• 2/2018: a chiropractor cracked my neck so hard I felt nauseous, then back of neck pain/burning for 3 months with difficulty to sleep, then went away.
  
• 4/18: acid reflux was coming with vengeance, did upper GI endoscopy and found mild gastritis
  
• 8/18: STARTED WAKING UP THROUGH THE NIGHT, NO REASON WHY, MOSTLY WHEN I AM FALLING ASLEEP OR WAS DREAMING. DON'T WAKE UP SUFFOCATING, OR NOT BREATHING. JUST GET A STRONG SIGNAL OF "ALERTNESS" AND MY BRAIN WAKES UP. I COULD SLEEP FAST ENOUGH AGAIN MOST OF TIMES. CLOUDY BRAIN, NOT ABLE TO FOCUS THROUGH THE DAY NOT ABLE TO WORK(PROGRAMMING).
  
• 11/2018: sleep study showing : 61% sleep efficency
                                                  23 arousals/hr
                                                  13 arousals/r apnea/hypopnea
                                                  6.5 RERAs/hr
                                                  REM & NREM  AHI: 17/hr
                                                  REM AHI: 43/hr
  
• 1/19: fast forward trying to figure it out( dust, air purifier, noise machine, supplements, etc..) did a sleep study showed AHI 17 with hypopneas and RERAs.
  
• 2/19: tried CPAP and did not stop the awakenings.
  
• 3/19: tried bi-level machine(advanced CPAP) did not do anything. Still waking up, still fragmented sleep still zombie.
  
• 4/19: found famous NYC doctor about Upper airway resistance, and performed a surgery of UPPP, removed part of epiglottis, and tonsils. 3 months later no improvement.
  
• 7/19: tried MAD( mandibular advancement device) no improvement.
  
• 8/19: second surgery of partial glossectomy( remove part of base of tongue). Very minimal improvement of the severity of zombiness through the day but no effect on multiple awakenings.
  
• 11/19: home sleep study:
  The patient spent 16.7% in REM.The time in the supine position (wake and sleep) was 3 hrs. 15 minThe time in the non-supine position was N/A minutes.pRDI: 12.2 (REM: 12.1 ; NREM: 12.2)pAHI: 5.7 (REM: 6 ; NREM: 5.6)pRDI supine: 14.7pAHI supine: 5.9Oxygen Desaturation Events (ODI%): 5.5ODI% (Supine): 5.3RECOMMENDATIONSSaturation < 90%: 0.1 minutesSaturation < 88%: minutesSaturation < 80%: 0 minutesSaturation < 70%: 0 minutesLowest Oxygen Saturation: 84%Average Desaturation: 93.8%Average Oxygen Saturation: 97%The minimal oxygen saturation was 84%. Time below 88% was 0 minutes.Min pulse rate 33 bpm. Mean pulse rate during sleep was 61 bpm. Max pulse rate 117 bpm.Mild Obstructive Sleep apnea(OSA)Mild Oxygen Desaturation
  
• 11/19: tried a nasal stent( a wire mesh to keep soft palate open). Didn't do anything to my sleep.
  
• 9/19: sleep endoscopy showed no collapse this time ( had total of 3 sleep endoscopies which doctor said my issue happen in REM and sleep endoscopy use anesthesia which can not mimic REM sleep) so the doctor said nothing more can be done!
  
• 1/20: I purchased a fiber-optic endoscope to try to sleep with it and see what is actually happening, I could only almost fall asleep with it but not completely sleep, in those trials it showed: my arytnoids spasming, and tongue partially closing airway, and my throat getting "an electric shock as soon as I fall asleep which in the video looks like a sudden twitch in all my throat, tongue muscles. I Showed the video to my doctor so he decided to do a 3rd surgery set. ( video link is attached to this email).
  
• 2/20: 3rd surgery of base of the tongue advancement, hyoid bone suspension, and shaving of excess tissue on arytnoids.
  
• 3/20: Very light improvement, I'm still waking up through the night and getting on/off days.
  

(04-09-2020, 09:56 PM)sleepyzzz Wrote: i tried my Aircurve 10 VAUTO today, 2 months after the surgery, and it makes my "jerk" happen more.
I think the jerk is even the arytenoids or the last spasm as in this video: https://youtu.be/2qXF8oxJfVs

I am attaching also a sleepyhead screenshot to show you the jerk in the graph as soon as i drifted to sleep which woke me up and i stopped the machine , the arytenoids spasm or my whole throat spasm, and there is an involontary quick inhale as in 2nd graph attached.

if you want to read what i am talking about and maybe give an opinion, please refer to my ( still with no comments yet i posted last week ) :
http://www.apneaboard.com/forums/Thread-Can-someone-tell-me-if-they-saw-this-before-or-know-what-is-this

Why is the machine increasing my jerks? without it i seem to be able to sleep little for few hours before the jerks start happenig with a vengence ( or the apnea i am not sure which now..)

Advice is appreciated
thanks

(04-10-2020, 06:32 AM)crowtor Wrote: Hi

I also have laryngospasms at night when falling asleep, to combat the situation I have setup my Bipap as follows:

Easy breathe : off
Trigger : Very high
Cycle : high
rise time 500ms
ps : atleast 5
mask type : pediatric (this makes it even more sensitive)

Unfortunately theres no specific medication for this. A complete solution would be a tracheotomy.
I do take Magnesium orotate 1200mg daily on top of Cetirizine 10mg at night, Dunno if that helps much though.

Also I noticed that my body's reaction to a laryngospasm is very severe and if it happens i top it off with 2mg of propranolol to calm my racing heart after.

(04-10-2020, 06:32 AM)crowtor Wrote: Hi

I also have laryngospasms at night when falling asleep, to combat the situation I have setup my Bipap as follows:

Easy breathe : off
Trigger : Very high
Cycle : high
rise time 500ms
ps : atleast 5
mask type : pediatric (this makes it even more sensitive)

Unfortunately theres no specific medication for this. A complete solution would be a tracheotomy.
I do take Magnesium orotate 1200mg daily on top of Cetirizine 10mg at night, Dunno if that helps much though.

Also I noticed that my body's reaction to a laryngospasm is very severe and if it happens i top it off with 2mg of propranolol to calm my racing heart after.