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[split] Data analysis - Breath55
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02-26-2020, 03:58 PM
RE: [split] Data analysis - Breath55
looks like the mods split out your own thread here so nothing more for you to do there. I deleted the suggestion in my earlier post since it's no longer relevant. don't let my relatively uninformed assumptions deter you from learning more about the cpap alternative, especially if it really is intended to address central apnea. if it works, I might check it out too. meanwhile, if you have a significant central component that's not treatment emergent / pressure induced (which tends to dissipate in time), asv is the machine for that and it's depressingly commonplace that even folks that clearly need it have to fight for it.
02-26-2020, 04:00 PM
RE: [split] Data analysis - Breath55
This thread is a fine thread for you to continue in.
Change your EPR to 1 EPR = 1 Then post your nightly charts again. If you have CSR again post a 10 minute zoomed view so we can verify what is going on. This will tell us a lot.
Gideon - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter
Download OSCAR OSCAR - The Guide New to Apnea? Helpful tips to ensure success Soft Cervical Collar Mask Primer Dealing with a DME Organize Charts Optimizing Therapy
02-26-2020, 04:35 PM
RE: [split] Data analysis - Breath55
Thanks for the input and an currently working on getting a new machine and there has been another titrations' study ordered just waiting for the rest of the paperwork to make its rounds. They turned the cpap into an apap and now not sure where to go. So ordered more tests.
I hope I have removed the right stuff. I wasn't thinking last time, thanks for taking it down. sleepreport xout.pdf (Size: 587.29 KB / Downloads: 21)
02-26-2020, 04:40 PM
RE: [split] Data analysis - Breath55
Breath, your diagnostic sleep study shows a clear diagnosis of severe central sleep apnea. You need an ASV machine, and I would specifically like to see you have a Resmed Aircurve 10 ASV. You need to call your doctor's office and find out what your path to ASV is. You will need a titration for ASV to demonstrate efficacy and probably will need to do cardiology screening for ejection fraction.
With this diagnosis, CPAP is inappropriate and will not work. Please call the doctor's office to get on the right machine. If you have an affordability issue or poor insurance, let us know and we can help you find less expensive options to buy. Your sleep or primary doctor or frankly any doctor can write a prescription for ASV from the diagnostic study you posted. While I know what Bonjour is trying to do with cutting EPR and keeping CPAP pressure steady, I think CPAP is a waste of your time. You will likely reduce your AHI from your study AHI of 46 per hour, it won't be good enough to be considered efficacy. Anything other than ASV is simply a stop-gap measure for you, and you need to call the doc and get this rolling.
Sleeprider
Apnea Board Moderator www.ApneaBoard.com ____________________________________________ Download OSCAR Software Soft Cervical Collar Optimizing Therapy Organize your OSCAR Charts Attaching Files Mask Primer How To Deal With Equipment Supplier INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-26-2020, 05:18 PM
RE: [split] Data analysis - Breath55
FWIW Sleepriders description is what I expect to be able to conclude after overnight results. Now that I have read your sleep study, there is one and only one conclusion to make. That is an ASV and preferably the ResMed ASV. NO other machine is designed to treat this, only an ASV.
I would call RIGHT NOW.
Gideon - Project Manager and Lead Tester for OSCAR - Open Source CPAP Analysis Reporter
Download OSCAR OSCAR - The Guide New to Apnea? Helpful tips to ensure success Soft Cervical Collar Mask Primer Dealing with a DME Organize Charts Optimizing Therapy
02-26-2020, 07:51 PM
RE: [split] Data analysis - Breath55
Yeah, it seemed kind of strange to me too, but I was also new to having insurance I thought that was the way things went till something got worked out so I just flowed along mostly just grateful that I now had insurance. Saw seven different doctors my first year there and each one I had to try and tell all over what was going on with the sleep apnea at which time I had no report of my sleep study and had no idea how bad it was and I can remember the doctors just glaceing over the information and basically it remaining in limbo. Though after awhile I was issued a cpap machine. Later I was told I had the wrong machine and that's why my neaps where getting worse, so I was given an apap. Now after problems with it a tit-ration study has been ordered I guess to find out just what kind of machine may help me. At the time that I had the wrong machine but no one seemed assured about any of it and there were other health issues being dealt with, none as major as that at the time though no one seemed to notice. So that just got put off to the side, When i did see the doctor its usually for two to five moments and I generally leave more confused than when I come in. I'm just now starting to understand that this is going to be an issues that I have to be more proactive about, and these online forms seem very helpful. The older I get the more problems the SleepApnea is causing me, more headaches in the morning more fatigue, troubles focusing on most anything for long periods and just waking up feeling like I've been running a marathon all night, waking in a dense fog. Thanks for the help!
02-26-2020, 08:05 PM
RE: [split] Data analysis - Breath55
Talk to the doctor and decline any study that does not incorporate ASV evaluation! Do not accept any study for CPAP or BiPAP titration. You must insist the order include ASV. Just learn to say NO. There is a clear and obvious answer, and you can find someone that practices medicine without quacking like a duck. Keep calling and find a specialist that will accept a central apnea patient, and don't accept anything less. ASV will solve your problems immediately.
Sleeprider
Apnea Board Moderator www.ApneaBoard.com ____________________________________________ Download OSCAR Software Soft Cervical Collar Optimizing Therapy Organize your OSCAR Charts Attaching Files Mask Primer How To Deal With Equipment Supplier INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-26-2020, 08:23 PM
RE: [split] Data analysis - Breath55
In your discussion with your doctor, it pays to have a couple of points in the back of your mind:
02-26-2020, 08:43 PM
RE: [split] Data analysis - Breath55
Good advise from Deepbreathing, but the old study was SERVE-HF, and the updated pending study that suggest these risks are negligible is the ADVENT-HF. You can search those studies if you're interested.
Sleeprider
Apnea Board Moderator www.ApneaBoard.com ____________________________________________ Download OSCAR Software Soft Cervical Collar Optimizing Therapy Organize your OSCAR Charts Attaching Files Mask Primer How To Deal With Equipment Supplier INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-26-2020, 08:56 PM
RE: [split] Data analysis - Breath55
said they were going to try cpap, apap and bipap titration at my next test, but AVS was never mentioned. Do you suggest I bring it up? Outright ask for it?
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