this card across the house every day for a year in less time. Frustrating!

[WLANSD]

ID=Cpap
DHCP_Enabled=YES

[Vendor]

CIPATH=/DCIM/100__TSB/FA000001.JPG
APPMODE=5
APPNAME=Cpap
APPSSID=TenX
APPNETWORKKEY=<secret>
LOCK=1
DNSMODE=1
APPAUTOTIME=0
UPLOAD=1
STA_RETRY_CT=0
HTTPDMODE=0
VERSION=FA9CAW3AW3.00.01
CID=02544d535731364740d5ae7179011101
PRODUCT=FlashAir
VENDOR=TOSHIBA
MASTERCODE=<secret>
COMMAND=fat cp /SD_WLAN/BCONFIG 1:/BCONFIG
COMMAND=fat cp /DCIM/100__TSB/FA000001.JPG 1:/FA000001.JPG

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  New to forum, and have a couple questions
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Posted by: skysnake - 8 hours ago - Replies (4)

Hello everyone,

I suffer from apnea, mostly when first falling asleep. Occasionally I wake gasping in the middle of the night, but almost every night I seem to wake up from that "twilight sleep" when first going to bed for the night. I did an in-lab sleep study last Summer and was told I did NOT have sleep apnea. It was one of the few nights I didn't have the "gasping while falling asleep" phenomenon. My O2 level during the 3 hours, 17 minutes I slept went to 90 percent. It was not a good night's sleep.

I just made another follow-up appointment at the UT Southwestern sleep lab. I've got to figure out a solution to this. I'm almost too scared to try to fall asleep at night now.

Anyone have a similar experience or have any ideas. I'd like to be armed with information for my upcoming appointment.

Thanks a bunch,
Chris

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  Sudden daytime sleepiness
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Posted by: JackieW - 9 hours ago - Replies (5)

I have been using my CPAP for over 5 years, 100% compliant. It is a miracle device! But, suddenly, in the last few weeks, I am plagued by daytime sleepiness, to the point of I've fallen asleep at work a few times. My concentration is off and I just feel exhausted. I still sleep all night, and my data doesn't show any major events...really nothing that is different from the past year. I also have felt like I'm fighting a cold, but for a month or more, so I know it's not an illness. I do use humidification, but I am OCD about cleanliness for my mask, tubing and humidifier.

So, why am I suddenly fighting fatigue and struggling with daytime sleepiness?

Any insight would be appreciated.

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  4 days in
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Posted by: SDC Painter - 10 hours ago - Replies (7)

Hey everyone, my name is Dalton. I am in my late 20s and just started CPAP treatment for what i would call moderate sleep apnea that I've had for 8-10 years.  I'd like to first thank everyone on this forum for putting together a wealth of information on this subject and it has been incredibly helpful to me and I'm sure many other people. 

Late last week I purchased a secondhand machine with humidifier and new mask. Unfortunately even though I recognize just how vital a sleep study is to diagnosing this, I had to forgo that part of the process as there is no way I can possibly afford to have one done, and no way for me to afford a new machine. I am calling this a "proof of concept" for me and hope to be able to afford a sleep study within a year as well as securing a new machine, preferably with auto-pap function. Basically, it was getting so severe that it scared me to be honest so hopefully this will get me by while I save up. Money can get incredibly tight for a small business owner. 

I have no base-line since I did not have a sleep study but my first night trying it I slept roughly 11 hours with an AHI of 18 with 100% fit. This number has decreased to 10.2, 7.7, and last night it was 2.5. For at least 5 years I have woken up nearly every single hour all night long and the first night I slept roughly 2 hours at a time, the second about 3 hours, and the third 5 hours, but tonight went backwards for the first time with me waking up every 2.5 hours or so. I feel much more rested but this struck me as odd. I would love to be able to sleep through the entire night for a change and I'm hoping with more use I will continue to improve. 

My biggest complaints so far is the swallowing of air and the first 2 nights waking up periodically with an incredibly dry throat. The mask itself doesn't really bother me and was easy enough to get accustomed to since I'm already used to wearing a respirator every day for my job. The air pressure seemed very harsh at 9cm and then adjusted to my current 12cm but with the ramp feature and c-flex I was able to fall asleep and upon waking up, now the 12cm is hardly noticeable to me and even had me doubting that it was working correctly a few times. The first 3 nights my sinuses felt uncomfortable when I woke up, but I think that is subsiding as well. 

Obviously I'm just beginning this journey but I already feel that it was a great decision and feel so relaxed now when I'm going to sleep. I was worried because It seems that most people hate the treatment, at least at first, but i haven't really had any major issues with it. I can only assume that this is because I went into it on my own will as opposed to someone telling me I have to do it, and I've Been optimistic the entire time. 

I find it fascinating to look at the data every morning at a glance on dream mapper and then in more detail with sleepy head later when I get home. 

I guess that's all. hopefully nothing I've done jumps out at anyone as being stupid because I've tried to go about it in the smartest way that I can.

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Gross Need opinions - am I looking at this wrong?
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Posted by: jrwill228 - Today, 09:58 AM - Replies (11)

Was on APAP some 10 years ago (discontinued) and have now since wound up going to ENT for issues I won't go into (allergy stuff)... he is apparently a "board certified sleep apnea md" or whatever its called and "suggested" that with the symptoms I am having, a sleep study would be in order.
Had the first sleep study done and was dx'ed with severe sleep apnea (mostly central sleep apnea).  So I went to the second sleep study. They recommended a setting of CPAP at 8 (which isn't that much), with a Mirage FX nose mask (wasn't given another choice).  Went to the DME supplier (who is an RT) to get the equipment.  She was surprised that the rx said fixed pressure at 8 (I guess she expected APAP setting for some reason).  FYI.... it took a month after the second sleep study to get the MD office to send the rx to DME.  I suspect the "nurse" did it and not the MD and she just followed the study notes, but I can't prove this.

So I leave the DME with a DreamStation (with humidifier) with a DreamWare nasal mask and use it for about 3 or 4 nights.  Each morning I wake up, I feel real tired and like I've been beaten while I slept.  I actually feel worse than before I started treatment.  I called the DME and had them pull/download the data from the machine, and I'm apparently still pulling AHI's of 31 or better with multiple CA and OC and hypopneas in the 110+ range.  The RT at the DME said that the machine at this setting was, "completely ineffective", and that I should contact my MD.

So I went to the MD (where I also get my allergy shots) and told them I needed to talk to someone about getting the pressures adjusted on my machine.  I was told the MD's nurse was at the other office and that she would call me back.  I got a call later that day and I was told that the next available appt for a "CPAP compliance appt" was in about a month.  I reminded them that the current setting was "completely ineffective" and needed to be changed to be of any use.  They still insisted the next appt was in a month.

I called the DME back and it was "suggested" I find an MD that had more experience with CPAP and sleep apnea patients and could understand what I was saying to them.  

So here I sit with a machine that is doing me no good even if I use it, that the insurance will pull if I don't use it for at least 21 days a month - EVEN AFTER THEY WERE TOLD that the setting were ineffective.

So even if I get another md, I have to get another authorization and I have to turn this equipment back in and get new equipment.

Am I missing something here or is this the normal way these doctors operate?  I'm getting absolutely no assistance from the DME company or the MD office.

Any suggestions other than find another MD?  I've been dealing with this "disease" for months and I am so very tired of it and the BS I've had to go through just to get treatment.

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  ResMed AirSense 10 whines
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Posted by: greensled - Today, 08:53 AM - Replies (1)

My AirSense 10 started making this whining noise last night. Am I in need of a replacement? I changed the filter, wiped the silicone inside the machine, to no avail.
My husband and I couldn't sleep because it was making such a racket, so I took it off.
Obviously someone else had the same problem I did because he captured it and put it on YouTube. I just can't find his post.

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