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Habituation. What does victory over apneas feel & look like on OASCAR?
#1
Habituation. What does victory over apneas feel & look like on OASCAR?
10 yrs ago I gave up on Resmed S9 after too much congestion. Restarted 4 months ago upon memory issues, known for sleep apnea patients. 
After struggle with subjective results on Airsense 11 & Aircurve 11 ASP Auto on nasal pillows, trying the various options available, and help from ApneaBd posts, I finally find myself with negligible apneas,  almost zero leaks, low pressure, minimal nasal congestion. 
Any of your valiant “cured” long-term members left on Apnea Bd to hopefully confirm what this state feels like. Maybe it isn't  the end of the game:  no more daytime sleepiness, BUT SIDE EFFECTS: enhanced memory issues, blood pressure up, edema in the legs when on my feet. 
Having trouble finding relevant posts on Apnea Bd; maybe using the wrong search terms?
Thank you.
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#2
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
I have been on cpap for over 30 years and still have some waking up during the night.  Much less Day Time sleepiness  except when i have woke up for long stretches.  No blood pressure problem.  No leg swelling at all.illette Fat Boy  Gillette Fat Boy Gillette Fat Boy Gillette Fat Boy Gillette Fat Boy Gillette Fat Boy Gillette Fat Boy
Apnea (80-100%) 10 seconds, Hypopnea (50-80%) 10 seconds, Flow Limits (0-50%) not timed  Cervical Collar - Dealing w DME - Chart Organizing
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#3
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
Thanks for your comment, and I hope to hear additional input.
Maybe I should thank the Resmed ASV Auto for an apparently good thing when it happens.  But it came about within a short time of a couple of weeks; after searching on the web, so I worry about it not lasting, whether it will also help my other side effects:
- given my previous sub-apneic clusters of disordered breathing, and the resulting congestive effects (now gone), I read about the possibility of repeated O2 desaturations maybe "dulling" the nasal congestion response; interestingly
- also one's cognitive attentioning capacity (quick reaction ability). Interestingly, some papers call "habituation" in the nervous system bad: decreased neural plasticity, i.e. adaptability to stimulus changes
- and also of potential vascular complications; everything in the body is coupled;  I feel my toes swelling as soon as I put the mask on, and vice versa
- papers talk about animal studies; none about extension to humans

Putting it more simply, I am interested in your subjective feelings upon all types of upper airway resistance syndromes (UARS) being gone.
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#4
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
I strongly advise you to consult with your doctor about the high blood pressure and the edema. The odds are they have nothing to do with your now well-controlled apnea. They may be symptoms of serious but treatable conditions.
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#5
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
there is no victory over apnea. it is a condition you will have for your whole life.  you will have good days and bad days and i guess you could call them victories and defeats
First Diagnosed July 1990
Am now Great-Great Uncle Bill
MSgt (E-7) USAF (Medic)
Retired 1968-1990
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#6
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
Thanks to all three of you ApnBd old-timers for comments.
Let me re-phrase my message title, in case not clear:

RE: Habituation. What does victory over apneas:
- feel like subjectively & 
- look like on OSCAR charts: trends & final curves?

I've been in a euphoric mood with my results for two weeks now, rather unhappy leading up to it.  I am still frustrated by the various medical disciplines not being able to combine their talents, instead each politely implying "not my problem", instead "throwing me over the fence" to start from scratch with an issue needing cardiology,  vascular, digestive or respiratory skills, thereby the combined multi-body system issue being lost in the fragmentation process.\

So, in my constructive attempt to address the forum on such a topic, is there a way to poll the "winners"?  Maybe inject some reality into the advertising by the medical providers and device producers as to what to expect from "success"? 
Is this maybe a previously addressed forum topic? Do I understand that there are as many as 40 million sleep apnea patients in the US ?
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#7
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
Seeing that you are using an ASV, did you buy this or was it prescribed? The reason I ask is that your first post mentions UARS and an ASV is not designed for this. The ASV is designed for Central/Clear apneas.
- Red
Crimson Nape
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#8
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
Clarification: I have a standard doctor-prescribed and insurance cleared Resmed Aircurve 11 ASV Auto.  My post used the term upper airway resistance syndromes (UARS), as in the SA literature, to designate distorted Flow Rate shapes seen in OSCAR, at times of scored apnea clusters, but also clusters which are sub-apneic, i.e. don't score on this machine, but cause me subjective discomfort... maybe occasional local hypoxia or hypercapnia (if I could measure at home).
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#9
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
Here is an example of clusters from 2 mobths ago, which have now almost completely gone away. What could be the reason?  I see them as my normal breathing (period 6 sec) at the start occasionally going unstable by packets of duration 30-40 seconds; sometime the low breathing being marked by Resmed ASV as Hypopneas, Central Apneas, or not marked at all (RERAs).
Looks like nasal congestion driving the airflow down to near zero, whereupon the increased ASV pressure "crashes through" the barrier. and I'd wake up not gasping, but with the breathing dynamics impacted for hours. Such episodes may last 10-20 minutes, normalize, then start up later.
I am now into pretty regular breathing, no matter which mask I use, nasal or FF.  In addition, occasionally I have bursts of high leaks, when side sleep or a change in position opens the mask edge; but lo and behold: they no longer creates apneas; and my nose no longer gets congested.
I am happy, but trying to understand: have I "deadened" the role of the nasal mucus and its air-filtering / warming role, or is my brain no longer creating multi-system resonance to airway instabilities? But impacting my brain's O2 - CO2 exchange, or my short term memory.
I get the engineering-physiological impression that Resmed should be able to detect and correct such multi-breath patterns in the flow rate or pressure curves; not just pressure-hammer down what it senses over one or breaths.

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#10
RE: Habituation. What does victory over apneas feel & look like on OASCAR?
Sorry, it looks like my attached OSCAR JPG image was corrupted, or I no longer know how to add an attachment.
Would one of the moderators be able to deleted the jibberish above?
Here is another try.


Attached Files Thumbnail(s)
   
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