What I've noticed in my short time as part of the sleep apnea community is the complete lack of follow thru by the prescribing doctor/DME supplier.
Once you've passed your 30 day compliance period, sleep apnea is treated more like a once a year thing like a flu shot instead of an iterative back and forth fine tuning process between patient and physician.
People on this and other sites like it are the ones controlling their treatment, but only becase they've taken the time and trouble to search out how to do it. I personally know two other apnea patients who rarely, if ever, check their nightly results and have never considered adjusting anything from the way their machine was set up by the DME. Like me, they have had little to no further contact with their sleep doc to see how their treatment is going.
I understand that DMEs are only interested in moving "iron", as we used to say in the computer business, and so have little or no interest in how that "iron" is used once a sale is made.
Also, doctors in my experience seem to feel that a one night titration study is good enough to prescribe a long term treatment plan with little or no followup to see if it's actually working in the real world. This is the only medical treatment for a severe chronic condition I'm aware of that operates this way.
That's why these sites are essential to people who actually want to control their treatment, and this is why the firewall of DMEs manufacturers set up to preclude patients not in the know from adjusting their treatment needs to change. Even my sleep doc can't read my ResMed data card, seems satisfied with whatever data the DME chooses to pass on, and was surprised that I even knew about it.
Imagine being a diabetic using a blood glucose meter whose results can only be interpreted by sending the meter to a DME. This seems to be the treatment model sleep apnea patients are up against.
By insisting on getting a ResMed I am forcing both my sleep doc and thr DME people to get familiar with other products. They only deal in the Phillips System one. They all seemed upset with my choice. But I'm the one who has to use it.
I dont have a resmed
but i strongly disagree with the statement at the start of this post
my phillips bilevel model 50 is dead
i was blessed and amazed i was given a brand new FP sleep style 600
yes out dated and changes since
i hate a machine controlling my humidifier
my 50 and remstar humid with a insulating wrap was fantastic enough humidity every night
this thing calls up the but to FP a local supply repair shop
finally put my insulator over the hose and confused it now its great
it would not start till morn or whenever it felt like it on and on
i went through my 50 dying and lost control of its humid
at the start this was so dry now with the cover just have to set a alarm so i dont cook the tank
heated is great heated gets more water to the face
but when heated gets smart its a big problem in my book
humidity is not optional i have a fitlife fireman mask my nose wont stay moisturized anymore had to run the 50 no humid for 6 months
i am finally getting some of the moister problems in my face and eyes to go away
i also found interesting except for major mask adjusting i had no problem
going bi level to regular i adjusted that night and thats a pressure or 17.5
just hurts the head being tight so you dont get blowouts but hey i wont look good fortune and say bad it saved me my 5o was dying so bad i felt a 10 percent difference on the new
"You're only lonely if you're not there for you."
-- Phil McGraw
Well, I looked my demons in the eyes, laid bare my chest, said "Do your best, destroy me. You see, I've been to hell and back so many times, I must admit you kind of bore me."
- Ray LaMontagne
One good thing about music, when it hits you, you feel no pain.
[quote='dbrew4' pid='49744' dateline='1384866313']
My suggestion would be to check this link out. Read what's there and watch the video. It should help understanding the S9. You will have to go into the "Clinician Setup" in order to access all the ClimateLine settings. It took me awhile until I understood what to do once I was in that menu. I also suggest you contact your machine supplier and ask them about your issues and ask someone there to walk you through the on how to get to the menu settings and what to do when you get there. It sounds like you need more humidity and the ClimateLine Auto setting just doesn't work that well...at least for me it hasn't. Good Luck..Dennis
Thank you! I will try out changing the settings. Regards.