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Pokey49 - Therapy Thread
RE: Pokey49 - Therapy Thread
The time is off by one hour. I tried to change it, but the machine would not let me do so despite instructions from one of you here how to do it. 

Now I have 2 doctors saying put this guy on BIPAP is why I went to see my PCP. The doc who read my sleep study and wrote the BIPAP RX is out of state. My PCP has more history on me and can make a more solid medical argument for me.
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RE: Pokey49 - Therapy Thread
I think Pokey said his OSCAR is off by an hour.
I only give suggestions from experience as a fellow CPAP user, not professional advice.
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RE: Pokey49 - Therapy Thread
Hopefully I’ve got my transition to BIPAP issue resolved. My current DME won’t switch me to a BIPAP without me  doing another sleep study. So I called Medicare this morning annd talked with a DME aGeng and I was advised to switch my DME. I was told my PCPs  order for the BIPAP was all I need. So my PCP faxed his order to the new DME this afternoon. So ?
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RE: Pokey49 - Therapy Thread
Awesome, other having them come to pick up the old cpap machine or sending you a prepaid shipping label, I would say you almost done with the old useless DME.
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RE: Pokey49 - Therapy Thread
What’s the better mouth tape to use? I’m using kinesiology tape. 
Question: are we sure taping is ok/safe. It seems  anti-healthy 
But I do it because I have poor luck with full face masks. They leak to much not to mention they are claustrophobic
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RE: Pokey49 - Therapy Thread
Are you using a chin strap?

I was taping but switched to a folded ‘buffs’ and that keeps my lips sealed. But i still use a chin strap. (Knightsbridge)

At some point you are going to have to bite the bullet and work on those anxieties surrounding PAP treatment. A BiPap will not diminish needing the proper machine/user interface.

My sleep Dr. was dead set against taping because of drowning from regurgitation.
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RE: Pokey49 - Therapy Thread
I use the SomNoSeal device and a 2x5 inch strip of the kinesiology tape. 
You could try the SomNoSeal without tape, if you are concerned about the tape.

Not sure if the chin straps and "folding buffs are more safe than taping, don't they keep the mouth closed also?
The tape is easy to take off and I have never had a gagging reflex with it, even though I have gagging reflex that is easily triggered.
I also use a single mouth guard to stop grinding my teeth.
Some double sided mouth guards help with mouth leaks, but I haven't tried them.

I have upsided my P10 mask to a large cushion, so it doesn't go as deep into my nose. I have notice this is so much more comfortable than the medium size P10 cushion. I bought my 1st large cushion out of pocket but had my DME change future replacements to large.
I use lanolin also and have minimal leaks.

I changed the mask type to "full" face mask in device settings and the air flow is much more gentle.
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RE: Pokey49 - Therapy Thread
SUPER PILOT. No I don’t use a chin strap. Just tape. Seems to keep puss shut for the night. 

Curious what you are referring to exactly when you are saying you were drowning in “ regurgitation”? GERD? Or   Are you speaking of mitral valve regurgitation, which I have at a moderate level due to a leaky mitral valve in my ticker. Had it for a long time. Never been an issue for me to date. 

Yes I admit I have a good amount of anxiety over this pap stuff. It’s quite worrisome, for me anyway, when I wake up at 4am feeling I’m near deaths door that I feel so rotten and can hardly stumble to the bathroom.
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RE: Pokey49 - Therapy Thread
Last nights OSCAR is below. My AHI of .87 is all from CAs at the end of my nights therapy. I assume the CAs are occurring  due to waking up? Sleep-wake junk as often described here? There are all these interrelated parameters being measured but its hard, for me at least, to determine what is affecting what and in what direction?? I note when the CAs occur tidal volume & respiration rate increases. Leaks appear to affect flow rate & pressure. Since SPO2 is not measured by OSCAR there is no way to know if one is having 3% & 4% ODI events. Blocked airway is one thing.  I assume a significant  drop in O2 levels w/o an obstructed airway is due to a different cause. What I dont know.  I did wear my oximeter a couple nights recently. I should go back and compare that info to OSCAR for those nights. It did show some ODI events. 

I know there are many here that would kill to have an AHI of .87 on any given night. Its clear I am not having significant OSAs or a bunch of Hs, except a few on some nights. PAP seems to be dealing with those,  but I keep waking up feeling rotten and cannot discern why.


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RE: Pokey49 - Therapy Thread
An informative You Tube on overnight pulse oximeter use and understanding the data https://www.youtube.com/watch?v=wb7D9pDPwAc. Ive been using my EMAY oximeter. After this YT I need to go back and look at the data to see if I can discern anything that can account for waking up feeling so crappy. EJ his guy is saying the oximeter that I use and recommended to you is one and the same. An EMAY
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