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  Mostly Centrals
User Avatar Forum: Main Apnea Board Forum
Posted by: zzzzk - 6 hours ago - Replies (1)

Hello,

I finally have an resmed auto vpap machine.  I have an ahi of 17-27 each night which are 99% centrals.  I've only been on it 8 days.  I can only seem to usually sleep on my side, with a full face mask.  "the resmed f10"  I often wake up with a very dry mouth (I assume breathing with my mouth a lot).  I am happy because the obstructive and hypopnea are now very low or gone, but the centrals are high.  Also, I still can only sleep about 1-2 hours at a time.  Sometimes 3 hours, but rarely.  

Should I be concerned about the centrals?  Looks like I'm not breathing on average 15-45 seconds.  Any suggestions?

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  Starting AutoPAP
User Avatar Forum: Main Apnea Board Forum
Posted by: spondy - 8 hours ago - Replies (1)

I have sleep apnea and ankylosing spondylitis with reduced chest expansion.  When I did the home sleep study, I had to move the chest band down onto my stomach because I wasn't expanding my chest enough to trigger the "I'm still breathing" sensor. 

Anyway, most of the time the apnea is not too bad--sats get down to 92% at night, but every once in a while I'll have a really bad episode with sats down to 74% and respiratory rates down to 4/min (when I get up and go into the bathroom just after one of these, my face will be very white).

The problem is that I have trouble breathing when lying down, and can't stand having a ceiling fan or other fan blowing at me because I feel like it's preventing me from exhaling...and I also have bad nasal allergies (steroid sprays cause sinus infections, so I can't use them) and claustrophobia.  I generally sleep on my side;  lying on my back is pretty much impossible.

Any hints on how to cope with sleep apnea treatment?

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  Camping with no power
User Avatar Forum: Main Apnea Board Forum
Posted by: JoseeB - 11 hours ago - Replies (2)

Hi folks... I was reading on here a while back on how to use the cpap when there is no power... it mentioned to get a converter for my Resmed and a battery.. I will be camping for 3 nights where electricity won’t be available so what kind of battery should I get.. I don’t want to spend tons of money Smile

Thanks for your help !!

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Smile Many months ago I asked her for tips on how I could optimise my CPAP therapy.
User Avatar Forum: Main Apnea Board Forum
Posted by: Determinism - Yesterday, 06:57 PM - Replies (3)

Here is the thread I posted - http://www.apneaboard.com/forums/Thread-...-better-it. Most of you went out of your way to help and provided feedback. I incorporated those changes and today I just exported the data to sleepyhead and couldn't be more happier with the results Smile

   

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  Firmware Changes ResMed10
User Avatar Forum: Main Apnea Board Forum
Posted by: theMezz - Yesterday, 12:21 PM - Replies (4)

I picked up a new ResMed 10. 

my 1st ResMed10  firmware is SW 556-0204
my 2nd ResMed10 firmware is SW 567-0306 

My questions are

1) Anyone know what the difference is between the two?  (can't find via web searches)

2) Are firmware updates suppose to be pushed to out ResMed's and applied automatically? 

Anyone know?

thank you

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Question Increased AHI due to weight loss
User Avatar Forum: Main Apnea Board Forum
Posted by: PhrankieF - Yesterday, 07:37 AM - Replies (4)

Curious if anyone else has had this happen.
In the process of loosing weight, on the Atkins low carb diet, my AHI has increased. I have lost 15 lbs. and AHI has increased into the 7's, so far.
Before the diet I was consistently below 5, usually between 2 & 4, with an occasional reading in the 1's. I was under the impression that loosing weight  AHI decreases. I have an appointment with my sleep Dr. in August, but thought I would check the forum beforehand. Personal experiences or opinions would be greatly appreciated. Thankyou.

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  Diagnosed with Central Sleep Apnea
User Avatar Forum: Main Apnea Board Forum
Posted by: apneabloke - 07-14-2018, 11:10 PM - Replies (7)

Hi all

In December last year after realising that waking up tired every day and waking up anywhere from 3-7x a night every night for probably 8-10 years wasn't normal, I got referred for a sleep study.

I had a home sleep study that diagnosed Central Sleep Apnea with average AHI of 35+/hour. After trying an auto adjusting CPAP machine for a couple of nights and literally being woken up every 2 mins, the specialist referred me for an in hospital study. The hospital study concluded the same results as the home study.

My questions and issues are as follows:

1) I've had at least 4 appointments with the specialist since December that last about 5 mins where there's no discussion around investigating possible causes of the central sleep apnea, with the exception of having had an MRI to ensure I didn't have a brain tumour, which thankfully I didn't. Quick research shows there are multiple causes for central sleep apnea. Is it common not to just focus on treatment of CSA without investigating the possible root cause of it?

2) With the new machine I've been trialling the past week, it is set to fixed pressure, which starts at 4cm/hour and over 30 mins ramps up to 8cm/hr based on hospital recommendations, I do eventually get off to sleep, but only last about 2-3 hours at the most then wake up and my nose is sore and my heart is thumping out of my chest as I try to keep up with the machine. My AHI count is still 16/hour. I end up after 2-3 hours of using the machine just turning it off and going without the rest of the night. This is not helped by the fact I had a broken nose as a kid and can't even comfortably where sunglasses - despite corrective surgery 20+ years ago). At best I might have to try other masks but im not convinced CPAP is going to work for me.

3) I've heard from quite a few people with obstructive sleep apnea that they've never been able to have a good night sleep with a CPAP machine and I don't imagine i'll ever get close to having an 8 hour uninterrupted sleep with one, no matter how they configure it. Credit to anybody who can get a proper sleep with these things. Based on others experience, what are my likely alternative treatment options? I've read there are a couple of drugs that can be prescribed - cetazolamide (Diamox) or theophylline (Theo-24, Theochron) and possibly others. Anybody been prescribed these and do they work and what side effects do you get? I'm also wondering if an oxygen tank might be the go, as I seemed to sleep the best with this in hospital. 

Any advice from other CSA sufferers based on own experience would be appreciated.

Thanks 
Apneabloke

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  Headgear Strap adjustment reference marking
User Avatar Forum: Main Apnea Board Forum
Posted by: zzzZorro - 07-14-2018, 05:07 PM - Replies (6)

Thought this may be helpful to others.  Getting my mask tension just right (not too tight and still loose enough to seal) can be a 'bear', especially with a full face mask.  In the night a strap popped loose at the velcro adjustment and it took a lot of tinkering before it would work- then it was still not good as it was before.  The next day I spent the time while awake and alert to find where the 'sweet spot' was.  Using a needle and red thread, at the end of each adjustment tab (on the strap-not fastening the two together) A through-through stitch was made on each of the four headgear straps.  Even though from time to time it has to be changed slightly to obtain a good seal (fatter/skinnier cheeks or gremlins) the reference is always there.  If you cannot recall any changes you have made, just refer to the opposite strap and duplicate it.
Worst sleep disruption is a moment to turn the night light on/off and you are 'good to go' Bigwink

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Angry DME run around...4 mo and still no mask, what to do?!
User Avatar Forum: Main Apnea Board Forum
Posted by: Azscooterbird - 07-14-2018, 04:50 PM - Replies (21)

I am exasperated with my DME (a nationwide co) who has yet to provide me with a ffm despite recieving a blanket purchase order in May, from my Dr, numerous phone calls (which are NEVER returned), and finaly an onsite visit. I live outside the Tucson metro area, so visiting the DME office is an hours drive.
I am new to CPAP therapy, and I was warned that the DME's here had TERRIBLE  customer service. But I finally gave up and called the BCBS plan rep in Texas and he said just order it online and we'll bill you for 20%.
I have seen the paperwork my Drs office has sent the DME over the past 4 mo., and now, after ghost orders that were never filled, cancelled Resp Therp appointments, vague promises to resolve this issue, etc. they now want a "more specific prescription" from my Dr. We are back to square one... I can request another(duplicate) prescription from my Dr, but normaly (the Dr said) the DME supplies the mask and then they inform the Dr to request/approve the prescription.
Is there an alternative to this rigamaroll or is this pretty typical?

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  Flow Rate [mine too shallow?]
User Avatar Forum: Main Apnea Board Forum
Posted by: trance - 07-14-2018, 01:25 PM - Replies (4)

               
My flow rate often looks shallow (if that is the right term?)

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