need help
Hey
I’ve been suffering from UARS (Upper Airway Resistance Syndrome), which is a form of sleep apnea, for the past two years. However, about a year ago, I underwent a lot of dental work that I believe triggered what I suspect is Oromandibular Dystonia (OMD). my symptoms are constant tightness in my jaw and tongue, with my tongue sitting abnormally inside my mouth and pressing against my palate. This leads to a choking sensation because of the abnormal positioning and tension in my tongue.
Since then, my UARS symptoms have worsened drastically, to the point where I’ve become bedbound and completely non-functional. The issue is, I’m struggling to get a diagnosis for OMD because my symptoms aren’t visibly obvious, when i took stimulant med they became visble but still I fear that I’ll be gaslit by doctors, as I’ve had this experience many times before.
I’m also finding it difficult to get doctors to acknowledge the severity of my UARS, even though it’s leaving me sleep deprived and zombie without the ability to function (at it current severity since omd started) I’ve tried nasal sprays with some success, but they haven’t provided lasting relief.
What adds to my frustration is that even if I manage to get a diagnosis for OMD, the correlation between OMD and UARS isn’t something that is well known, so I feel extremely stuck. It seems llogical that if my jaw and tongue muscles arent working propely it could affect breathing and thefore sleep breathing
at this point i feel extremely hopeless and depressed, im writing this currently while im having a flare in my suffering and i feel like i havent slept in two days and suffer massively, its unberable and i cant see how can i get help. thats all i had to say and sorry if i wrote bad as i said im very tired.
RE: need help
Welcome to the forum, sorry to hear that you are battling these symptoms.
Are you presently on Cpap? If so please download Oscar and put an sd card in your cpap machine.
Have you had a sleep study, if not consider having you doctor prescribe one.
If you had one please post a copy with your info redacted.
Have you tried some of the tongue exercises on YouTube?
RE: need help
i have been using cpap, i used it pressure levels until 11cm, because i have a problem where over this pressure settings it becomes very loud and unberable to sleep with, it seems like the loud noise mostly come from the exhalation portes a strong psss sound, also i found that with cpap my sleep feels even more fragmented, to send my oscar report?
RE: need help
im using prisma smart, and it doesnt have a flow limitation chart, how can i see it otherwise?
RE: need help
starwars599 - You need to update your profile to display your equipment.
- Red
RE: need help
This forum primarily uses a free Program, Oscar.
Download it and use a sd card and import it into Oscar.
You can zoom into the Flow limit graph and look at your breaths in detail.
Look for flatten tops or other irregularities.
In oscar you should show these charts:
Event Flags
Flow Rate
Leak Rate
Pressure
Resp. Rate
Hide the calendar and Pie chart
Use F12 to capture the screen. Post the chart here
RE: need help
See the rough breathing around 1:20? That is deep or REM sleep. Normally you see that periodically throughout the night , ever hour or 90 minutes . Your leaks are so high that your therapy is compromised.
What mask are you using?
Do you use a soft cervical collar?
Are you a side sleeper?
RE: need help
i am using airfit f30i, it doesnt fit me perfectly but good enough
no, i dont use a cervical collar and yes i believe i am a side sleeper
also, i tried cpap at 7cm 10cm and 11cm and at 10 and 11cm it made feel worsier then usual and at 7cm
with pressures higher then 11cm my cpap becomes stronger then its supposed to be so i havent went that higher but it seems like cpap isnt gonna help me, what do you think?
thank you very much.
