(08-24-2012 05:54 PM)orel Wrote: Thought I would make a thread just on my personal situation, maybe I can get some pointers on how to deal with my new situation. I've recently turned 20 years old and I'm morbidly obese. 5'10, 298 pounds. I've been this overweight all my life and I've never really had any problems. Few months ago I went to see a cardiologist because I was feeling very weak in the chest when I fell asleep. That's the best way I can describe it. The cardiologist ran a few tests and everything came back clean. That weakness eventually faded.
Personally, I don't consider 5'10 and 298 to be morbidly
obese. Overweight, yes. According to the charts, you are about 100lbs overweight for a person of that height. The good news is that you are young. You still have time to re-train your body into knowing what 'normal' weight is. Speak to a Registered Dietician (not a nutritionist) about what foods to eat, calorie count, etc based on your lifestyle.
Quote:I went in for my yearly checkup and told my doctor. She told me that I probably had sleep apnea and sent me away for a sleep study, chest x-ray, and bloodwork. I had the sleep study two days ago. It was a long night. For the first two hours I couldn't sleep at all. My breathing just wouldn't let me. Then I went through some light sleeping interrupted by long breaks where I willed myself to fall into a deep sleep (NOTE: I was currently going on 36 hours without ANY sleep when I went for the sleep study). The light sleeping equaled two hours total. Finally I fell into a deep sleep, but by that time the technician came and woke me up. He let me sleep an hour after he was supposed to wake me since it was my first real sleep that I did. He told me that I slept a total of less than three hours. He said he wasn't sure what information they could get from that. Next day a receptionist called me. She told me I had moderate sleep apnea, with 21 episodes an hour (also blood oxygen reached a low of 77%). She also said I had involuntary leg movements. She said that they wanted another sleep study with a CPAP. I'm going in tomorrow to do that. I'm kinda worried that my lack of sleep gave them inaccurate information. I have a followup with my doctor in another week with the sleep studies, bloodwork, and x-ray results.
Call your doc first thing in the morning and request something to help you sleep. Something mild enough to de-stress but not so heavy you don't have an accurate test. If you cannot get enough sleep still, ask to be able to rent an APAP for two weeks or more. This will enable you to basically self-titrate (which is what they call it when they figure out what pressure you need). Even if you do get the sleep you need and feel the results were good enough, I suggest you still push to get an APAP. Especially if you plan on losing that weight. As you lose weight, your pressure needs will probably change. An APAP (and watching the data) will adjust it for you.
The leg twitches were probably what they call Periodic Limb Movement Disorder (PLMD). What it is is your brain is shouting "Wake the heck up!!" and is causing you to jerk. PLMD is very common with those of us with sleep apnea. (The day time leg jerking is called Restless Leg Syndrome (RLS). But that is caused by other things.)
Quote:I'm been really miserable the last few weeks. I'm hoping this CPAP thing will help improve my quality of life. Any tips, information, or support would be appreciated. Maybe questions that I need to bring up with my doctor, or the sleep clinic, things I need to tell them. Another thread is saying that I NEED to get an APAP with data collecting. I'm not sure what my insurance will cover. I just don't want to make any mistakes now that will negatively affect me longterm. Thanks guys.
If you really want to lose that weight and you think you can, then that alone is enough reason to push for an APAP. Because it can be set to a range of pressure vs a single number, it can adjust as you go along.
As for what to ask for, and because we are nosey and like to know stuff
- First, ask for a copy of the sleep report. Don't let them talk you out of it saying you won't know what you are reading. You want that report for your own records.
- What was the AHI for both nights
- How many of that count were apnea events and how many were hypopnea (shallow breathing) events
- How long was the longest event
- What was the average length of the events
- Were there any central apnea events or all obstructive
- How did the O2 do with the CPAP during the test. If it did not go high enough (over 95 is best), do you need supplemental oxygen at night. Probably not but it is something to ask.
- Also ask about the dietician. The doc may have someone in house or could refer you. The trick to dieting, in my opinion, is to not diet. But to change habits and to understand portion control (which is my biggest problem). Studies say it takes 27 (or was it 22?) days to establish a habit. (NPR rocks) You've had 20 yrs worth of habits that may need to be changed. And trust me, it ain't easy. But the slower you lose the weight, the slower it will come back if you 'slide'. And you will. Like I said, it ain't easy but it is possible.
I look forward to hearing more from you! Welcome to ApneaBoard!