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Worst Sleep Apnea Ever or Can U Compete?
#1
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Worst Sleep Apnea Ever or Can U Compete?
Hello Boys and girls,

For eons my APAP BIPAP has been half azz working and comes off my nose or never lets me hit above 4 hours much less 6 hours and i'm in plans for getting Inspire Implant, and this was the latest In Lab Polysomnography Test to prove I needed it. I've attached the report, do handle with care.  And also let me know if there's anything I can do in the mean time like next 6 weeks b4 surgery to improve my health.  I already sometimes still reluctatly try BIPAP and even Mouth Tape but they've been failing me hence my need to switch.

Does anyone's report go this high as freaking 91 AHI or i'm a unicorn? What about Nadir O2 levels of 72%? Any other suggestions?

Peace out bros.


Attached Files
.pdf   Sleep Apnea Report_Redacted.pdf (Size: 315.55 KB / Downloads: 18)
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#2
RE: Worst Sleep Apnea Ever or Can U Compete?
You are not a unicorn.  In my sleep study 24 years ago my AHI was 104 and I imagine that there are folks on here higher than I was.
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#3
RE: Worst Sleep Apnea Ever or Can U Compete?
My husband's was between yours and Steve's. I'm sure there are loads more people with very high AHIs.
Machine:  ResMed AirCurve 10 Vauto
Mask:  Bleep DreamPort Sleep Solution and F&P Nova Micro

Link to thread about switching from Autoset to Bilevel:
https://www.apneaboard.com/forums/Thread...+a+bilevel

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#4
RE: Worst Sleep Apnea Ever or Can U Compete?
wtf dude? 104?  i may have only heard of one other case of someone above 100 AHI, vows....do you do CPAP or alternative?
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#5
RE: Worst Sleep Apnea Ever or Can U Compete?
CPAP only.
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#6
RE: Worst Sleep Apnea Ever or Can U Compete?
You have very severe obstructive sleep apnea that was controlled with an Aircurve 10 Vauto at 10-20 pressure with PS 4, but therapy was compromised by very severe, and persistent leaks. Inspire is a therapy using electric stimulation of the hypglossal nerve to keep the airway open by contracting muscles at the back of the tongue. The STAR trial showed Inspire had efficacy as follows:
  • 68% median reduction in apnea-hypopnea index (AHI)
  • 70% median reduction in blood oxygen desaturation index (ODI)
  • Significant improvement in daytime functioning as measured by Epworth Sleepiness Scale (ESS) and
  • Functional Outcomes of Sleep Questionnaire (FOSQ)
Users of Inspire on Apnea Board have reported different experiences in tolerating the stimulation ranging from complete satisfaction and good results to intolerance and removal of the device.  I can't predict which end of that you will experience. If you tolerate it, you should have OSA control that results in an AHI that remains moderate to severe.  With 217 events per hour on your most recent test, you may still be looking at an AHI over 60 to 80 per hour. I hope it's better.  Your sleep report recommends evaluation of your upper airway by an ENT specialist, and I would add, it may be important to identify the mechanism of your sleep breathing disorder with a sedation endoscopy. Sleep endoscopy, also referred to as drug-induced sleep endoscopy (DISE), is a specialized procedure that allows medical professionals to directly observe the upper airway during sleep, and may be something you should discuss before making a decision.

You always experienced very high leaks and very short therapy periods using your bilevel in other threads. I wish you could have found a suitable mask to enable you to try the Aircurve 10 Vauto and give it a fair chance to work. I still think it is your best alternative, but we can't change your determination or tolerance to that therapy approach.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

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#7
RE: Worst Sleep Apnea Ever or Can U Compete?
any time any doctor mentions cutting, removing or implanting anything get a second opinion if time permits.
First Diagnosed July 1990

MSgt (E-7) USAF (Medic)
Retired 1968-1990
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