It sounds to me as though your best bet is to return to the neurologist. Before you do that, you might want to keep a journal for several weeks detailing your pattern of sleep and wakefulness in detail. If you live with someone who witnesses your pattern, perhaps that person could come with you to the appointment to confirm the accuracy of your journal.
Hello Guest,
Welcome to Apnea Board !As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address. Login or Create an Account
CA (cluster?) events not reducing
|
11-08-2023, 12:14 PM
RE: CA (cluster?) events not reducing
I'm so sorry to hear about your continuing problems, and I wish I had some suggestions to make. Unfortunately, narcolepsy is something I don't know anything about.
It sounds to me as though your best bet is to return to the neurologist. Before you do that, you might want to keep a journal for several weeks detailing your pattern of sleep and wakefulness in detail. If you live with someone who witnesses your pattern, perhaps that person could come with you to the appointment to confirm the accuracy of your journal.
11-08-2023, 08:08 PM
RE: CA (cluster?) events not reducing
Looking at your blood tests, I would bet your testosterone is well below normal. Fits symptoms and low blood counts (hemoglobine, hematocrit). Might be worth checking on the next test cycle. There are so many potential issues and drugs here that are out of my lane. All I can say is the problems are likely outside of your PAP therapy.
Sleeprider
Apnea Board Moderator www.ApneaBoard.com ____________________________________________ Download OSCAR Software Soft Cervical Collar Optimizing Therapy Organize your OSCAR Charts Attaching Files Mask Primer How To Deal With Equipment Supplier INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
11-09-2023, 02:33 PM
RE: CA (cluster?) events not reducing
thanks dormeo & sleeprider for your directions. I will continue the follow ups with the dr for now. good to know that pap therapy is not my concern anymore. i can focus on the mecidinal routes.
|
« Next Oldest | Next Newest »
|
Possibly Related Threads... | |||||
Thread | Author | Replies | Views | Last Post | |
Trying to Reduce CA Events | chrotteg | 11 | 369 |
7 minutes ago Last Post: stevew168 |
|
Still tired and CA events | liebano | 1 | 36 |
1 hour ago Last Post: PeaceLoveAndPizza |
|
[Treatment] Clear airway / central apnea events -- causes and solutions? | mitzvahtime | 6 | 2,404 |
03-25-2024, 04:10 PM Last Post: Jay51 |
|
Central events while falling asleep | michaelyu15 | 7 | 271 |
03-20-2024, 06:22 PM Last Post: michaelyu15 |
|
Recently started CPAP -- very high proportion of Clear Airway Events | matt2 | 0 | 119 |
03-17-2024, 02:48 PM Last Post: matt2 |
|
15-minute periods of massive events (OSCAR pics included) | nicholasb600 | 2 | 179 |
03-14-2024, 09:42 AM Last Post: BoxcarPete |
|
Why does my clear airway events keep increasing? | deirdrepen | 3 | 269 |
03-12-2024, 02:37 AM Last Post: stevew168 |