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60 Days -Lesson Learned - 0rangebear - 03-07-2016
I just hit my 60th Night on therapy and would like to say thank you to the forum-I was very frustrated when I found the forum; googling for some help.
Here are my lessons learned from my first two posts:
My first post was: 01-25-2016, Reason Frustration
On a scale of 0-10 for finding help/answers
Hospital-0
Allergy & Asthma Centers-0
Sleep Study/Sleep Center 1
DMEprovider-1
Respiratory Thereapist-2
Primary Car Doctor-3
Encocronologist-3
ENT-5
People I know on CPAP therapy-7
Apnea Board-10
Other CPAP forums-8
Best advice-OpalRose --
First, order the Provider (Clinicians Manual) for your machine. See link top of page (CPAP Setup Manuals.)
Then download the free Sleepyhead Software, see top of page also.
Once you download your data from your SD card to Sleepyhead, we will be able to help and advise you.
Second post was 02-13-2016, 08:18 PM Reason- Dehydrated
Lesson learned
Eliminating leaks to reduce total Air Flow
Run humidifier at highest tolerable level
The body adjust in time like any new exercise or injury 4-6 weeks
Tonged and Month position is important
Best advice-DariaVader
Tongue Suck Technique for prevention of mouth breathing: •Place your tongue behind your front teeth on the roof of your mouth
•let your tongue fill the space between the upper molars
First 60 days
Felt like CRAP for the first 6 weeks
Last two weeks noticeable improvement-
Can't say I feel better than when I started but at lease I know longer feel worse on the days I use the Machine
RE: 60 Days -Lesson Learned - OpalRose - 03-07-2016
Orangebear,
Thanks for the feedback and to let us know how you are doing.
Just realize that some feel improvement right from the start, and others may take several months to tweak everything and to feel good. Also, you will have good days and a few bad days along the way. Just don't give up, it's a journey.
RE: 60 Days -Lesson Learned - Rob S - 03-07-2016
congrats on 60 day's and no longer feeling worse with treatment.
took me about the same amount of time. hope you continue to see improvements.
RE: 60 Days -Lesson Learned - 0rangebear - 03-07-2016
(03-07-2016, 05:33 PM)Rob S Wrote: congrats on 60 day's and no longer feeling worse with treatment.
took me about the same amount of time. hope you continue to see improvements.
I see you've been doing it a few months longer, do you find it makes you feel better now?
Do you do the therapy every night?
RE: 60 Days -Lesson Learned - Rob S - 03-07-2016
(03-07-2016, 07:18 PM)0rangebear Wrote:i think in general i'm feeling better, improvements might be slow and steady at this point and because of that maybe less noticeable? i sleep much more now but still fragmented(2-4 hour segments, 2-6 times a day). a big plus is i'm no longer terrified to fall asleep and actually look forward to putting my mask on and sleeping as much as i possibly can.(03-07-2016, 05:33 PM)Rob S Wrote: congrats on 60 day's and no longer feeling worse with treatment.
took me about the same amount of time. hope you continue to see improvements.
I see you've been doing it a few months longer, do you find it makes you feel better now?
Do you do the therapy every night?
i use my machine every time i sleep the entire time. the 1 time i was stranded away from home for a night (car broke down) i chose not to sleep at all. the fear of not breathing, like before i started treatment was just to strong.
RE: 60 Days -Lesson Learned - trish6hundred - 03-07-2016
Hi 0rangebear,
It's great to hear that you are noticing improvements with CPAP therapy, keep up the good work.
RE: 60 Days -Lesson Learned - 0rangebear - 03-07-2016
(03-07-2016, 07:39 PM)Rob S Wrote:(03-07-2016, 07:18 PM)0rangebear Wrote:i think in general i'm feeling better, improvements might be slow and steady at this point and because of that maybe less noticeable? i sleep much more now but still fragmented(2-4 hour segments, 2-6 times a day). a big plus is i'm no longer terrified to fall asleep and actually look forward to putting my mask on and sleeping as much as i possibly can.(03-07-2016, 05:33 PM)Rob S Wrote: congrats on 60 day's and no longer feeling worse with treatment.
took me about the same amount of time. hope you continue to see improvements.
I see you've been doing it a few months longer, do you find it makes you feel better now?
Do you do the therapy every night?
i use my machine every time i sleep the entire time. the 1 time i was stranded away from home for a night (car broke down) i chose not to sleep at all. the fear of not breathing, like before i started treatment was just to strong.
I know it is none of my business but why were you terrified to fall asleep?
RE: 60 Days -Lesson Learned - Rob S - 03-07-2016
(03-07-2016, 10:41 PM)0rangebear Wrote: I know it is none of my business but why were you terrified to fall asleep?
because i always woke up with a full blown panic attack, sweating and gasping for air.
RE: 60 Days -Lesson Learned - 0rangebear - 03-08-2016
(03-07-2016, 10:47 PM)Rob S Wrote:(03-07-2016, 10:41 PM)0rangebear Wrote: I know it is none of my business but why were you terrified to fall asleep?
because i always woke up with a full blown panic attack, sweating and gasping for air.
That would be terrifying!
, I hope the therapy has eliminated that experience. No wonder you use it every night. That would be a hugh motivator.RE: 60 Days -Lesson Learned - Rob S - 03-08-2016
it has. current 30 day average AHI 0.5 all hypopnea and all just barely long enough to be flagged.