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Update - Scared - 04-15-2015
Hello all, thank you all for your passed comments.
If you remember I posted last week and said I would let you know the outcome, from my rep visit,. These are my readings ( in french) sorry cant translate!!!!
number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.
I have been given a Philips respironics system 1 remstar auto A-flex set at 4-10 with a mask that goes over my nose and mouth i couldn't cope with just the nose mask as I have a bit of a cold, I asked for the humidifier but he didn't have the correct one with him so he said he will pop it in the post as my throat get awfully dry and I gave a cough dont know if it is the machine or if its my cold thats causing this. I seem to be ok and I can sleep in it since the first night although I do wake up about 3 times and do find it a pain getting all connected again. Do you think my sore throat is the machine or just my cold, i have been putting Vicks on my nose and chest ? Because this is all in french all my info is from this site... so pleased I have found this, any tips are appreciated
Since starting on the machine my back and chest pains seem to have gone also, A man comes to the house again next week to take the readings off the machine.
Thank you all for reading.
Lynn
RE: Update - player - 04-15-2015
Your numbers seem very high, if I am reading correctly... 73 AHI per hour...
126 apnea events in 21 hours, with 119 obstructive, 1 central, and 6?
OK, I give up.
You should really notice a big positive change as you recover and start getting sleep.
Good luck and good health!
RE: Update - Scared - 04-15-2015
(04-15-2015, 05:19 AM)player Wrote: Your numbers seem very high, if I am reading correctly... 73 AHI per hour...
126 apnea events in 21 hours, with 119 obstructive, 1 central, and 6?
OK, I give up.
You should really notice a big positive change as you recover and start getting sleep.
Good luck and good health!
The cardiologist did say he had only ever seen i person that was worse than me, and treated me as an emergency.!!!! I do feel a lot better even in this short space of time no more chest pains...the only thing I have is a blocked nose but I hope when I get my humidifier this will ease. thankou for your comment.
RE: Update - Crimson Nape - 04-15-2015
(04-15-2015, 04:42 AM)Scared Wrote: number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.
I ran the above through Google Translate and got this (with a little editing):
The Apnea Total Sleep Time 126 or 21 per hour including; 119 Obstructive(OA), Central 16 mixed(CA). Total number of hypopneas 323 or 53 per hour (88 obstructive). Apnea Hypopnea Index (AHI) is 73 per hour.
Hope it helps . . .:grin:
RE: Update - OpalRose - 04-15-2015
(04-15-2015, 04:42 AM)Scared Wrote: Hello all, thank you all for your passed comments.
If you remember I posted last week and said I would let you know the outcome, from my rep visit,. These are my readings ( in french) sorry cant translate!!!!
number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.
I have been given a Philips respironics system 1 remstar auto A-flex set at 4-10 with a mask that goes over my nose and mouth i couldn't cope with just the nose mask as I have a bit of a cold, I asked for the humidifier but he didn't have the correct one with him so he said he will pop it in the post as my throat get awfully dry and I gave a cough dont know if it is the machine or if its my cold thats causing this. I seem to be ok and I can sleep in it since the first night although I do wake up about 3 times and do find it a pain getting all connected again. Do you think my sore throat is the machine or just my cold, i have been putting Vicks on my nose and chest ? Because this is all in french all my info is from this site... so pleased I have found this, any tips are appreciated
Since starting on the machine my back and chest pains seem to have gone also, A man comes to the house again next week to take the readings off the machine.
Thank you all for reading.
Lynn
Hi Lynn,
So glad you are doing better. It takes awhile to get used to everything.
If your sore throat persists, please see your doctor. Although it may be lack of humidity.
RE: Update - Sleeprider - 04-15-2015
I recommend you push to get the humidifier as soon as possible. Your machine was dispensed at the full range default settings. You will want to make changes so the machine is more responsive to your needs and better treats your severe apnea.
The clinical menu for your machine is accessed by following these directions http://www.apneaboard.com/pr-system-one-philips-respironics-setup-cpap-clinician-menu-instructions.
The first thing you may want to do is to change the ramp minimum pressure and time. If you feel it takes too much effort to breath when beginning the night on CPAP it is because the pressure is too low. Increase the minimum pressure until you are comfortable. Turn off ramp, or decrease the time in ramp. By default it lasts 45 minutes, and everytime you shut down the machine it restarts. You are not being treated when the machine is in ramp mode.
You can request a clinical manual by sending an email to Respironics PR System One REMstar Auto with A-flex, with Setup Manual in the subject line, and put "Respironics PR System One REMstar Auto with A-flex" in the body of the email.
Good luck and keep us posted of your progress.
RE: Update - retired_guy - 04-15-2015
Hello Lynn! Nice to hear back from you.
Well, you're off to a fine start. Congratulations on that.
I agree with Sleeprider (I usually do of course) about the minimum pressure needing to be a little higher. But what I did when I was new and did not know I could change it myself was just sit on the edge of the bed and suffer until it got up to 6 or 8.
Also I do not like the ramp feature. At your set pressure you shouldn't need it at all, so turn it off.
Do stay at the current pressure settings for awhile until you can find out how they will do. Ultimately I suspect they will need to be increased a little.
RE: Update - Scared - 04-15-2015
(04-15-2015, 07:14 AM)sgearhart Wrote:Thank you very much, is it that bad!!!!(04-15-2015, 04:42 AM)Scared Wrote: number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.
I ran the above through Google Translate and got this (with a little editing):
The Apnea Total Sleep Time 126 or 21 per hour including; 119 Obstructive(OA), Central 16 mixed(CA). Total number of hypopneas 323 or 53 per hour (88 obstructive). Apnea Hypopnea Index (AHI) is 73 per hour.
Hope it helps . . .:grin:
RE: Update - Scared - 04-15-2015
(04-15-2015, 07:45 AM)OpalRose Wrote:Thanks, i will be glad when he comes nxt week to reset the machine and do the readings, my throat is so sore, but it could be my cold. x(04-15-2015, 04:42 AM)Scared Wrote: Hello all, thank you all for your passed comments.
If you remember I posted last week and said I would let you know the outcome, from my rep visit,. These are my readings ( in french) sorry cant translate!!!!
number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.
I have been given a Philips respironics system 1 remstar auto A-flex set at 4-10 with a mask that goes over my nose and mouth i couldn't cope with just the nose mask as I have a bit of a cold, I asked for the humidifier but he didn't have the correct one with him so he said he will pop it in the post as my throat get awfully dry and I gave a cough dont know if it is the machine or if its my cold thats causing this. I seem to be ok and I can sleep in it since the first night although I do wake up about 3 times and do find it a pain getting all connected again. Do you think my sore throat is the machine or just my cold, i have been putting Vicks on my nose and chest ? Because this is all in french all my info is from this site... so pleased I have found this, any tips are appreciated
Since starting on the machine my back and chest pains seem to have gone also, A man comes to the house again next week to take the readings off the machine.
Thank you all for reading.
Lynn
Hi Lynn,
So glad you are doing better. It takes awhile to get used to everything.
If your sore throat persists, please see your doctor. Although it may be lack of humidity.
RE: Update - Scared - 04-15-2015
(04-15-2015, 10:11 AM)retired_guy Wrote: Hello Lynn! Nice to hear back from you.The man from the company comes again next week to read the computer and reset it. I do find my ears block, Do you think he will change all you have said next week?
Well, you're off to a fine start. Congratulations on that.
I agree with Sleeprider (I usually do of course) about the minimum pressure needing to be a little higher. But what I did when I was new and did not know I could change it myself was just sit on the edge of the bed and suffer until it got up to 6 or 8.
Also I do not like the ramp feature. At your set pressure you shouldn't need it at all, so turn it off.
Do stay at the current pressure settings for awhile until you can find out how they will do. Ultimately I suspect they will need to be increased a little.
I must admit I feel pounds better than I did. thank you for your help. x
(04-15-2015, 10:11 AM)retired_guy Wrote: Hello Lynn! Nice to hear back from you.I dont really understand all this so I hope he will sort it for me when he comes on Tuesday. Thank you so much for your help, will let you know what happens on Tuesday. Lynn
Well, you're off to a fine start. Congratulations on that.
I agree with Sleeprider (I usually do of course) about the minimum pressure needing to be a little higher. But what I did when I was new and did not know I could change it myself was just sit on the edge of the bed and suffer until it got up to 6 or 8.
Also I do not like the ramp feature. At your set pressure you shouldn't need it at all, so turn it off.
Do stay at the current pressure settings for awhile until you can find out how they will do. Ultimately I suspect they will need to be increased a little.