New to Apnea? Helpful tips to ensure success
From Apnea Board Wiki
New to Apnea - helpful tips to ensure success
Contents
- 1 Glossary of Terms
- 2 List of Acronyms
- 3 Understanding sleep apnea
- 4 New to CPAP – The Process
- 5 Obtaining medical records
- 6 Prescription - CPAP - APAP - BIPAP
- 7 Machine choices - read this before accepting a new machine
- 8 Setup Manuals - Change your own CPAP Pressure
- 9 Optimizing therapy
- 10 Using OSCAR
- 11 Mask Primer
- 12 The Benefits of Automatic CPAP Machines
- 13 Dealing with a DME
- 14 Travel Compliance Letters
- 15 Help with posting a forum message
- 16 Advice on posting questions in the forum
- 17 Managing Expectations
Glossary of Terms
- A glossary of commonly-used sleep apnea terms and their definitions
List of Acronyms
- A list of commonly-used CPAP and sleep apnea acronyms and what they stand for
Understanding sleep apnea
- A video on sleep disordered breathing & two forum articles explaining sleep apnea
New to CPAP – The Process
- Defining the process & what to expect (from denial through getting a CPAP machine)
Obtaining medical records
- Obtaining your records can help you greatly. HIPAA (Health Insurance Portability and Accountability Act of 1996) is United States legislation that provides data privacy and security provisions for safeguarding medical information. Under HIPAA, patients have certain rights to their own medical records ( HIPPA Privacy Rule & Patients' rights ) These rights include the right to obtain a copy of your Sleep study/studies, titration records and prescription(s). Obtaining a copy of these items can help patients form a greater understanding of their condition and may help avoid a repeat sleep study or titration.
- For our Australian readers. qupp-benefits-and-risks-for-consumers-of-pathology-testing~qupp-what-should-i-know
Prescription - CPAP - APAP - BIPAP
- Sample Prescriptions & Machine Recommendations
Machine choices - read this before accepting a new machine
- Patients are encouraged to avoid getting "stuck" with a "dumb brick" CPAP machine (a CPAP that is not fully data-capable).
- To avoid being "fooled" by a greedy Durable Medical Equipment (DME) provider, patients should read the "Machine choices" Wiki article.
- By obtaining a data-capable CPAP machine, the patient and doctor can monitor the effectiveness of CPAP treatment on an ongoing basis.
- Using Free PC Software along with a data-capable CPAP machine will enable doctor & patient to monitor and chart the effectiveness of CPAP treatment. Go to Apnea Board's Private Files & Links area to learn how to obtain free PC software for CPAP machines. It's necessary to register for a free forum account to access that area.
- Patients are encouraged to avoid getting "stuck" with a "dumb brick" CPAP machine (a CPAP that is not fully data-capable).
Setup Manuals - Change your own CPAP Pressure
- The nitty gritty of entering into the "Clinician Mode" or "Setup Mode" of a CPAP machine in order to change pressures and other settings.
Optimizing therapy
- The basic steps to adjusting CPAP therapy for maximum effectiveness
Using OSCAR
- Data is the key to getting good feedback and the OSCAR software is among the best PC applications to help examine the effectiveness of CPAP therapy.
- [1] (free) Click on the icon for the correct PC operating system, then click on the downloaded file.
- How to post screenshots of OSCAR charts
- Data is the key to getting good feedback and the OSCAR software is among the best PC applications to help examine the effectiveness of CPAP therapy.
Mask Primer
- Great information about selecting, fitting and using a CPAP mask & minimizing leaks
The Benefits of Automatic CPAP Machines
Dealing with a DME
- read this Wiki article Dealing with a DME
Travel Compliance Letters
- Download the above letter(s) for use.
Help with posting a forum message
- Patients need to register for a free forum account to post a forum message.
- The Help button at top of every forum page is useful for obtaining help with a member's forum account. Forum Members may also ask for help in the Member Account Help Forum.
- Members are encouraged to completely fill out their member profile. This is so others can offer customized help tailored to the individual.
Advice on posting questions in the forum
- * Starting a new thread (topic) and putting all related questions in that thread helps to retain the history of the topic so that it's easier for others to provide help in responses to any questions or problems.
- * Members should try to post as much information as possible to make it easier for others to provide advice or recommendations.
- * Using multiple posts (in the same thread) is acceptable.
- * It's helpful for members to include the specific type of sleep apnea or sleep disorder they have (Obstructive, Central, Complex, Hypopnea, RLS, etc.)
- * If possible, members should post a copy of their sleep study or at least the summary of that study.
- * Include a screenshot of daily OSCAR charts. The charts provide solid data that is used to help spot issues and form a strategy to maximize CPAP therapy settings.
- * Members should include other pertinent information, such how they feel physically or what is giving them the greatest difficulty,
Managing Expectations
- New users of CPAP often ask on the forum, "When will I start to feel better", or I don't feel that rush of energy I was expecting". CPAP or bilevel is a treatment for sleep disordered breathing that can cause arousals and prevent restorative sleep. The objective of treatment is to minimize those respiratory disturbances to allow "normal" sleep. This means sleeping long enough and without excessive arousals to allow normal waking function. You should not feel sick any more, or fall asleep inappropriately while driving or going about daily routines.
- The expectation of a euphoric rush is over-stated or even feeling great, may be unrealistic. The majority of people using CPAP feel "functional" or perhaps normal. That first good sleep after years of deprivation can feel manic, but it eventually settles down to a normal life where your sleep is like everyone else's. How many people without apnea rave about having great sleep? New users should expect it to take time (weeks or months) to heal from years of sleep disruption, and they should expect to feel "normal". Feelings of chronic fatigue may be related to other health or lifestyle issues, rather than the therapy. Continued feelings of fatigue may require medical assessment of health, hormone levels, medications, exercise, weight, or many other issues. Recognize CPAP therapy is a tool to solve a particular set of problems, but may not result in feeling rejuvenated.
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