Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

[Treatment] Chasing Zero - Newbie needs advice
#11
Once again the medical world has prescribed a top of the line, fully auto-titrating machine and dummied it down by setting it to a fixed cpap mode arrived at by overnight testing with significantly different masks and machines.

If you were running in Auto mode, with a range of say 8 minimum, 14 maximum, then you'd have a good idea of what is needed to control your events. But you aren't. So if you raise the fixed pressure a little at a time, you'll get there, it's just a little more of a crap shoot to get it done.

As to the getting discouraged? Don't do that. You will get great results from your treatment once the equipment starts catering to your needs, rather than expecting you to cater to it.
Post Reply Post Reply
#12
Thanks for your earlier explanation. Your pressures are effectively 8.0/11.0 with EPR. I think you're doing great, but strongly suspect the lower EPAP is why you still have fairly high OA. If the machine was put into Auto mode, I agree with Retired_Guy that a span of 10 minimum 14 maximum would be about right. My "guess" for your minimum is higher because you're using EPR that makes that minimum drop to 7.0 on exhale. So you should not perceive much difference, but the machine could move higher when needed.

The pattern of OA in the chart you posted suggests that you have events when you roll onto your back. The machine in auto mode could deal with that. If you don't want to try Auto mode, then what I said in my first post still applies. You need a higher CPAP pressure, or you can't sleep on your back. Raise pressure by 1.0 to prove it.

Since your ability to attach images is very limited, use the tips in this tutorial and you will have unlimited ability to post charts. https://sleep.tnet.com/reference/tips/imgur

Hey, you're doing great! Keep at it.
Post Reply Post Reply
#13
Thanks all, every one of you are kind to take the time to encourage and explain.

Post Reply Post Reply


#14
your study is somewhat revealing regarding the lack of energy or euphoria.

both in non-PAP and in CPAP periods, you have 0% deep sleep (Stage III/IV). you should do a little reading on this. see below comment *

also, you had 80.9% sleep efficiency during first half and 51.3% sleep efficiency during second half of your study.

that is a lot of loss of sleep and if it turned out to be normal for you, this could explain a little of the effects so far.

But, your brain and body will eventually settle their dispute.

Stay with it.

Can anyone on the forum recall their own sleep architecture during lab sleep study, and whether there was an absence of deep sleep? It is certainly possible that no deep sleep is the norm while they are studying you....

* I believe you would benefit from a combo of exercise and brain wave entrainment treatment. Hold back for a moment on the quackery comments, and do some reading, and maybe do some trials. Ask your GP about that.

QAL

one study you should read is ## http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3417155/
note the point about lower-carb dieting as well.
Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
Post Reply Post Reply
#15
Hi Lkallen,

It speaks well of your Durable Medical Equipment (DME) provider that you were dispensed an APAP set up in CPAP therapy mode, rather than a cheaper fixed-pressure or less data-capable machine.

EPR is considered a "comfort" adjustment which patients are usually encouraged to adjust for themselves.

The provider took it upon himself to increase EPR to 3, which lowered EPAP (your exhale pressure) to 11 - 3 = 8. During the titration you had better results when EPAP was 11 - 2 = 9.

I suggest lowering EPR to 2 or lower.

I also recommend making sure you never roll onto your back while sleeping, or else call your doctor to ask for a change to APAP therapy mode right away.

If you haven't already by that time been changed (at least temporarily) to APAP therapy mode, when you next see your doctor (hopefully you will have an appointment soon with your doctor) I recommend requesting a change to APAP therapy mode, along the lines suggested by other posters. A titration is a portion of just one night. It is pretty common that the pressure prescribed on the basis of a titration study which lasts just a few hours is significantly off from an optimal setting.

Take care,
--- Vaughn





Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
Post Reply Post Reply
#16
(03-15-2015, 09:14 PM)quiescence at last Wrote: Can anyone on the forum recall their own sleep architecture during lab sleep study, and whether there was an absence of deep sleep? It is certainly possible that no deep sleep is the norm while they are studying you....

My initial study showed 95% light sleep, 5% deep sleep, and 0% REM.

The study with CPAP showed a huge improvement - 11% deep and 25% REM

Post Reply Post Reply


#17
Welcome Lkallen!

I'm fairly new to all this too. As a word of encouragement, I got 0.0 AHI last night (with 8+ hours of sleep!). Fortunately my initial setting have worked like a dream.

Keep at it though! The difference in how I feel through the day is incredible and definitely worth sticking it out.

I'm fairly clueless re. tracking/tech stuff. I just check the data directly on my machine each machine. But there are lots of really knowledgeable people around here Smile
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
  [Health] Newbie Question suzpigott 5 156 12-15-2017, 01:32 PM
Last Post: Grazi
  Another Newbie overlap 3 153 12-12-2017, 11:54 PM
Last Post: trish6hundred
  Rank Newbie Doza 98 3,437 12-10-2017, 07:34 PM
Last Post: HalfAsleep
  Well Rested Newbie sansnap 50 7,638 12-07-2017, 01:33 PM
Last Post: willow lee
  Just diagnosed but headed back for 2nd study. Advice? Piggles 67 3,786 12-01-2017, 02:53 PM
Last Post: Solar Rays
  Need advice on buying Ipepper 6 282 11-27-2017, 07:55 PM
Last Post: DeepBreathing
  What's with this newbie data? HalfAsleep 87 2,890 11-21-2017, 01:22 AM
Last Post: HalfAsleep

Forum Jump:

New Posts   Today's Posts




About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.

For any more information, please use our contact form.