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Frustrated
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Ugly Offline

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Posts: 568
Joined: Oct 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage Micro
Humidifier: ResMed H5i
CPAP Pressure: 7-14
CPAP Software: ResScan SleepyHead

Other Comments: Hydrocephalus, myopia, depression, chronic ugliness, stupidity, tinnitus, mixed sleep apnea.

Sex: Male
Location: Barrie Ontario Canada

Post: #11
RE: Frustrated
(11-25-2012 09:52 PM)archangle Wrote:  Many PAPers feel they have to manage their own therapy.

Indeed. After talking with my family doctor the other day, he felt the results of the sleep study were final despite:

- the pressure suggested was what I already had
- I found myself gasping for breath while trying to get to sleep
- I was still snoring at night
- I rarely awake fully rested

He didn't think I needed to see the Otolaryngologist although I insisted. I have no idea when that will be. I want to discuss these discrepancies. The sleep therapist said I can not upgrade to an "auto" machine without hearing from the doctor. So that leaves me with what I have. I'm borrowing an "auto" CPAP until December 5. The data card it takes (a ResMed S8) is apparently different than the standard SD card and I wasn't given one. So I take notes each morning and have every reason to believe I have to determine my own ideal pressure by averaging out the results. So I agree. The "professionals" aren't helping me manage things much so it's up to me. I realize that after I see the doctor, everyone will leave me to fend for myself.
11-25-2012 11:02 PM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #12
RE: Frustrated
How long have you been using a CPAP?

Google "sleep debt".

What happens is your brain got used to low oxygen and waking up a lot is the norm. You need to keep using the machine and retrain the brain as to what this "sleep" phenomenon thing is.

Many CPAP users report being more tired WITH the machine than without. Part of it is the sleep debt.

The wonky AHI could be related to the same thing. It is the body and brain getting used to all of this.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
11-25-2012 11:52 PM
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Rickgo Offline

Members

Posts: 10
Joined: Nov 2012

Machine: ResMed
Mask Type: Nasal mask
Mask Make & Model: S8
Humidifier: none
CPAP Pressure: 16
CPAP Software: Not using software

Other Comments:

Sex: Male
Location:

Post: #13
RE: Frustrated
Try not to get frustrated. I was fortunate to have a good doctor and lab when I started my CPAP. Regardless you need to be an active participant in your therapy, ask a lot of questions, read what you can, ask others (this forum is great). CPAP therapy works keep at it, "tweak" things as you need too, push your doctors, whatever it takes it is worth it!!!
11-28-2012 09:39 AM
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