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+--- Thread: [Treatment] no sleep (/Thread-Treatment-no-sleep)
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no sleep - calliopy2 - 12-11-2015
After reading many posts, there appears to be a group of people that feel as I do. I wonder what the percentage is compared to the total population? My story:
I was diagnosed with sleep and recd a phillips respironics System one Hid DOM auto machine with humidifier. They came to my home and provided instructions and setup. That was the last time I had 8 hours of sleep. I have changed masks, nasal pillows, changed humidifier settings tubing, turned of ramp, turned on ramp, adjusted ramp numbers but still no help. I have taken tubing and masks upon discharge from hospital recently and used on my machine. Hospital therapy not much different than home therapy. I constantly adjust mask and find I need some air leak around nose to feel like I have enough air. I have slept a few hours when I am over tired but always am up at 3am pulling mask off. I feel that I cannot get enough air to breathe. I have called the supplier but not getting a response. Talked with my MD who nods and says " it just takes time". Consequently, anytime I am in the recliner, I fall asleep for 2-4 hours screwing up my sleep pattern. I gave myself 6 months to acclimate . It is past 6 months and I have been unable to sleep with the machine on. sorry for the verbose missive! Can anyone help? I am close to tossing this torture device in the trash! No wonder there is a hgih number of non compliant patients!
RE: no sleep - Crimson Nape - 12-11-2015
A lot of people, on this forum, have reported a feeling of suffocation until they get their pressure setting to at least 7 or higher. Since my therapy was started at a higher pressure than 7, I haven't experienced your problem. So please regard my 2 cents as just "parroting" what I've read.
RE: no sleep - DWaldman - 12-11-2015
If your CPAP pressure is truly 5, you might not be getting enough air to feel comfortable. Not familiar with your machine as you describe, perhaps others on the list can elaborate. If it is truly an auto machine and is set up as straight CPAP, you might benefit from switching it to auto mode. I will let the more experianced members chime in. Just know, that you can get used to this therapy, it can be comfortable, and you will feel better when you do. There are many methods to use to get used to it, such as using it while awake, etc. I found that it was largely a matter of attitude, A positive attitude will see you through to a good outcome, a negative attitude will doom you to failure.
RE: no sleep - OpalRose - 12-11-2015
It sounds as if you should start to take control of your therapy instead of depending on DME and Docs.
First download the clinicians manual and Sleepyhead software. Both links at top of page.
When you have done that, you can send us an attachment of a typical night, then we can take a look.
Just a guess, your start pressure is too low, and you may be experiencing mask leaks.
If you have an APAP, why aren't you using the auto mode? We can help if you do your part, it's been six months. We can advise if we can see your data.
RE: no sleep - Mark Douglas - 12-11-2015
(12-11-2015, 12:28 PM)OpalRose Wrote: It sounds as if you should start to take control of your therapy instead of depending on DME and Docs.What she said.
First download the clinicians manual and Sleepyhead software. Both links at top of page.
When you have done that, you can send us an attachment of a typical night, then we can take a look.
Just a guess, your start pressure is too low, and you may be experiencing mask leaks.
If you have an APAP, why aren't you using the auto mode? We can help if you do your part, it's been six months. We can advise if we can see your data.
Also if you have ramp enabled I think every time you shut machine off it restars the ramp and that could be exacerbating your problems.
RE: no sleep - 49er - 12-11-2015
Hi Calliopy,
Welcome to the forum.
There is actually good news even though you're probably wondering if I have lost my mind.
There is room for optimizing your therapy as the reason you are probably feeling suffocation as your pressure is 5. I wouldn't last one second on that pressure, much less 6 months. You are a trooper for putting up with that.Anyway, it sounds like it needs to be raised and possibly switched to the auto mode. You may find you prefer a straight CPAP pressure but switching to the auto mode is important to nail down either what the range or straight pressure should be.
So if you could please follow previous advice to download sleepyhead and post a screen shot for examination by the forum, that would be helpful. And don't forget to download the manual so you can change the pressure.
Hang in there, we'll get your situation worked out.
49er
RE: no sleep - SideSleeper - 12-11-2015
I have the same machine and am on a fixed pressure of 11. When the machine was set up the ramp was on. Following advice of those on this forum I turned it off--the initial blast at 11 takes about two breaths to adjust to then all is good. I had to be up to about 8 on the ramp before I could relax a little.
RE: no sleep - cate1898 - 12-11-2015
Welcome to ApneaBoard Caliopy2! Hope you get everything sorted out really soon! Then hopefully you will start to feel better and more rested.
RE: no sleep - PoolQ - 12-12-2015
5 is very low, personally anything below 6 and only when I was relaxed made me feel like I was not getting enough air. I can't see ramp doing much because it starts at 4 and ramps to 5.
My guess is that at 5 you really are not getting enough air
RE: no sleep - JudgeMental - 12-12-2015
It sounds to me like you did not get a quality sleep study. And perhaps a very lack luster DME effort.
Was it a home study or administered in a qualified sleep study situation?
4 or 5 pressure isn't much more then normal lung assisted breathing and at those pressures the addition of a mask on your face is definitely going to cause a feeling of suffocation.