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My sleep apnea journey
#1
My sleep apnea journey
Hello guys, first time posting here, although reading just through comments this forum was extremely helpful, thank you guys!

So couple years ago I noticed that I was sleeping so bad and waking up with dry mouth, long story short I broke nose when I was a child so I thought maybe the nose is the problem. i had septoplasty + rfitt of inferior turbinates in nose 1.5 year ago and later had also continuing problems with sinuses so 5 months ago I had FESS /sinus surgery and adenoidectomy. I thought that will fix my sleeping issues but it didn't Thinking-about .

3 months ago I did a sleep study, I was sure it will be positive, it was and I had ahi of 20. They advised to try oral appliance so I made silensor sl one, costed 360€ , but it didn't help.

1 month ago I decided to do a sleep study with cpap because nothing was helping. I did and it turned out that still with machine on polysomnography report I had ahi of 11 per hour with mostly central apneas, on cpap device ahi was 20.x with 99% of central. They said I have complex apnea and that cpap is not helpful.. I was like confused,  what should I do now? They advised I see pulmologist.. 

Nevermind, I bought myself a cpap and noticed that on sleep study they had apap pressure settings of 8 - 20 , I read here that too high pressure had impact on central anea, they also had Epr on setting 3. 

I bought lowenstein prisma smart and set mine apap settings to 4-11/12 and epr 1, forum was very helpful to see some settings and advices.

I am using it couple a days now, mostly I have ahi of 1 per hour which I consider great, they are mostly centrals.


But I see that mine machine is 90% of the time working on pressure of 4, maybe sometimes goes up to 5. I am feeling much better, but is it normal that lowest pressure can help so much with mine sleep apnea?  I am male with 173 cm and 65 Kg...

Thank you guys, sorry for the long post, but this forum is extremely helpful Smile
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#2
RE: My sleep apnea journey
Awesome, and thanks for sharing your story!  I think something like 80% of us have one or two centrals each night, or maybe even one an hour, but if that's all there is, the treatment is working enviably. I applaud your responsibility for your own well-being, for learning, your willingness to adapt, and for offering your experience publicly to serve as a beacon of hope for others who are on their own journeys.  Well done!  Congrats
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#3
RE: My sleep apnea journey
So I am having some problems lately, I feel like CPAP did wonders for me in the begining, but now like 1 week later it has faded down, I feel tired. I have same settings and my ahi is around 1-2 mostly centrals. 
I feel like I went down from 20 ahi to 1 and still feel tired? any clues why?
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#4
RE: My sleep apnea journey
Are these flow limits or what? 
This blue is central apnea

from prisma software photo
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