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Overwhelmed Newb - Just 1 question
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partsmutt Offline

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Posts: 13
Joined: Apr 2016

Machine: ResMed A10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: HumidAir
CPAP Pressure: 8-10, ERP 3
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: Texas

Post: #1
Overwhelmed Newb - Just 1 question
Hello all. Nice informative forum. Though much of it is still unknown jargon to me. I'm Dave and I slept for the first time with a machine (at the Doc's office) last night. From what I was told before my sleep appointment, we were to try on masks (we did) then I was going to sleep while they adjusted pressures during the night to find my sweet spots (my terminology).

I have many questions, but just one for today. What am I supposed to feel like today? I got the impression that I was going to feel OMG fantastic because I actually slept well, great, wonderful, etc etc. I just feel like me. It is quarter after 2 in the afternoon and I haven't started to doze off, so that's a very good sign. But I don't feel energetic or like running a mile.

Maybe my expectations have been artificially raised too high. Several people have been building up how great this is going to be. My original sleep test said I woke up 511 times (egad!), took 6 hours to reach REM and then bounced right out of it, and my oxygen levels were at 84%. To me, that sounded horrible and a night with the machine should have made me feel totally different in the morning.

Just looking for some level heads to set my expectations or inform me otherwise.

Thanks
Dave
aka Partsmutt

Happy Wife and kids
Big Yellow Jeep
Homebuilt hardtail
A Dozen Guitars
Once I can sleep, life will be perfect
04-21-2016 02:23 PM
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allynpsych Offline

Preferred Members

Posts: 37
Joined: Apr 2016

Machine: ResMed AirSense10 CPAP
Mask Type: Nasal mask
Mask Make & Model: Swift Nano for Her
Humidifier: Built into the Airsense10
CPAP Pressure: 15
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern NY

Post: #2
RE: Overwhelmed Newb - Just 1 question
Hi Dave!
I'm new to the forum myself, but I have found people here to be exceptionally friendly and helpful, so you're in good company. I also expect that you'll find many people had a similar experience to yours. From what I'm learning it takes a while to get used to having a leaf blower attached to your face, and it takes a while to "learn" how to sleep again. I have certainly had a few mornings when I've managed to keep the mask on for 4 - 6 hours and I wake up and think... cautiously..."Well, I don't feel too bad!" and other nights where I'm ready to throw the thing out the window. Smile Hang in there, go slow, be patient and kind with yourself and ask for lots of help. This is one of the most supportive (and knowledgeable) support forums I've been on, so good luck!!

------------
Allynpsych --- Psychology Professor, wife, and mother of a 4-yr old... in need of a good night's sleep. Dreaming
04-21-2016 02:28 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #3
RE: Overwhelmed Newb - Just 1 question
Welcome to the forum partsmutt and allynpsych!!

It often takes time to reap the benefits of sleeping better from treating your SA. Be patient. It can take some months for some folks and almost instant results for others. Everyone is different and so are their bodies and medical hx.

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

-------------------------------------------------------------------------------------------------
EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
04-21-2016 02:36 PM
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PoolQ Offline

Advisory Members

Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #4
RE: Overwhelmed Newb - Just 1 question
you underwent a sleep test where they were adjusting the machine all over the place, be glad you slept at all. My test was a 30 minute nap for the entire night. Once you get setup with your own equipment, adjusted for you, and at home you may get your expected results or you may have to make adjustments or you may have to get used to sleeping with an alien sitting on your face blowing air up you nose.

Hang in there, stick with it and this is the best treatment there is. (it is not magic though)
04-21-2016 03:02 PM
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OpalRose Offline

Monitors

Posts: 3,180
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #5
RE: Overwhelmed Newb - Just 1 question
I'm surprised that you slept at all during a sleep study, and the fact that you haven't dozed off during the day is a good first step.

Once you get your own machine and start using it everyday, you should see more and more positive results. Some people just take longer than others to adjust.
It all depends on getting the right pressure settings, comfort settings, and a good mask fit.

Keep us posted on your progress.

OpalRose
04-21-2016 03:30 PM
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chill Online

Advisory Members

Posts: 859
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #6
RE: Overwhelmed Newb - Just 1 question
Welcome! I am rather new at this also. One thing to keep in mind is that any AHI below 5 and they will consider you "treated". I feel much better if I can get below 2. At 4 or so, I really did not have a good night's sleep. And that is really what it is all about. The numbers are just a guide. Get 3-4 sequential full, good sleeps behind you and then see how you feel.
04-21-2016 05:09 PM
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Inspired Offline

Preferred Members

Posts: 113
Joined: Dec 2015

Machine: resmed airsense 10 autoset
Mask Type: Full face mask
Mask Make & Model: F & P Simplus
Humidifier: HumidAir heated humidifier
CPAP Pressure: 8-12
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: planet earth

Post: #7
RE: Overwhelmed Newb - Just 1 question
Welcome to the forum.
I slept only about one hour the whole night of my sleep study and felt like he double L the next day. Most folks tell similar tales. But after several weeks on cpap at home I felt so much better. Even so after 3 months I am still adjusting and trying to find the right mask to stop leaks. Everyone is different and it requires some patience. But it is so worth the effort to add years to one's life. Hang in there...things will improve!

Inspired
Bigwink
04-21-2016 05:21 PM
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trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #8
RE: Overwhelmed Newb - Just 1 question
Hi partsmutt,
WELCOME! to the forum.!
I had 2 sleep studies when I first got started because, I didn't get to sleep in time to be fitted with a mask and CPAP machine. The first time was just to prove I had sleep apnea and the second time was for me to be fitted with the mask and machine.
Hang in there for more responses to your post and much success to you as you start your CPAP journey.

trish6hundred
04-21-2016 07:36 PM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #9
RE: Overwhelmed Newb - Just 1 question
Welcome. I'll assume you haven't gotten your machine yet. That's great.

Read through the links in my Useful Links at the bottom of this post.

If you don't know what's going on, there's a good chance you'll be screwed with an inferior CPAP machine. There are some things you can do to try and get the right machine.

It's CRITICAL to get a fully data capable CPAP machine.

As for feeling better, if you haven't gotten your own machine yet, it doesn't mean much. When they're giving you your sleep test, they're trying to "find the bound" of your apnea and pressure needs.

They're not trying to give you a good night's sleep. In fact, they're mostly trying to observe a bad night's sleep and figure out how to fix it. You should NOT expect to feel good the night after a sleep test.

Once you get your own CPAP machine, a number of things can happen.

1) You're "cured" and sleep happily ever after with your CPAP every night.

2) It takes a while before you feel better.

3) You take a while before your brain accepts being hooked up to the facehugger from alien and getting adjusted to not being strangled all night long. You sleep poorly, and you feel bad until you start sleeping well again.

4) Your CPAP is working "right," but your body and brain are so adjusted to being strangled every night that you actually feel worse for a while. Your body and brain are used to oxygen deprivation, stress, etc., and have made adjustments to compensate. Now that you're not being strangled, these adjustment make you feel bad. Think of it as feeling bad after you stop smoking, drinking, recreational drugs, certain legitimate drugs, etc. It gets better after a while.

5) You get the CPAP, but it's not really set right to fix your apnea. This is why it's CRITICAL to get one of the fully data capable CPAP machines. You or your doctor may need to adjust your pressure settings to make it actually work right for you in your real world sleep situation, instead of one night in a lab.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
04-21-2016 07:55 PM
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JSL747 Offline

Preferred Members

Posts: 22
Joined: Feb 2016

Machine: ResMed S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 17/12 PS1
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Female
Location: Oregon

Post: #10
RE: Overwhelmed Newb - Just 1 question
(04-21-2016 07:55 PM)archangle Wrote:  Welcome. I'll assume you haven't gotten your machine yet. That's great.

Read through the links in my Useful Links at the bottom of this post.

If you don't know what's going on, there's a good chance you'll be screwed with an inferior CPAP machine. There are some things you can do to try and get the right machine.

It's CRITICAL to get a fully data capable CPAP machine.

As for feeling better, if you haven't gotten your own machine yet, it doesn't mean much. When they're giving you your sleep test, they're trying to "find the bound" of your apnea and pressure needs.

They're not trying to give you a good night's sleep. In fact, they're mostly trying to observe a bad night's sleep and figure out how to fix it. You should NOT expect to feel good the night after a sleep test.

Once you get your own CPAP machine, a number of things can happen.

1) You're "cured" and sleep happily ever after with your CPAP every night.

2) It takes a while before you feel better.

3) You take a while before your brain accepts being hooked up to the facehugger from alien and getting adjusted to not being strangled all night long. You sleep poorly, and you feel bad until you start sleeping well again.

4) Your CPAP is working "right," but your body and brain are so adjusted to being strangled every night that you actually feel worse for a while. Your body and brain are used to oxygen deprivation, stress, etc., and have made adjustments to compensate. Now that you're not being strangled, these adjustment make you feel bad. Think of it as feeling bad after you stop smoking, drinking, recreational drugs, certain legitimate drugs, etc. It gets better after a while.

5) You get the CPAP, but it's not really set right to fix your apnea. This is why it's CRITICAL to get one of the fully data capable CPAP machines. You or your doctor may need to adjust your pressure settings to make it actually work right for you in your real world sleep situation, instead of one night in a lab.

+1

Read BEFORE going to DME and getting a machine........
04-22-2016 12:43 PM
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