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+--- Thread: Clueless and Needing help (/Thread-Clueless-and-Needing-help)
RE: Clueless and Needing help - Sleeprider - 12-10-2019
He is capable of breathing normally, but when things go bad, they go really bad. Why? We are saying this is a positional apnea, the apnea just goes crazy once pressure goes over 10.0. I don't actually think it will work, bu let's try a maximum pressure of 10.0 with EPR 3 and see where it goes. I have never really seen such persistent obstructive apnea with the use of a collar or eliminator.
RE: Clueless and Needing help - jpmogler - 12-10-2019
That is 28 events. He is going to go get the data either tomorrow or Thursday but I’m thinking at this point it really doesn’t make a lot of difference it appears as though the machine simply is not working for him.
He does not have any other breathing issues or anything like that.
Assuming that it is determined that the machine is not what he needs does that mean he needs to get back to the doctor ... at this point they have Really cared too much about what the results are saying. He has an appointment scheduled for 19 December but is also scheduled to leave for his winter home
This will obviously complicate things even more because he will be in Florida and his regular doctor is in Illinois. Is there a way to try other sleep machines without a doctors orders?
RE: Clueless and Needing help - DeepBreathing - 12-10-2019
If it's 28 events in an 8 hour sleep session, that's an AHI of 3.5 which is reasonably good. Let's see the chart for that night to see what might be different.
Re alternative avenues, perhaps one of the American members can advise on that.
RE: Clueless and Needing help - jpmogler - 12-10-2019
Unfortunately that is 28 events/hour
RE: Clueless and Needing help - jpmogler - 12-10-2019
(12-10-2019, 09:04 PM)jpmogler Wrote: Unfortunately that is 28 events/hour
I can see now that I answered the question wrong .... sorry about that ...
RE: Clueless and Needing help - Gideon - 12-11-2019
A NY chance you can video over night. That may identify what is happening.
Have you tried a taller collar?
RE: Clueless and Needing help - jpmogler - 12-11-2019
(12-10-2019, 08:12 PM)Sleeprider Wrote: He is capable of breathing normally, but when things go bad, they go really bad. Why? We are saying this is a positional apnea, the apnea just goes crazy once pressure goes over 10.0. I don't actually think it will work, bu let's try a maximum pressure of 10.0 with EPR 3 and see where it goes. I have never really seen such persistent obstructive apnea with the use of a collar or eliminator.For some reason I just saw this. Will try that tonight. We did try flat 7 once per techs suggestion but will try this. He brought his SD card to OfficeMax today and they were not able to transfer the data immediately so he left the card there so we will not have charts of this first night but we can try it for a couple nights once he gets the card back tomorrow. Tomorrow I will also have data from the past week that we can look at. Thanks again for trying!!!
(12-11-2019, 07:36 AM)bonjour Wrote: A NY chance you can video over night. That may identify what is happening.Are you asking if we could have a video of it or if I could just watch him sleep from a distance? I would be able to FaceTime him as he falls asleep just to observe if he does any chin tuck in or anything like that. The only two collars we have tried are the wallgreens collar in the eliminator collar.
Have you tried a taller collar?
RE: Clueless and Needing help - jpmogler - 12-11-2019
(12-10-2019, 08:12 PM)Sleeprider Wrote: He is capable of breathing normally, but when things go bad, they go really bad. Why? We are saying this is a positional apnea, the apnea just goes crazy once pressure goes over 10.0. I don't actually think it will work, bu let's try a maximum pressure of 10.0 with EPR 3 and see where it goes. I have never really seen such persistent obstructive apnea with the use of a collar or eliminator.
What should minimum be set at?
RE: Clueless and Needing help - Gideon - 12-11-2019
(12-11-2019, 09:18 PM)jpmogler Wrote: [quote pid='323255' dateline='1576067818']Are you asking if we could have a video of it or if I could just watch him sleep from a distance? I would be able to FaceTime him as he falls asleep just to observe if he does any chin tuck in or anything like that. The only two collars we have tried are the wallgreens collar in the eliminator collar.
A NY chance you can video over night. That may identify what is happening.
Have you tried a taller collar?
[/quote]
Looking for the chin tucking under the collar. The observation needs to be for the whole night and then correlate the OA Clusters to what is occurring on the camera. While we don't need the whole night you need to see what's happening when the clusters occur and that info will not be available until the next day.
RE: Clueless and Needing help - Sleeprider - 12-11-2019
(12-11-2019, 09:26 PM)jpmogler Wrote:(12-10-2019, 08:12 PM)Sleeprider Wrote: He is capable of breathing normally, but when things go bad, they go really bad. Why? We are saying this is a positional apnea, the apnea just goes crazy once pressure goes over 10.0. I don't actually think it will work, bu let's try a maximum pressure of 10.0 with EPR 3 and see where it goes. I have never really seen such persistent obstructive apnea with the use of a collar or eliminator.
What should minimum be set at?
It really doesn't matter as pressure rises to the top of what is set when the centrals start. Stay with 6 or 7 as a minimum. My theory is that if he has problem exhaling against higher pressure, it results in respiratory stacking which mimics obstructive apnea. I could be full of it, but have seen it before on rare occasions.